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PHYSICAL CHALLENGES ~ June's Monthly Thread #010

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#16

purpleorc , 06-09-2008 09:14 AM

Good afternoon Ladies

It is a glorious day weather wise and we are topping in at present at 22c and it is suppose to be about the same temperature tomorrow. Dare I tempt fate and say our English summer is truly here. We will probably have terenchal rain tomorrow now I have said that

HOSPITAL VISIT I have been to the MS clinic today and spoke to the MS specialist nurse regarding my condition. Firstly as my symptoms are sensory in nature and not motor or the optical nerve involved steroidal treatment would not be beneficial. If they were motor or my optic nerve was involved then I would be given steroids. If any further symptoms come on board this exacerbation then I am to inform them. They said if I was getting more and more symptoms that come on board then I qualify for another form of treatment to help me along the way. I have to wait to see for up to 18 months to see how much of the nerve damage will restore. This is as nerve damage is a long process to repair itself. If after that time it has not repaired then unfortunately that is what I will be left with. It is unable to repair if it is 40% or more to the nerve(s) it will only repair partially. I did not feel that they would do any in particular but it was nice to talk to somebody. The nurse gave me some useful contact numbers for me to people who I can talk to if necessary for help and advice. I will get a copy of the letter which will be sent to my GP to advice him what to do or what suppose to do in different events.

Well I feel happier now I have seen someone and that my condition has been explained to me fully so I now know what to expect with the nature of the disease and the form of MS that I have. I thought I had primary progressive but in actual fact I have secondary progressive. The course of this type of MS is to slowly deteriorate over time but also along the way have flare or exacerbation of the condition. I do have some paper work to read on the matter just need to do this sometime today.

MEOWEE I understand how the "muggy" weather can effect your health physically. Not much fun when it creates more pain so in turn that slows you down maybe impedes your mobility and worst case scenario you have to resort to more painkillers than normal. Humidity and heat are the big killers for me as they give me chronic fatigue and pain levels increase. I hope the weather today is kinder to you than it was yesterday so that you are feeling a wee bit better on that front.

ROSEBUD I hope that your rhubarb transplants are successful and that you will get a crop of them maybe next year. Nothing like having fresh produce out of your garden.

Yes I understand the difficulties stairs pose the bigger and steeper they are. I was so fortunate that DH sister though of me when she choose stairs for the caravan they choose low and less steep ones for me and I found them not too bad to use which was so kind of her to do that. Fortunately to her house there are some steps up the pathway and I find them a nightmare they firstly are on a slope and the depth of them pose some difficulties for me. There is no way I could manage them on my own so DH assists me up and down them. So good idea to have a ground level cabin or a ramp into it thinking of your difficulties mobility wise.

Yes it is a balancing act of doing things for yourself and realizing doing that bit much has big consequences of injuring his shoulder. The fact is that if you do a little at a time you get more done in the long run as you are not having to nurse for weeks a bad occurrence of the old injury but if you take care of it and do a little at a time you able to so much more in the long run. Though men and my dh included think they are 20 again and are superman reincarnated

I just read what you put to Valdine that you would like to get to a size 18 that is a nice goal to achieve. Not sure if UK 18 is the same as Canadian 18 must go and have a look on the internet. I really hope you get to this goal as you so deserve to after changing to a healthier lifestyle.

When I look at the labels I do not look at everything otherwise I am that confused I look how much is it per serving or per yoghurt for example. I was so surprised by the amount of calories per slice of bread or yoghurt I was munching away on. I have now found healthier options that are less calories but still taste as nice. That was one way I remember now how I tweaked my diet but not really changing the quantity of what we were eating. My healthy eating plan is based loosely on calories and the pyramid system of how much of certain foods you may eat. I wanted something simple and easy I am not into anything complex. I did not want to be a super model I wanted like you to be the healthiest I could be and that I think is so important.

You asked about the banana dessert there are no sweeteners or added sugar which is the beauty of this recipe. All it is for a small dessert for 2 people is 2 bananas, 2 teaspoons of unsweetened cocoa powder and 1 teaspoon of vanilla essence. Blend all ingredients together to form a smooth paste and then freeze but you can eat just as it was and it taste very nice. Not bitter at all the banana sweetens the dish.

off I must go I have to help my DH with a task in the garden for a few minutes. Bye for now
#17

Justwant2Bhealthy , 06-09-2008 11:11 PM

HELLO CHICKIES ~ We had a very cool day today with a few light sprinkles; had to bring my flowers inside ... didn't want to lose any. It's supposed to stay that way for awhile, so it's better to be safe than sorry!

Just did stuff around the house (cleaning); and made low-fat muffins for DH. Stayed on plan well today, so very happy about that. Spent evening on the net. Can't believe how the day whizzed by though.

PURPLE ~ so glad that you finally got some answers about your problem and that it isn't as bad as first thought. And a bonus is finding out that the kind of MS you have is slower too. Sounds like good news all round and a load off your mind.

Those Rhubarb plants just perked right up after we put that black mulch netting around them: worked like a charm. Yes, stairs and I don't go together; they are too much for me. The ones at my dad's cottage only have one very small rail on one side and they are too steep, so I have to put all my weight on one bad leg or one bad knee ... what a choice?

I told DH that we will have to limit the trips there for my leg's sake, or he will have to build some new stairs ~ LOL! I don't think he wants to go there, so we'll just have to limit how many times I go into the cottage (as there is only one way in). I do check the labels on the food items in the store as much as possible becuz it is very surprising how many calories and fat some things have in them. I also measure my portions to make sure that I'm not overdoing it.

HELLO TO MEOWEE and VAL ~ hope you both had a lovely day! Take good care ladies, your friend ROSEBUD
#18

purpleorc , 06-10-2008 04:43 AM

Hi Ladies

It is another beautiful sunny day here in the UK. Yesterday was so warm I even managed to get 3 loads of washing dry outside on the washing line after 4pm which was very surprising. I had a burst of energy from some where yesterday and did the laundry. (Not ironed it though not that enthusiastic ) I washed the bed clothes and remade the bed with my DH help. Prior to that I we mowed our 3 lawns together. When I say together I was chief supervisor and bag opener whilst DH did the hard graft of mowing the lawn. Oh yes I had another important job to keep us supplied with drinks as it was so humid we needed to replenish the lost fluids.

I meant to tell you that the series on the group of young adults ranging from about 16 to 26 who all had physical challenges to their life. They had several deaf members on the team, CP, dyspraxia and amputees to name a few. They all managed the task of getting themselves and other members in the team who needed wheelchair man handling up and down terrain. Their ultimate aim was to cross the Andes and go to I think it was the Pacific Ocean. The only member who did not make it was a man who was in a wheelchair who had an accident and his wheelchair tipped up and threw him out. He was presenting with symptoms of pain in the spinal region and pins and needles. With the doctor examining him it was decided it was too much of a risk that there was a serious spinal injury so he was airlifted off the mountain side. Fortunately it was not a spinal injury but bruising and pulled muscles. One lady in particular stood out to me and really gave many of us with physical challenges something to think about. She had CP which in particular effected her walking to quite a degree. Not only had that she had the added difficulty that she was deaf. No matter how hard it was she never gave in and towards the end she was exhausted and in pain. Due to all the energy she had to put into walking she had lost a considerable amount of weight. Nearly all the members of the team were in awe of her mental attitude to this very difficult challenge for her. I have the impression what every this lady chooses to do in life she will achieve it in her own special way. I wish Julie ( the lady in question) all the best for the future and I salute her determination to achieve.

Today is my day for the weekly shop gosh it seems to come round awfully quick. I also must be on the look out for a father�s day gift as it is getting increasingly near to fathers day. We celebrate father�s day on the same day as Canada and USA but when it comes to mothers day or mothering Sunday as we call it, we have this on a different day to the both of those countries. I think it has something to do with a national religion of C of E (Church of England) and it is really a religious festival. Though of the years it has got more commercial and less religious to the point the many did not know its religious origins. Religion is not so important in people�s lives as say 40 years ago. At that time nearly every one would go to church at least once on a Sunday. Now most people church does not feature in their lives. As I did not go to church as a youngster I am afraid I am one of those people. The only time I go to church now is for christenings, weddings and funerals. Though I do understand people who go to church regularly and how good it is spiritually to them. I think not only that it gives moral support and friendship. It can be an excellent network if you are having difficulties in your life and they can support you through those times. Though someone like me has less of a network and does not have the spiritual support.

ROSEBUD I see you have the same problem as other gardeners in the UK regarding flowers and the delicate balance of not losing them. What kills them here is the frost which can come really anytime up to the end of May then usually you are frost free for a few months. It is then safe to put out in the garden. It is quite popular to have bedding plants in the UK but you have to water regularly otherwise you will lose them.

I have the same issue regarding stairs me and them do not mix. I have had several occasions where I have fallen virtually top to bottom. Which has frightened me a lot and now I am extremely weary. I have no issue though going up the stairs it is the coming down the stairs my brain does not comprehend the beginning and end of the stairs. Apparently it is the damage on my brain that deals with perspective and spatial awareness. Your choice is what we call Obsons choice it means you have no real choice regarding the stairs. It is such pities that there not lower stairs or better still a ramp somewhere into the cottage. One of the reasons I do not stop really at mum and dad�s home is they have stairs and no downstairs WC. So I invite them to stay with me when ever possible so I do not have to face the difficulty.

Yes I have to result to weighing certain things that I eat otherwise I tend to put way to much. That way I know I am eating a portion rather than a portion and a half or even worse two as I am heavy handed.

Must shake a leg and get the washing up done from breakfast before I go out shopping. Take care ladies and will drop by again tomorrow time willing.
#19

Justwant2Bhealthy , 06-10-2008 05:09 PM

Well, I guess we are officially in our northern version of Spring: we have had rain all day. So just stayed in today and did catch-up on some things I wanted to get done. I'm glad I brought my flowers in last night as the temps went down to 42 F, but it didn't look like there was any frost.

PURPLE ~ Your post really made me laugh today, becuz it sounds so much like DH and I. Seems we have the same job(s) ... I am the chief bottle washer, Janitorial Quality Control Officer and resident Sanitation Engineer; the Head Chef and lead busgirl; the Shift-Fore(wo)man; the Budget Planner and Finance Director; the Main-Floor Manager and Departmental Supervisor; the yard surveyor and grounds-keeper's boss; and the final Piece de la Resistance ~ the beau Courtier de la Coeur!

When we go out to the lot; we bring out a stool and NIKO and I supervise DH as he does the landscaping chores ~ LOL! However, like you, I tote that barge and lift that bale ... supplying all the lunches, snacks, and drinks at just the right times. I'm very efficient and that's very much appreciated, believe me!

I agree about the group of persons with Physical Challenges on that expedition to the Andes: they were a brave lot and it was a wonderful idea to give them a chance to see what they can actually do, if they really want to. Sounds like they did very well too!

One day, I was in a local store that has two stories and a long set of stairs to the bottom floor (the steps are well apart and easier to climb). I felt good and brave that day and went down them no problem, looked around a bit then started to come up. That was the hard part ~ it took me a while and people were passing me on all sides, but one lady stopped and smiled, then said to me 'Just goes to show, the saying is true ... where there's a will, there's a way!' And we both laughed, and I said 'yes, it may just take me a while longer than others that's all!'

Well, I don't take on stairs like that all the time, just now and then when I feel good and my legs aren't acting up. I find the morning is best for me, as by afternoon, they start to swell; and at certain times of month as well.

About church, that is very true what you are saying ~ I don't go to church all the time, just when I feel up to it. Actually, DH goes more than me becuz his church is just down the street a couple of minutes away (we can see it from our place); I would go there myself except they don't speak English, but I have visited there a few times (like at Christmas).

We go to a couple of churches in town, when I feel good, but I have noticed that they all have different times now, so it's kinda hard to get used to. I used to get up really early, then changed to being a night-owl like I was when I was a teen. Now, I am trying to go back to that becuz so many churches have early services; and I prefer the traditional 11 am or 7:00 pm evening services like they used to have many, many moons ago ...

I think churches have to make sure that they stay relevant to the times and be aware of their parishioners' needs. Life is so fast now and people really do need each other. I love going and singing traditionals hymns, but it is getting hard to find places that are similar to my upbringing.

I did go to church from the time I was a baby until early teens; then we moved to the country and stopped going. I started going on my own again when I was nineteen years old. I take my spiritual life very seriously becuz I find it has helped me so much in so many ways, I just wish there were more places to choose from. One of my sisters said recently that she loves going to church, but hates all the politics, and I so agree with that; sadly, some places let it ruin the atmosphere and enjoyment of their church.

HELLO TO VAL & MEOWEE ~ Hope you ladies are having a great week!

ANYWAYS, it's time for me to get dinner on; we are having pork steaks with rice, veggies, and salad. Had a good day overall; hope you ladies all did too! Take good care, your friend ROSEBUD
#20

valpal23 , 06-10-2008 10:22 PM

Thanks again for the celebration about my big milestone ladies I 'celebrated' by painting a second coat on my basement... boy was that a mistake! I spent TWO HOURS painting (which is nothing right?) It took me two days of napping/waking up drained before I had energy again *rolls eyes* but I'm relativly happy with the basement now

Purple I'm glad the hospital visit went okay. Information is good -- but it also requires some processing and acceptance. It's just not so easy to go 'oh okay, well that's where I am at then'... you sound like you are doing very well though, mentally. I'm assuming you've been on the steroids before right? I've only taken them orally but they really crank up my appetite.

I met with my neurologist last week actually by teleconference... and he told me that the interferon I inject isnt the reason I'm doing so well now.. he thinks it's the weight loss. He still wanted to double my dose.. which I flat out rejected... but after doing some research I am reconsidering... people at the higher dose seem to have something like 5% less progression... so I think I will eventually go up, even if it is not till my next annual neuro visit.

I used to go to church as a younger person too... ha ha.. a really young person! (ok.. so up till last summer) I even went to a christian university... after I was diagnosed with MS I found I couldnt really accept my diagnosis with the current faith system so I dont attend anymore either.. but I still have a lot of good friends who do. I dont think I could really accept the cycle of grief with my christian friends telling me their opinion about why I had MS.

The Andes group sounds amazing! It would be such an accomplishment! But dont kid yourself either... losing as much weight as you have is a big deal too!

Rosebud You are smart not to get caught up with pounds and just focus on sizes. I have had real struggle connecting my happiness with the number on the scale. There are actually a lot more clothing stores availble to you once you get down to an 18 too - it is a good goal What has been suprising to me is that even when there were weeks or months that I couldnt exercise.. as long as I keep tight control on what I ate I would still lose weight. I know you will be successful

hi meowee. Hope you are staying cool in NS. The ocean has got to help

keep on keepin on all.
#21

meowee , 06-11-2008 03:59 PM

Goodness where is everybody today . . .
#22

Justwant2Bhealthy , 06-11-2008 05:15 PM

HI MEOWEE ~ we have a smaller gang here, just three main regular posters right now. Other members meandered away over time, but we do get visitors now and then. I know there are lots of people with obstacles in this site, but they are busy and post in other forums too (which we understand). Even though we are a small group, we support each other well, and somebody posts at least once every day.

Thanks for dropping by and taking the time to querie as I know you have a lot of places to look after at this site ~ I see you everywhere; LOL! But that's a good thing for us ... Hope you are having a great day. I came in earlier to read the posts, then if I am busy (like today), I come back later and type in my post.

VALDINE (VAL) works full-time, so she mostly comes in at night or the weekends. PURPLE comes in most days if she feels well or isn't off on a trip with her DH, which is a part of his job so she often goes with him. I come in here most days unless I'm sick, too busy, or not home. So now you have the general idea of how this thread goes.

We have cool weather here today; started with rain this morning and now the sun is out. I have some sauce on the stove with meatballs simmering in it for dinner which we'll have with some kind of pasta, and I'll have some cucumbers and a bit of salad with mine (DH won't eat salad).

Had a wee accident on my table today; set one of my plants on my oak table and it's protective container had a leak in it, unbeknowned to us, so we have a big water spot on our table. DH was upset, but we'll just have to sand it down and refinish it sometime. I kinda expected this would happen; as it has happened before and likely will again. I told him now he has a project for next winter. My protective two layers of vinyl tablecloths didn't do their job either ~ it seems they had some holes that we couldn't see with our eyeballs, but then our eyesights aren't too good these days ~ that's why we both where glasses ~ LOL!

VALDINE ~ Wowie ... good for you getting all that painting done all by yourself: I used to do that too when I was young, but now you are gonna have to rest up a bit to recover from it all. I knew you could do it and I am glad you are pleased with it.

You know, VAL .. I think that both you and PURPLE have had a lot to deal with from your MS diagnosis' and dealing with the effects and changes it has made in your lives. You both have had to make some big decisions regarding your health: I admire you both very much, and think that you are very brave souls!!!

Yes, I chose the size 18 goal for the exact reason you mentioned. It also helps me not to focus on every single fluctuation of pounds. We have a very touchy digital scale which DH now uses and says that it can't make up its mind how much he weighs. He says he stepped on it three times one day within seconds and it showed three different weights ~ hah, I knew there was something wrong with it. Now I know why it was on sale!!!

Anyways, I will keep measuring myself (at beginning of July) and so forth as that gives me a boost too. I am gonna work on consistency this year to see if that helps me more. Still tweakin' the plan ... I know that with my leg problem, it may take me longer, but I really want this to last for the rest of my life, so I'm not that concerned right now about how fast it comes off. I really appreciate the encouragement, VAL!

ABOUT CHURCH SYSTEM ~ I'm sorry that you didn't get the support you needed and deserved from the church when you found out you had MS. Sadly, the church is run by people and as human beings, we are all flawed. So that is why I prefer to cling to my faith in GOD on a more personal level (through His Son, JESUS, who loved and cared so much for sick people that it was a major part of His ministry on earth as you know). I consort with other believers daily in my family and through the net or TV (I just love THE HOUR OF POWER: my fave); and I try to make friendships with those who show their beliefs in a more practical and loving way ... that is, in how they live and talk each day.

HEY PURPLE ~ hope you are having a smash-up day today over there in the UK! VAL is right: I'm sure you'll have to take some time to digest all the news and info from your latest hospital visit. And as I shared with her, I think you both are doing fabulously in every way!

Well, better go check on that dinner (DH just came in); take good care ladies, your friend ROSEBUD
#23

meowee , 06-12-2008 09:01 AM

Good Morning . . .

Hope everybody is getting a great weather day . . . We are half sun - half cloud at the moment and the high is only supposed to be in the upper 60's. Should actually be a good day for the weekly afternoon of shopping with my buddy LouLou. Always fun, but boy oh boy do my knees and ankles ever complain after four or five hours of mall-crawling.

Yes ROSEBUD . . . we do seem to frequent a lot of the same places, don't we.

Anyway . . . later, gang . . .
#24

purpleorc , 06-12-2008 11:54 AM

Hi Ladies

I am afraid this will be short and sweet today and I will leave answering posts till Saturday when I have more time.

Today I never have heaps of time as I go for my oxygen therapy so it is busy, busy, busy . Yesterday never had time to come on as we did a trip to deliver bean bags a big delivery of 150. This was a nice one as 12 miles of the journey was in stunning countryside. We went past Woburn Abbey the stately home and safari park. I could see in the ground that there were a huge amount of rhododendrons out. They were absolutely awash with flowers and these vibrant colours of reds and pinks. Pity I could not see them properly due to the wall that surround the home. Mind you the wall had been built many years ago due to the craftsmanship in it and the style.

Thanks to you all for posting whilst I have been MIA. I may not have any time tomorrow as I am going over to Mum and Dad's tomorrow for the day. I am a lucky bunny I am also going out Saturday night to friends for a meal. So two days in a row that I relieved from head chef duties. Though I will become a head bottle washer it is the least I can do for a meal. I think on Saturday the plan is I think to have chicken in red wine. For the life of me I can not spell the French word for it. Shameful I know seeing as I passed my French exams with flying colours. Though with the opportunity to use it now it has been come more and more limited. I did not have to write a lot in French either it was based on verbal and understanding of the language.

Bye for now Ladies catch up with you soon
#25

Justwant2Bhealthy , 06-12-2008 08:53 PM

HELLO CHICKIES ~ we had a nice sunny day til this afternoon, and then the clouds rolled in but we only had a light sprinkle. Glad I brought my flowers in last night, as the temps went down to 0c (or freezing point)

DH and I watch the temps on a daily basis becuz of our gardening. It was so lovely this morning, that I decided to do some more planting. I planted the early crops of green and yellow snap beans today. In a week or so, we'll plant some more; becuz we are so far north we only have a short season, so we scatter plant over the month of June. In late May, I planted some cool crops of leaf lettuce, spinach, radishes, romaine, and onion sets including spanish, table, and multipliers which are bunches for salads.

MEOWEE ~ yes, we have some similar issues and interests too. I've been doing some research on the net for the VOLUMETRICS; I really like the concept: it's very similar to what I have been trying to achieve on my own. That is ... feeling full on low-cal, high-volume whole foods. Hope you had a fun day shopping with your friend.

HEY PURPLE ~ I figured you were away on another trip; sounds like it was amazing too. Today, I made your banana-chocolate frozen dessert (or sherbert as we call it here); and I'm having it for my snack ... oh, I just love it ... very nutritious and so yummy. You are right, it doesn't need any sweetener in it at all. How clever! Thanks so much for that idea ...

Hope you had a good session, and that you have a great day with your Mom & Dad. Yes, you are a lucky bunny to get so many invites in one week; have fun with your friends too. We will be getting lots of company soon: first my Dad and Step-mother will be arriving any day now; then my next sister and her hubby at the end of June; and then if everything goes OK, in July, the youngest sister and her family are coming from out west (sadly, right now BIL's father is very ill and may pass very soon so that may put a damper and/or delay on their holidays this year). Poor thing, she has been planning on this holiday for so long; and we all haven't seen her in years.

You know, I took five years of french in school, but the emphasis was on reading and writing it; but to be useful in our country, we needed to speak and pronounce it (as in conversational french). That would have made it easier for me to understand what people here are saying, as we have a very large French population base in our area.

HEY VAL ~ just one more day and your work-week is over ... TGIF!!! Hope you are having a good one! Is your apartment all ready to rent yet? Did you find something to put down on the floor? Some kind of medium-dark colored tile would be easy to lay down (you could do it yourself), and easier for your tenants to clean; then they could just toss down a throw rug if they wanted one. Our tiles are white and I would much rather have a darker color that doesn't show scuffs and such so easily. Just an idea ...

Take good care ladies, from your friend ROSEBUD
#26

purpleorc , 06-13-2008 04:33 AM

Hi Ladies

Another flying visit I am afraid can not wait till tomorrow to be able to reply properly to your posts. At the minute I am typing on here as I have my breakfast coffee. So multitasking though I must remember to take my morning medication whilst I am on here.

We have to leave for mum and dad's a wee bit early as I have to pick my prescription from the doctors. I then have got to take it to a pharmacy somewhere for it to be dispensed. There will be a lot to do for the pharmacist today with my prescription as it my month for getting virtually everything on it. So I will end up coming away with a carrier bag full of pills and potions rather embarrassing

Today looks greys and overcast but I am not sure whether rain is suppose to show its face today. I do hope not as I would like to have a little walk at mums. Mum lives in a very flat county (shire) which does not have any mountains or hills. Years gone by there where many windmills due to the fact nothing broke the biting wind. Has you may have guess the area is today used as farming whether arable or cattle of some sort.

Yesterday I made that chocolate banana pudding which is sugar free. I made a double batch so I actually got something in the freezer So looking forward to trying the frozen one. Glad you tried the recipe Rosebud and liked it. Nice one to have in your repertoire that is sugarfree.

I really want to anwser your posts but I know I do not have the time on my side today but I will have either Saturday or Sunday for that matter. Must hop, skip and jump in to action. Big hello to Rosebud, Valdine and Meowee So bye for now ladies and take care
#27

meowee , 06-13-2008 09:28 AM

Good Morning . . .

Well . . . it's Friday the 13th, but the sun is shining around here; so things aren't too bad yet.

Have a great moving and shaking day, gang . . .
#28

Justwant2Bhealthy , 06-13-2008 11:09 PM

HELLO CHICKIES ~ hope you're all havin' a great Friday night! We started out with a bit of rain which turned to sun which stayed until sunset and it was a pretty one tonight too. We went for a drive after dinner to pick up a Father's Day card for my Dad, who is up with my step-mother for a holiday.

Tomorrow DH and Dad are gonna put the rest of the shingles on his cottage; be nice to have them on, so it will be a long day for both of them. Hope the weather holds out for them; but man, the skitters were bad tonight. Had to run for your life tonight ~ LOL!

Today, just did some laundry and put it out on the line; and then baked some fruit & bran muffins for DH (his favorite snack besides toasted peanut butter sandwiches). Now, we are just takin' it easy for the night, and tomorrow I will be bachin' it while babysitting NIKO for the day ...

MEOWEE ~ glad you are finally getting some really nice weather out there ...

HELLO TO PURPLE & VAL ~ hope you had a lovely Friday!

Take good care ladies, your friend ROSEBUD
#29

purpleorc , 06-14-2008 06:22 AM

Hello fellow chicks and good morning

Hooray it is Saturday I have time on my side to answer your posts not flying by as I have had to the past two days. It has been nice to catch up with your posts which I have read just before I have posted. It is suppose to be a sunny day here and temperatures up to 17c. I think the weather this June in the UK does not know what to do. One day it is cold and another it is really warm. The trouble is knowing how to dress one day you want your summer clothes on and the next your winter woollies.

Tonight well later around 5pm we are going to friends for tea so looking forward to that. It will be nice to catch up and also see how the man of the house got on at an interview he was at yesterday. He has applied for a job at the MS centre were I go to. The centre has only 2 paid members the manager and this post the rest of the staff are voluntary.

ROSEBUD .... I am glad that I made you laugh at the fact I am head supervisor and chief bag opener etc. I know since my condition has changed over the years my roles have changed and I am no longer able to do the physical things or that which requires strength. I have nearly always been the head cook it was only when I was working did I train my dh to cook otherwise food would have been so late when I was on a late shift.

I know that our various heath challenges slows us down. Though I often think of the fable the hare and the tortoise racing. So it is not how quick you do something as life is not a race. For me it is an achievement to do something that was a little difficult it does not matter than I was slower than everyone else. Over the years you become a little hardened to the comments and stares. The one I struggle most with is I have a disabled sticker that goes in your car that allows you to park in disabled parking bays and park in areas that no other motorist is allowed to. I often get what I deem as the evil stare by other people and even some other disabled users. If what is worse the muttering under their breath but I can hear "she should be parked here". I suppose many do not see anything visually wrong with me so presume I am using someone else's. I do not get it quite so much now as I do have a funny gait and I walk with a dragged leg. So something is more visual now than it was at the beginning of the course of this disease.

I have attended church quite regularly through my late teens and twenties. I love the singing of the hymns and meeting of the congregation. I was starting to find what was difficult to handle was I was not fitting in what believes of the church of that to live together you should be married. I think what really put a stop to my church days which was when somebody said that I was beginning punished by God for my "living in sin" when I got MS. People can be so ignorant of the causes of illnesses etc. At the time I was very fragile with being newly diagnosed.

I am feeling much happier since my visit to the hospital, it takes time to digest things and take them on board. Knowing you best not dwell on things I can not change like the changes or strange sensations my body is going through. Since I came to that conclusion it has made life a whole lot happier place

VALDINE .... Thanks for your kind words regarding my flare with my MS it is very comforting when you are a bit fragile. I have only taken steroids twice in my llife and neither for my MS. The first time was for a rare disease that was in my mouth Lichen planus which is an autoimmune disease that attacks the bodies skin. I unfortunately had it in the mouth so had to do steroidal mouth washouts. They made my food all taste metallic so I lost my appetite some what due to that. The second time I was on steroids was a short term course orally for my eczema that went crazy. My MS has been just a slow deterioration over time but no points in that time that you could say that had cause that. That apparently is the presentation of secondary MS which the clinical picture is slow deterioration with flares in between which can be days, weeks, months or even years apart. (this has been my case years apart)

It is nice to know that your hard work and effort gone into to losing the weight has had a health benefit on your MS. I never thought it would benefit that side of things. I would have understood if he told you less risk of stroke, heart attacks or things of that nature. It has pleased me that maybe I have benefited my condition as well

MEOWEE .... We are a small band of people on this thread which swells occasionally but we all normally post very regularly on here. Val and Rosebud have been such a great support on this post getting me through the bumpy road that weight loss journey can be. I find it is so nice to here others perspective on things but most of all I enjoy the difficult cultures and customs. It is great hearing about how things are celebrated I have learnt so much and different words for that matter for things we have in the UK under a different name.

It is interesting that Friday the 13th is regarded as a superstition over the pond as well as here. I think if I remember right that seeing a black cat is regarded as lucky here but unlucky else where. We regard the white cat as bringing bad luck and you regard seeing the white cat as good luck. With typing in your name it made me think of that superstition with you mentioning Friday the 13th.

Nice to catch up with you all and have the time to answer your posts rather than a flying visit. I really hate doing that and makes me feel rude, though I know you all understand. Till next time ladies have a lovely weekend and look after yourself bye bye
#30

meowee , 06-14-2008 11:18 AM

Hi gang . . .

Our nice weather went away again . . . . . . today is only about 15C/59F and it's raining . . . at least the wind has calmed down.

Don't know about the US, but around here black cats are bad luck unless you own one which is considered good luck . . . . . . never heard the one about white cats being either good or bad.

Funny thing about Canada -- we seem to take about half our cues from UK stuff and the other half from US stuff -- not much is totally our own.

Have a good day . . .

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