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Old 03-07-2023, 06:16 PM   #1  
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Old 03-07-2023, 06:20 PM   #2  
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Mad, thank you for clearing up my questions about celiac.

​​​​​​At our hospital, anyone who lives alone OR has no one at home who is capable of caring for them is required to go to a rehab center after surgery etc. Our hospital has a rehab floor. Even if you have someone at home you are taken to the rehab floor where you show that you are able to go up and down stairs, get in and out of bed, go to the toilet unaided etc. A woman who lives alone told me she had to show that she could operate a stove to boil an egg.

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Old 03-08-2023, 04:10 PM   #3  
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Just a quick check in. They say between day 10 to day 14 the immune system is the lowest so I assume that is why I am so tired right now as this is day 10. I go for lab tomorrow afternoon so I told DH that I want to get one of their wheelchairs to take me in because I get too exhausted using the walker here at home. Still not eating enough. One meal a day and some days like yesterday it wasn't even a meal.

Have a nice day.
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Old 03-09-2023, 01:09 AM   #4  
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I posted but it went poof into cyberland. It's late, after 1 AM so I will go to bed and post tomorrow.
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Old 03-09-2023, 09:04 AM   #5  
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This morning weight was down .4 to 182.0.

I'm glad you checked in Trish but sorry you are still feeling poorly. Hopefully that means your body is fighting off the cancer. I hope you lab work turns out well.

We have had a busy and costly week. DH lost his wallet. No money in it but we have had to cancel and replace all his cards. I have to do most of it because he doesn't know what to do. His mom took care of him for the first 20 years. Then wife #1 for the next 10. One year he was on his own. I don't know how he survived. Then I took over since then. He just cannot be alone. But he is helpful to me when it comes to cars and physical work. We expected someone to return his wallet or turn it in but nothing so far. Its a pain in the butt to replace cards. We did the important ones,drivers license, credit card, medical card. We have found wallets but returned them to owner or turned them in to police.

We went to the casino yesterday and lost.
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Old 03-09-2023, 10:19 AM   #6  
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HI Carol and Trish:
Carol, sounds like a losing day all around, the only good loss was in your weight. LOL I hope the wallet gets found and returned. Watch out for identity theft. Its possible a pick pocket got it too.
But not if none of the credit cards showed usage. Was it lost at the casino?
Trish, Chemo can be terrible this way, and you are showing good sense and self-care by using whatever assistance you can get, including being pushed in a wheel chair. Do not worry about not eating for now, maybe a bit to keep up strength, but its quite normal to not want to eat at this time, I am sure you were told that. Perhaps an ice cold not too thick smoothie would be something to sip at. I know my FIL had ice cream and popsicles only some days.

The procedures went well, but the pain is still there. I was mad hungry last night and ate a lot, so was surprised at 173 on the scale again today. I checked yesterday before I started drinking my fluids, but that was a "cleaned out" weight, and it was 173. I would have thought the weight of the food alone would do it. I had several slices of raisin toast (GF) with butter, some yogurt and some sauerkraut, so breaded fish and 2 potatoes (those done in the airfryer) so that is easily 2-3 meals. Today I hope to eat lighter and lower carb. The bread is going into the freezer. It has psyllium and xanthum gum in it, for bulk and fibre and cohesion to replace some of what gluten does. This are suspects for my pain. But I wanted to try the raisin toast first, would have given to my celiac neighbour if I didn't care for it.
The pain is still there this morning, fairly mild, at least it did not wake me. After fasting well on Tuesday, I feel a renewed desire and ability to fast at least once a week for 42 hours. I won't worry about that now until next week, will just focus on IF and lower carb. So that means making some cake today, I am going to a friend's birthday party tomorrow. She is in a nursing home now, so it will just be a few of us, but that will be lovely.
I am amazed how much better I feel, and how quickly that has happened, now that I am off gluten. Already less joint and muscle pain, less fatigue. what a relief!

Have a good day friends.
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Old 03-09-2023, 12:18 PM   #7  
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Mad, the wallet was not stolen. Its all very strange. We were at the drive thru ATM at our bank. When he tried to withdraw money it went thru the entire transaction but then just closed down and returned the card. No cash. He tried twice. After we pulled out I told him to try my card. He had put his card back in his wallet but it was still on his lap not in his pocket. I told him to try a lower amount with my card. He was not pulled up close enough to reach the ATM buttons so he opened the door and leaned out. This is when we think it fell off his lap and out the door. We left there and drove to the Dairy Queen. This is when he realized the wallet was gone. We drove back to the bank and it was not there.

I'm glad you feel better without the gluten but sorry you still have pain.

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Old 03-10-2023, 09:06 AM   #8  
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For some reason I was exhausted yesterday and fell asleep at 3:30. Slept until 8 pm. Got up and watched tv til 10 then went to bed. No food or drink after 3:30 except for water to take meds. I believe that is why the scale is down .6 to 181.4. I should be able to not eat or drink in the evening when I'm awake. After that extra long nap I was still able to sleep when I went to bed. So I am very well rested today.

I should probably make a Wal-Mart run before I cancel our credit cards but I do have 2 other credit cards I can use. I have a credit card that is only used for online purchases. I can use that in a pinch.

Hope you are geek by better, Trish.

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Old 03-10-2023, 12:21 PM   #9  
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I am under so much stress right now and need to vent. I called the credit card company about DHs lost card. I wanted to close the account and open a new one. The agent I spoke to could barely speak English and was very hard to understand. I answered all her questions to veriify who I was but that was not enough. We went back and forth and my patience was wearing thin. Before she sent new cards she wanted me to fax or text a copy of my Federal ID. By this time I was screaming. So I got irate and told her I have other credit cards, just close the account, and she did. Thing is, that was my favorite card. I might just end up opening a new one as a new customer.

_____________

Update:

I applied for a new account with the same card. Not only was I approved, but my credit line is twice the old one, the interest rate is lower,
and I get $200 cash back after spending $500. This tells me they were not giving me the best offer available on the old card. I will never come near the credit limit and I pay in full every month so the interest rate doesn't matter. So why couldn't that woman just send me the new cards!!

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Old 03-10-2023, 05:21 PM   #10  
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I tried to semd a post yesterday and lost it and just didn't feel like writing it again. Then I got a call from oncology that the doctor had called in an prescription for Levofloxican to take 5 days because my white cells are too low. Then today I got the full reports on my labs and my hemoglobin is too low. No wonder I have been feeling as I have.

Mad I hope you are beginning to feel better today.

Carol Sue I'm glad you finally got the credit card situation worked out.

Hope y'all have a good day.

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Old 03-10-2023, 06:06 PM   #11  
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Trish, I'm sorry you are getting these bad lab results but hopefully the meds will help. I feel bad complaining about things that are really just an inconvenience. Prayers continue for you.


Trizh, I had a very bad reaction to that med! Be sure to read the side effects!

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Old 03-10-2023, 08:19 PM   #12  
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Hi everyone: well, my sweet tooth has reduced a bit, I got a Toblerone cake by Almondy and its TOO sweet. Hard to believe I would ever say that. I bought it because I did not have the energy to make my GF cake for the birthday party I went to today. My neighbour is 86, and several of us went to her nursing home where she has been living for the last few months, and had a little party for her. Everyone liked it, but I found it too sweet. Its a nice cake though and I bought a few and put them in the freezer for occasions when I need a GF dessert. There were on sale at the Walmart, so it was a reasonable expense. My energy is slowly returning though. And the overall body pain is much better, including my feet, so I am pretty happy with it.
I go to a friend's wedding tomorrow, and the supper if GF but not the dessert, and right now, I am totally over having dessert anyhow. DH suggested I take a little something to have in the car in case I want something. Then I start my low carb. No big plans for the next week or so, but its March Break, so Auntie Madeleine might get the opportunity to take a child to see Puss In Boots or something. Could be fun.
Trish, I hope you are better soon. they may wind up transfusing you before the next round of chemo, and I hope you do ok with the meds.
Carol: you must have really needed that sleep. I am still not able to nap, but I am waking up better rested than a week ago, so thats a plus

Have a good weekend.
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Old 03-11-2023, 11:18 AM   #13  
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Mad, I eat sweets but if there is another option I don't. Like at a party where cake is served, I will eat other food if available. If I eat cake with no icing I'm ok but icing is too sweet for me. That contradicts my food addiction but if we go to a buffet I will go through a second time while DH heads for the dessert table, more than once. When I entertain I never think to make dessert because I don't like it. DIL picked up on that and now brings dessert!

Last night I was reading a suspense thriller and didn't go to bed til 4:30. I could not put it down. Surprise ending!! As a result I only slept for 2.5 hours. I see a nap or very early bedtime coming. I can't nap at will but if I'm reading or watching tv I just doze off. Its not usually restful sleep unless I actually get into bed. If f I try to nap, no go.

Because of no sleep and late eating I did not weigh this morning. I did very good with food but then realized I took 2 mg of G when I should have taken 1. I ate so I would not get a hypo overnight. I hate when I do that.

____________________________

I'm making chicken tenderloins in Cream of Chicken soup but I make it in a casserole in the oven because DH liked cubed hash browns on top. I had planned on just grilling them but he didn't want that, so now dinner is going to be later than usual. I have to decide on a vegetable.

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Old 03-11-2023, 08:26 PM   #14  
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Dinner was very good but I got potty issues. DH is fine so its just me.

DH received his replacement drivers license already. That was fast but costly. I signed him up for credit monitoring. I will watch this closely for the next 12 months at least. I could probably lock his credit because I don't foresee him applying for any new credit.

I didn't take a nap specifically but I dozed off and missed the end of a Hallmark movie. I'm ready to go to bed now but will wait as long as I can. We turn the clocks ahead tonight. Its funny, but DHs alarm clock changed last night. Apparently the date is set wrong. It did that in the fall, too. I love daylight savings time. I like when it gets warm enough to sit outside and its still light out. but don't like it after the temps go over 80-85.

Thinking of you, Trish.
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Old 03-12-2023, 10:32 AM   #15  
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I got on the scale but when it flashed 183 I jumped off before it registered to the app. If it doesn't register to the app it didn't happen.

I have a short list for Walmart and want to go before it gets crowded.

I slept straight thru til 5:30 and feel good.

_____________________________

I rarely buy fresh cauliflower, I buy frozen. But I want to make baked breaded cauliflower so I need fresh. The ones at Wal-Mart were so small,like baseballs. So we went across the street to Aldi's and they were just as bad. I told the woman next to me "This is enough for me but what is the rest of the family going to eat?". I bought 2. I also bought green peppers to make stuffed peppers but then I realized I bought cabbage for stuffed cabbage. Now what am I going to do? DH is not going to want stuffed peppers and stuffed cabbage in the same week. I'll figure something out.

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