Location: Home of the Pirates, Steelers and Penguins
Posts: 13,426
S/C/G: 217/176/142
Height: 5'2
Hi Foxylady2. Thank you for sharing your journey! Very informative.
Trish, I'm sorry to hear there was a problem with your transfusion. I hope this is the last you will need and you start getting your strength back. Do they know why you are losing blood or is this just part of the cancer treatment. I'm glad you are getting your color back. The first thing I noticed after DH had his heart surgery was his color brightened up. His heart must have been very bad that he looked so ashen.
The only person I've known who needed transfusions was MIL. She would get very weak. Eventually they discovered she had a leaky heart valve which she had replaced. I also have a leaky heard valve but I have never needed a transfusion. I hope I never reach that point.
We go to bed between 9 and 11 but DH has the tv on for a while after that.
I just read that chemotherapy can prevent the body from making new red blood cells resulting in anemia and weakness which necessitates the transfusions.
Last edited by Wannabehealthy; 07-05-2023 at 11:23 PM.
Feeling better today and expect that to continue. Not much happening today. We will either have the other half of the pizza we didn't eat yesterday or have fish and I will have some veggie with it. I hope I have some squash to eat with it.
Carol Sue, I wonder if y'all went to the casino today. I hope Fatmad is having a great time.
Location: Home of the Pirates, Steelers and Penguins
Posts: 13,426
S/C/G: 217/176/142
Height: 5'2
I'm glad you're feeling better Trish and eating without any problems. We went to Texas Roadhouse and used the rest of our gift card. I had salmon, broccoli and baked potato. I've been craving salmon and theirs is good with no seasoning.
We went to the casino yesterday. It was ok. No loss no win. I just read. I wish he would get tired of this.
I have not been on the forum for quite some time. Hubby and I are both Type 2. He recently had a mild heart attack and had to have a stent put in. Since the heart attack, we have both been doing much better with our eating, we are trying to combine the Diabetic and Cardiac Diet. Our blood sugars have gotten MUCH better and we have been losing weight, of course him, being a man, is losing more than I am, but that does not matter, what is important is improved health. Anyway glad to be back. Have a blessed weekend.
TamTam Welcome back. Sorry to hear you and DH are both T2 diabetic and he had to have a stent put in but I guess things happen as we get older and glad he is feeling better. I understand how it makes us feel better when they do. Do you still have the bookstores or did you retire? You have a nice weekend too.
My DH is T2 also and he is skinny. So go figure but it does help with us both to eat healthier because we eat pretty much the same.
I have my follow up doctor's appointment at 4 with primary and then we have to go to Sam's to get my protein shakes and to local grocery to get my prescription. I got a voicemail saying it is time to have 6 mo appointment with primary but I am going to either beg off or something. My arms are so black and blue and I have to start chemotherapy again next Friday. I hate getting off schedule with DH as we always go together but I am constantly seeing doctors right now and getting blood draw once a month when in therapy. Plus I'm going to have to see my gynoncologist surgeon every 3 months for years once these last 2 or 3 chemo rounds are over. If they could do labs today and I could go back next week or count today as both follow up and 6 months I would do that but I don't want to have any appointments during therapy especially the 14 days when immunity is bombing out.
Carol Sue I guess you and DH got out early today. Hope all is well with y'all.
Hello Trish. I am not sure where I left off. We closed down our first location 4 years ago next month, it broke my heart, BUT, had we stayed open we would have lost everything in Hurricane Ida. God is in control! Girl Donald says he will retire at 92 and I plan on retiring 5 years after I am dead.. I am sorry you are having all these health issues. The older I get, I often wonder what is so golden about them? But it could always be worse. I just got my Medicare card in - I am like - When the heck did I get old enough for Medicare - that is for old people! Our son and his wife sustained major damage for Hurricane Ida, they lived with us for a year, they sold their house AS IS, bought a beautiful mobile home and live in a MUCH quieter and safer neighborhood. We had to replace the roof on our house and the siding, we just finished putting up the ceiling tile in the kitchen and living room. Hope to never see a storm like that again.. EVERY church in our Diocese is damaged, the center at our church is gutted. A real nightmare. Anyway hope you have a great weekend. God bless Tammy
Location: Home of the Pirates, Steelers and Penguins
Posts: 13,426
S/C/G: 217/176/142
Height: 5'2
Hi TamTam! Its,good to see you back. I'm sorry to hear of all the misfortune your family has had to bear but I'm glad you are all doing better.
Trish, we are doing fine. I used to weigh every morning then post but I no longer weigh daily. I should get back to it. I got on my vibration platform for the first time in a while. My fat was sure shaking around! I got the urge to use some of my machines put that urge quickly passed.
I can imagine you have had enough of doctors and medical facilities. I don't think it will matter if you miss a visit with primary. Do what is best for you.
I love my doctor and I just can't lose him for my primary care. He decided to hold off until October for DH and me to have our check up. He agreed not to poke on me or draw any blood. He said he is there if i need him to explain anything but right now we need to spend time treating the cancer. So we will see him at his new office which he opens August 15th.
He also explained to me why I had the tube in my nose. It was to give my bowels a rest because I was constipated and they weren't working right. So it was necessary but the doctor just isn't /isn't one who is good at explaining things. (Bad bedside manner.) Of course my primary could not say it that way. Like I told primary, I am used to him and all my cancer doctors and nurses explaining everything they are doing and why.
Any way I am free with no appointments for one week. DH will have to go get my meds at the grocery store because we decided it would be too crowded in pharmacy. Besides we wanted to get food we can get at the local store next to Sam's that the one closer to us doesn't carry. He will probably go Monday or Tuesday.
Location: Home of the Pirates, Steelers and Penguins
Posts: 13,426
S/C/G: 217/176/142
Height: 5'2
Trish, this m glad you like your primary doctor. That's so important. I like mine too but for different reasons. I had him for over 25 years. I can say what I want to him. If I don't want a certain procedure I just say no. He likes to send me for procedures and tests that I don't think i need. He is DHs doctor too and I think if it was not for me he would refuse him. DH only goes once a year for his meds and refuses even to get blood work. DH is a tough cookie!
I am hungry but I'm going to bed. I will eat tomorrow.
Carol Sue There have been times when I too have refused to do something Primary doc wants me to do and I also explain to him why. There are some things I just don't want in my body. Like I told him yesterday about the chemo. I have read things I don't like about having it in my body, but what do you do? It is needed to kill the cancer so I can live. He knows me and I know him. I really don't want to have to break in a new doctor and have to try to get the same relationship I have with the one I have now.
Not much happening today. DH seems to be finally getting some much needed sleep. He usually is up by now. He is supposed to go to the store to get my medicine and I got a message his metformin is ready too. He needs to pick up lettuce and bread while there too. We will have a salad and finish off the leftover pizza since we had Chinese food yesterday.
I am taking iron pills to try to keep my blood healthy and DH DD who is a nurse told me to take it with orange juice. She said they don't know why but have learned that it makes the iron work better. DH finally got me some yesterday so I started drinking a little of it with the iron pill I take. That's it for now.
Location: Home of the Pirates, Steelers and Penguins
Posts: 13,426
S/C/G: 217/176/142
Height: 5'2
Trish, I also don't want to have to get used to a new doctor but I think our doctor might be retiring soon. There are other doctors in the group so they would probably just switch me to one of them.
I know how you feel about chemo. So many say there are other treatments but how do you decide? It sure does have terrible side effects. This seems like the time you have to trust your doctor to do the right thing.
I have been eating less lately. I'm waiting until I'm hungry. This doesn't please DH much because he gets hungry often. He makes some things for himself and I would cook for him but he doesn't say what he wants. He wants to decide what he wants and eat 20 minutes later. It doesn't work that way. Sometimes I plan on something and defrost meat but then that's not what he wants. I don't eat the same as I used to and I don't want to ever go back to that! I think I can continue losing weight if I am allowed to control my eating.
I want to get on the scale tomorrow and see some favorable results.
Location: Home of the Pirates, Steelers and Penguins
Posts: 13,426
S/C/G: 217/176/142
Height: 5'2
We had a talk today about the casino. It used to be worthwhile because we won a lot. We don't anymore and its getting annoying. He agreed to stop going to the one that's a one hour drive. He will go to the one 25 minutes away and he will take less money. I will try my best to make him stick to that. It does not have a food court for me to sit and read and it does not have wifi. But I will figure something out. As casinos go, I let me the other one better but its a long ride on the interstate. We are getting too old for that. We have had this discussion before but I think he is sincere this time.
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Some of my bras are now too big. I'm still wearing them but they are uncomfortable. Then I remembered when I was gaining weight my bras were getting too tight and since they were still good I packed them away in a drawer in the spare room. I got them out and will try them on to see if they fit. I don't really want to have to buy new ones. I hope the old ones fit even if its just a few of them.
I have been eating less than 1000 calories for a few days. I feel skinny today but the scale still says 179. Maybe tomorrow. I know 179 isn't good but I'm amazed that I'm staying away from 180, even if its only 1 lb away.
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Well, I found 4 bras that I can wear now if necessary. They were probably the last ones I wore before I bought the new ones I'm wearing now. Some of those bras are so small I don't think I will ever get small enough to wear them but they are in the spare room not in the way. Ill hang onto them a,while longer.
Last edited by Wannabehealthy; 07-09-2023 at 10:59 AM.
Carol Sue I'm glad y'all talked about the casino and hope he sticks to it especially after what happened when he couldn't walk the next day. Glad you found some bras that fit. I think your body is adjusting to the 170s and will come down.
I finally felt like calling my kids. I talked to my daughter yesterday and to my son and DIL today. It was good to hear from them.
I think I'm a little better today. I'm looking forward to the pork chop DH is cooking today. I am eating salads again and will eat a slice of cantaloupe. I won't eat fruit during first 14 days of chemo as I heard it causes diarrhea, but will eat it during days 15 through 21.
Location: Home of the Pirates, Steelers and Penguins
Posts: 13,426
S/C/G: 217/176/142
Height: 5'2
I was in bed most of the day. So tired, falling asleep off and on. I didn't feel sick. Then I slept at night too. I was sweating again but haven't taken magnesium for a couple days. So today after taking my shower I feel very rested.
I'm glad to hear you are eating again and its not bothering you. The blood transfusions must be helping.
I think I will get on the scale today and I hope it doesn't go up to 180. I dont know what we will do today. I want to clean but I think DH wants to go to Goodwill. He could go by himself but he never does.
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I think I should go back to weighing daily. Today I weigh 179.4. On June 18 I was 179.2. I guess its true that when you eat less your body just slows your metabolism. I don't know what to do because if I eat more I just gain. I guess I will continue to eat the way I've been and try to be more active. I don't want to go back to overeating. At least my blood sugar is great! I never thought I would see that. This morning I saw some leftover salmon from TX Roadhouse in the refrigerator. It smelled ok so I ate it. It was so good, even cold. Now I want salmon again. I could cook it at home but DH won't eat it. He will eat it in a restaurant but mine is not as good as theirs.
Last edited by Wannabehealthy; 07-10-2023 at 10:43 AM.
. I am sorry you are having all these health issues. The older I get, I often wonder what is so golden about them? But it could always be worse. I just got my Medicare card in - I am like - When the heck did I get old enough for Medicare - that is for old people! Our son and his wife sustained major damage for Hurricane Ida, they lived with us for a year, they sold their house AS IS, bought a beautiful mobile home and live in a MUCH quieter and safer neighborhood. We had to replace the roof on our house and the siding, we just finished putting up the ceiling tile in the kitchen and living room. Hope to never see a storm like that again.. EVERY church in our Diocese is damaged, the center at our church is gutted. A real nightmare. Anyway hope you have a great weekend. God bless Tammy
I got the urge to use some of my machines put that urge quickly passed. 
