Hello N&Kmom-
I don't have celiac, but am intolerant to wheat. I never follow my program, which is a big surprise to all who know me (NOT).
Anyway, when I don't follow my wheat-free diet I have some uncomfortable side effects, but nothing life threatening like a celiac person would. Have you looked at celiac.com? That's a great site for info. I know there are other online support groups, one of which mails me a newsletter each month, but I can't remember the name of that one. Google around awhile and you'll find lots of help. Also, for birthday cakes and pancakes and cookies and all that good stuff I am not supposed to have, I highly recommend Pamela's Products baking mix, pancake mix and packaged cookies. Yum for all the sugar that is also making life miserable. It's a difficult adjustment, best of luck to you in taking care of your child.
-Ruby