FRIENDS WITH RA & OA....

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  • What planet is this?
    Only joking....Hi all, this is just a quickie as I only came out of hospital last night after having my facial surgery. I am still very whoosy but had to say hello. They have rebuilt my nose with part of my ear....sorted the 2 other cancers and I have skin grafts and loads of stitches.Havent had time to think about my RA so I suppose thats a bonus. Anyway not loads of pain but lots of discomfort and the first time I have drunk tea and soup through a straw. If I havent lost weight after this then I give up. Your posts Angel with all the graphics have really cheered me up. Thanks! I do hope the rest of you are doing ok and I will be back on soon. Apparently the swelling and bruising hasnt finished coming out yet so not sure what else to come. Catch you in a couple of days.......
  • pam im so sorry i completely forgot how are you ? unless you start liquidising marsbars and aeros and drinking them through your straw your gonna lose weight of course you will pity you have to go through this to do it im thinking of you as i remember how uncomfortable i was after my surgery and it wasnt on my face keep your chin up actually ill rephrase that keep your chin still and welll be hear for you and good luck and feel beytter soon
    kirsty
  • Pam, hope you are recovering from your surgery. Sounds like a doozy!

    Linus, thank you for thinking of me. I'm still here, just sort of quiet right now. In the weeks since I've lost my nephew, I developed (and passed, thank god) a huge kidney stone, and then my dog had cancer surgery. She was just supposed to be spayed, but they found cancer on her ovary and mammary glands.

    My life right now is like a bad country song.

    Angel... I hope you are doing okay with your injections. It's a bit daunting to do them at first, but trust me, you become a real veteran after a while. I do three shots a week between the Enbrel and the Methotrexate. The only place that I have trouble sticking is my tummy. That hurts and honestly, squicks me out a little. So I stick to my thighs.

    Kim
  • Hi Everybody....

    Hope you all had a good weekend.

    Iamgonnadoit....Glad you're back home. I've been praying for you. It must be a very scary situation to be in. Were they able to get everything this time, so you won't have to go back? I hope so. Take care of yourself. Post when you're up to it. Maybe just a quick one, sometimes, to let us know how you're doing...until you're better.

    Kirsty...good to hear from you. Hope you're feeling well today. It's still rainy here, so bones aching. But, I do feel better than a few days ago.

    Kim...the shots aren't too bad. Thanks for the tip about the tummy. I think I'll stay away from there, since I was a little concerned about that area. I'm truly sorry about your nephew. You need some time to grieve...& to take care of yourself. Just check in sometimes....we understand...& care.

    Hello to Rita, & Stirfried....
  • glad everybody is turning out well khewes what ever dont kill us makes us strionger and my goodness woman you must be ready for miss universe glad your just being quiet ive been really worried about you i know how i felt last month when i lost my gran and shed had a very long and happy life i think its the could have beens when its someone young sorry to hear about your other problems i hear passing those kidney stones is like giving birth i wouldnt know had cesearians both times and boy was i glad of the kop outs anyway glad everythings getting better or easier
    kirsty
  • Hi All!!

    I thought I'd pop in and introduce myself...

    I am Angel. A.K.A. Noodles around here @ 3FC. I moderate and I post like crazy. I didn't realize we had a group of people that have arthritis until I started to lurk and saw this post so...here I am!!

    I have RA, OA, and AK, along with PCOS. Ugh...I was a mess for years. My arthritis journey began with me being sick & tired & swollen/sore/achy all of the time...I attributed it to my PCOS and just left it at that. Well, one day back in 1999 I woke up swollen and stiff beyond what a football player looks like, and so I went to the doctors. They did some blood tests and came out and told me..."well, you have arthritis." I said oh ok cool!! I'm ok!! I'll just take tylenol!! The nurse goes, "No, you have ARTHRITIS, and from your counts here it looks to be pretty severe. I am sending you to a Rheumatologist." Ok...now I started to wonder, how bad can arthritises be?? Sheesh. Then I started doing my research...Wow.

    Anyhow, I saw the RH doc and they did all of their other tests and it turned out I had RA, OA, and AK!!! Goodness! My Rh Doc told me "No wonder you haven't felt good in sucha long time...you've been battling 3 different forms of this." Lovely. Anyhow, she started me on Predisone as a jump start and Celebrex & Methotrexate. Well, Predisone sucked!! I had the munchies 24/7 and gained alot of weight in just the 6 weeks I was on it.

    Methotrexate...that's another story. I was on injectable so I gave myself the shot in the stomach 1x a week for 3 years. I lost most of my hair, I gained weight, I was itchy all the time, and somehow I managed to damage my liver from it.

    Celebrex on the other hand has been my life saving drug. That and moving to Arizona. Oregons cold and humidity was making me miserable even with all of the drugs I was on so we decided to finally move to a warmer climate. As hubby reminds me, "Angel, you were SO bad you didn't even get out of bed to get on the computer!" Personally, I think he got tired of cleaning the house by himself. heheehe... Every time I would come to visit my family in Arizona, I would feel sooo much better...It was like I thawed out or something.

    So, we sold the house and moved here in August 2001. In December 2001 I got really sick and wound up in the hospital and that's when they discovered my liver was damaged. They advised me to try to get off of the Methotrexate so I just stopped taking the shots after that and I haven't needed them since! I just take Cele now...I've tried to wean off of that but it ain't happening. When I had my hysterectomy in June 2002, I couldnt take it for a week. Oh boy was I one miserable person to live with at home until I could get the Cele back into my system.

    After my hysterectomy, I started seeing an Endocrinolgist for my PCOS/Insulin Resistant problem and she told me "Angel, either you lose weight or you are going to have to go on insulin shots. For now, we'll put you on metformin (glucophage) pills." Well, being as I had enough of shots with Metho, I took her advice and decided to change my life. That was the end of September 2003, and since then I have lost 55 pounds by a major diet/eating habits change and I started exercising.

    The best part is, I have made my arthritis much more managable than ever before. I am doing things I haven't done in years because I was practically bedridden with arthritis. Not anymore! I still wake up stiff and swollen daily but instead of sulking about it, I go drink my 1st quart of water, eat healthy, take my Cele, and I get a moving. Some days are harder than others (especially when the Arizona Monsoons roll in and we hit that 100% humidity), but I still make myself do something so I can keep everything limber and happy. Oh and I also reversed all liver damage and Mr. Liver is back to his normal self. I thank GOD each and every day that I feel good cause I remember what my life was once like...and I don't want to ever go back there ever again.

    Well, I hope I didn't bore ya all to tears!! I'll be back for sure if that's ok with all of ya.
  • Quote: I developed (and passed, thank god) a huge kidney stone
    My sympathies, Khewes for the things going on with you right now.

    I have had kidney stones. I just had one last month that took me to the E/R. Rotten big/little things they are!! My worse one was in 1992. That pain was THE worse physical pain I have ever felt in my life. Worse than childbirth...worse than getting hit by a car, and just about equal to my tube blowing up inside of me. But at least with the tubal I got knocked out and had surgery. But those stones...ugh... I don't wish a stone on anyone...not even the annoying neighbor down the street.
  • Hi noodles. Welcome to our little corner of 3FC.
    This was my first kidney stone. I did go to the E.R. and yes, it's pain like you can't even imagine. I almost let my 14 year old drive me to the E.R. it was THAT BAD. But the drugs they give you there, they're pretty cool.

    Mine had a little spike on it, and when the urologist saw it he said "Ow, bet that hurt coming out". Uh.. yeah.

    I named him El Diablo. I'm waiting to hear what it was made of. Were yours calcium or uric acid? If it turns out to be uric acid, then I have gout on top of everything else.
    My husband has gouty arthritis in his toes. Great, we can be the gout twins.

    I haven't had too much trouble with the methotrexate since I switched to injectables, although I do itch like crazy at the injection sites, all the damn time.
    So far the hair shedding has been minimal.

    Hope my liver holds up!

  • Noodles!! We're very happy for you to be a part of our little home on the board.

    You've really been through it, Angel. Glad you're doing better. The Methotrexate effects my white blood count....it's already low, so have to really watch it. I itch a lot...have rashes, even. My hair was already thin, but now, thinner. Stay nauseated a lot & makes food taste strange. My DH has to keep an eye on me, or I'll start to throw something out, thinking it's gone bad, & it hasn't. My OA is in my back, mostly from a car accident in '83...put me on disability. My RA started about 2 yrs ago, & spread very fast. I take Remicade treatments every 5 weeks now.

    Khewes....are you feeling better now? Hope so. The girl that does my hair said after she passed a couple of kidney stones this past winter, her Dr put her on a glass of wine each day. She said she hasn't had any trouble, since.

    Well...gotta work today at the station, so need to get off....hope all have a good day.

    Hi to everyone else!

  • My urologist told me to drink Lemonade, but I like the wine cure better.
  • Thanks for the welcome all!!

    You named your stone?? Hmm...if I had to name mine...I think I woulda called it.. PITA!!! for Pain IN THE....!!

    They never told me what mine was back in 1992. I wound up passing it finally after suffering for 2 days. They gave me all sorts of drugs but nothing took the pain away, not even demerol or morophine. Then they go, wow this MUST be a bad one..we gave you powerful painkillers and you still are hurting. Might have to do surgery on you if this keeps up! Haha..that was when I willed it to be passed and prayed my butt off!!

    Metho is one of those drugs where you have to keep an eye on things cause it can change things in a matter of weeks. My blood counts were fine in Sept. 2001, then all of a sudden went wacky in Dec. 2001 and that's when Mr. Liver decided to get sick too. Who woulda thought in 3 months (after being on it for 3 years) that it would of happened? Not me. I had that funny food taste/smell problem too! I didn't like chocolate!! It was like it tasted "metallike". Hubby looked at me like I was nuts but I told him really, I can't explain this!! Heh now I can.

    My arthritis is hereditary. My grandmother had 2 hip replacements by age 45. She wound up spending the rest of her life in a wheelchair. When I got hit by a car in 1990, the Dr. told me that if I developed any form of arthritis, the 1st place I would notice it would be where I was hit. Sure enough those were the bones & joints that started bugging me first. Ahhh the things we go through in life...I tell you I appreciate things alot more now so than before I had arthur....I now take time to smell the roses.

    Have a good day all!
  • Hi all, and welcome Noodles. Noodles your posting sounded so like mine used to. You were diagnosed with RA roughly the same time as me and you were on exactly the same drugs as me except my mtx wasnt injections. We can only have it orally over here and I got such major gastric problems that I took myself off it last December. I am only taking Celebrex atm too, twice a day. I have to visit my Rheumy next month to see if hes now going to put me on another demard or what. He wanted me to have a break for 3 months to get the mtx out of my system I think, well next month will be 6 months. MY weight really got out of control too so now I am desperately trying to something about it. The only problem is I had surgery last week to remove 3 cancers from my face which involved reconstruction of my nose and skin grafts and seeing as I am feeling a little sorry for myself I have been eating all sorts of bits I shouldnt really eat. I am now scared to get on the scales til I am feeling better. Up until last Wednesday I had lost 31 lbs since January. I am normally quite positive and motivated but this week I have gone awol with it all. On Friday I see the Consultant who did my surgery so after that I will get back on track I am sure.
    For those of you who know my history I apologise for repeating it here but you know how it is when somebody new joins us.
    Angel, well done for injecting yourself and you khewes, that takes courage. I do hope you both feel better for it. As for kidney stones, my brother had them in the summer and was rushed into A and E and I thought he was gonna die he was in so much pain, so I can feel for you both there Noodles and Khewes. Right thats all for now. I have gone on a bit but blame it on the anesthetic, which reminds me I am still so tired. I will catch you all soon. TTFN.......
  • hi all just a quick post to sore to sit for long my arent ancestors got a lot to answer for my lot gave me my oa and spinal probs and ibs and theres diabeteslurkin along with angina and liver probs thats one of my main reasons for dieting so i can try and avoid the rest of them but what the hey hope everyone isnt too bad and im off to lie down speak later
    kirsty
  • Just a quickie.......Oh Linus I meant to give you a mention and somehow didnt......so sorry. Thanks so much for sending me good wishes in an earlier post when i was feeling down. I do hope that you are not feeling grotty for too long. This weather down here is driving me nuts, is it the same in Bonnie Scotland. Rain rain and more rain. Anyway hope you feel better after your nap. catch you soon. Hope everyone else is feeling Aok
    today.TTFN

  • Hi everybody....
    Can't stay long, but so glad we're hearing from all of you. I sure hope everyone is feeling as good as you can today. I'm fair, I guess. Might as well not complain...no one around here (at home) listens much anyway. I think they're all just used to it. I don't EVER get used to it!

    Iamgonndoit....hope you're recovering well. Get that rest & don't worry about your eating right now. If you gain a couple of pounds, you can lose it later.

    I can't eat chocolate either! Or Ice cream...& it was my favorite!

    I'll post more later....take care.