Cyndi, so sorry to hear this but at least now you have some answers. I looked this condition up on Dr. Weil's website and he has some recommendations, one of which is to eliminate dairy. I can't post the link but if you go to his website and do a search it will come up. You have a positive attitude which is going to take you a long way when dealing with anything like this. I am trying to have one re: my mom's Parkinson's.
Cyndi, at least you finally have a diagnosis. I really believe that there is so much that can be done to help by way of nutrition and natural healing and so you are both really blessed to be open minded and willing to try new things. That will be really helpful as you take steps forward to work towards long term remission.
Cyndi, for you, and one for Julie, too. I'm sorry the diagnosis wasn't better. Keep up that positive attitude, though. I believe absolutely that it goes a long way towards remission.