Crohn's and Colitis?

[L144S]

Karen, I am so sorry your son is having a flair up.
for me when all else fails I can drink ensure. if you are lactose intolorant there is sustical. but maybe the best right now is a TPN drip. I hope he feels better soon. AND whatever calories he can get in are good calories.

My update is that I seem to not be tolorating the imniosupressant. really too bad because I feel amazing! I truthfully have not felt this good ever, but I have had 2 bad blood tests. the plan is to be off the meds for a week and then go on a minimal dose and retest blood in 3 weeks after that.

I hope if nothng else I have gotten enough to help heal some of the bad stuff and I hope that I can tolorate a low dose...I know there are other drugs and I will cross that bridge when I get to it.

[Karen925]

Howdy,
Great news. DS, sufferer of Crohn's for over a year and IBS for many years, has been off meds for several months in preparation for yesterdays trial meds infusions. They were the next generation of Remicaid. Doc told him he was too healthy, i.e. symptom free, and said to come back in June for further assessment. He has also gained 3 more pounds. This holy season of Easter has a particular sense of gratitude in our home. Rockinrobin, thank you for directing us a year ago.

[L144S]

So happy for you and your son Karen. Continued good health!

[Karen925]

Gratis. Do not know if this is a temporary reprieve or permanent remission. Either way, it is a wonderful place to be.