Rosebud I am sorry that the meds have not worked well for your husband. That has to be very disappointing and frustrating. I had heard about the vitamin B-12 connection with this disease and I know my SM does have my dad take that. I haven't talked to her about his meds at all. I don't feel welcome to do so, but I suppose that is just my fear and she probably would like the help in fact did ask me to help research some info on a drug, which I did some, but could not find definite answers, so never got back with her. It seemed to me she might have read something about side effects that I couldn't find.
I can certainly see the concern as your husbands memory seems to be slipping more. Let us know if things improve after stopping the drugs. I DO know that being on a drug of some kind DOES help to slow the progress of the disease which is why I pushed for my dad to see a specialist. If the progress can be slowed, that gives some extra time of better memory, then it is probably worth it. I don't even know if my dad went up on his dosage or not...if he did not, then the amount he is taking won't even help, it was just a low sample dose to see how he tolerated it.
I am glad you brought it up, I have been so consumed my my life, I have kind of forgotten to help with my dad's.
so for an update on me: I have been doing the Metabolism Miracle Diet for the past 2 weeks. I feel a bit better and have lost 2 pounds. I believe it is the diet I need to help my health, so am willing to hang in there for now.
I did decide to get a event recorder heart monitor deal from the Dr. They called aug 10 and had one available. SO I have the thing here. I can remove it and shower, etc. I press a button when I feel my heart things going on. I did have a weird thing happen....the lady in charge wasn't there when I got mine and the lady who did it, got some things wrong. She set it up to go off automatically and record an "event" that the monitor picks up on its own. Now, I had the thing go off last week when I laid down to go to bed...yep, by itself. I had been praying just then that if there was something to find out, God would make it happen before I had to give this thing back. It went off, by itself....right then when I was just laying there doing nothing else. Later my husband told me he too had been praying at that time.
I called and talked to the lady in charge and we downloaded the 2 events on the machine. She reprogrammed it not to go off again by itself... I was SO excited they had gotten something abnormal, well not that I'm abnormal, but that I now don't feel stupid for going in and spending the money and seeing a cardiologist.
I had a bad night night last week with my heart feeling crazy alot. I had a hard time deciding which strange feeling to record on the heart monitor because there is a limit of 7 and I had used 2 during that day. I ended up not using the last one because I was saving it for the really obvious symptom that never came. I called and downloaded it and the lady wouldn't tell me anything...she isn't supposed to say what shows up but just said "be sure to press the button any time you feel something isn't right with your heart"........ obviously something showed up because before she did tell me everything was normal. so now I'm freaked out slightly, but I figured if they don't have me come in right away, it must not be too serious. I see the dr for a follow up on Tuesday.
I am trusting the Lord for this. If they want more tests, we could be in a world of financial hurt.
