FRIENDS WITH RA & OA...#9

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  • HOPE EVERYONE FINDS US!

    IF YOU DIDN'T READ ALL THE POSTS ON THE OTHER THREAD, HERE'S THE LINK: http://www.3fatchicks.com/forum/show...d=1#post664541

    Joanne...stay safe....looks like a bad one! Our meteorologist stays on the air a lot, these days...giving live updates on Hurricane Frances. He has a sister who is a nurse, right in it's path. She refused to leave the patients. Hope all will pray for her. Joanne, we're praying for you.

    Hello, Happy Canuk...I'm feeling much better, thank you.

    All have a good evening.

  • I've had a better day today, I'll keep those of you in Francis's path in my prayers.


  • Just thought it was about time I said hi to you all. I have had a dreadful couple of weeks with just about the worst flare I have ever had. Anyway I went and saw my Rheumy on Tuesday and by the time I had finished in her office we were both swimming out. I was so upset cos I hurt so much and thats the first time I have been like that since I was diagnosed. She was very sweet though and said it was good to have a cry and get it out my system. I did feel a bit of an idiot tho. Anyway she said my muscles were in a worse state than my joints this time. She thinks the pain in my left leg, in my calf and behind my knee could be a bakers cyst. She said they can be very painful and can be mistaken for DVT by patients. Well of course she must have been reading my mind. I am no hypochondriac but when youre low you imagine all sorts. Anyway I had bloodwork done as usual and she gave me another quick fix steroid jab to help me whilst my new Demard got into my system. She decided to prescribe Leflunomide (Arava) instead of the Mtx injections.I was kind of grateful for that what with all the blood work monitoring you get to feel like a pin cushion. I start the new drug next week cos the script has to come from my GP and it takes a week to get the paperwork through apparently. Right enough of this chat.......

    I have just been catching up on all the posts whilst having a cuppa and opening my birthday and anniversary cards. Catching up on all your chat I left school in !966, got married first time round at 16, and my Daughter was born in 1967 and my eldest son in 1968. So I have been a mum forever it seems. Anyway today I am the great age of 54 and I am celebrating my 16 th anniversary in my second marriage. I am also thinking where on earth have all the years gone. So Scary!!!!

    I have managed to lose another 2 pound so thats 46 in total now. I must admit I have been slacking on my healthy eating for a few weeks and comfort eating alot. Plus I have had my son and my new DIL staying on and off for a couple of weeks. Well in and out for a couple of weeks really. They had four days in Ireland last week and two days in Belgium this week whilst hes waiting to be posted to his next basketball team.

    Goodness I have gone on a bit today. Best go and leave space for somebody else. It was great to read the posts and see how you all are doing I have really missed them but now I am back! Catch you all soon. Byeee!

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    HOPE YOU HAVE A GREAT DAY!!


    So sorry you had such a bad flare up. I've just recovered from one, myself...so can really sympathize. It really does help to have a sympathethical Dr. What is the Leflumonide? Does it work as well as the Mtx? I hate taking it...I don't mind the shot, it's the side effects. I have everyone of them. In fact, the mouth ulcers were getting so bad, I couldn't stand my dentures. ( I have uppers) I was taken off folic acid & put on Vecalourin (spellling) I take it 24 hrs after my Mtx shot. I take the first tonight. Sure hope it works.
    I hope you you get to feeling better real soon. Good to hear from you...& LOVE the graphics!

  • HI! Everyone Just wanted to say HI! sorry to hear that some of you are having flare ups hope the new meds will work fast for you Joanne my prayers are with you at this time as been watching the news on the hurricanehope you are safe from all that is going to happenI have been having problems with my calvesthought maybe it was too much on my legsas all my jobs require me to be on my feet so will have to keep a close watch on it but no swelling or redness so farbut my knee is always swelled so am use to that well enough of my grumbling you ladies have a great Friday Rita


  • That was so nice of you!!! Charlotte the new Demard I am going on is called Leflunomide, its trade name is Arava. You take it every day orally. It does have grott side effects like all the other drugs, it just depends whether you get them or not. Anyway its all trial and error and hope with this horrid desease.

    Rita I too have been having trouble with my calves but also with the back of my knee. I wrote about it in my last post. So painful. I hope yours clears up quickly.
    This was just a quickie so I will be back soon. TTFN...
  • Hey There
    Good Morning Everyone... I guess the most we will get from the storm is rain if we are lucky.. This is just a normal Saturday in my house. Doing some laundry and I chased the hubby out in the yard to mow . He has sit in the rocker for 3 days watching the weather. It has become boring...All the shelters are open and taking what people who have not decided to go back home... Who knows what will happen at this stage. That thing could get stronger...
    Bye for now...Joanne
  • Good morning Ladies hope everyone is having a great weekendJoanne hope by now that the storm is over for you and not much rain or damage just got in from a walk as it is in Ohio today and I want to enjoy it as have to work tonight and monday so by tuesday who knowsIam sorry to hear that you are having some flare ups hope by now that you are feeling better with the new med as for the pain in the leg it must be the season for it as 2 co workers have it also as forthe pain I cant tell as asI have constant pain in my knee besides both calves now so taking Aleeve besides my celebrex dont have any outward signs soooo just hopeing it goes away soon wellhopeing the rest of you ladies will have a great sunday and be pain free Rita
  • Hi. I'm Kelley from OKC. I'm new but lurked off and on for months. I'm 31/married and have Lupus and Rheumatoid Arthritis. Having a hard time as well with weather and weight.
  • Hello Everybody.. We have a few more hours of the storm left. And another one behind it. It will be here about next weekend!!!My yard is a mess. So far no real damage. ,Just the messy yard.. Moss ,leaves .
    Welcome okidoll... Talk to us. We are here for each other...Joanne


  • Hi there Okidoll! Welcome! You have come to the right place. We all have aches and pains on here due to RA or OA or the like. We all have our our good days and bad days and we all like to vent our anger at times on having such a grotty desease or for the way we are treated. The other side of the coin is that we all chat about our lives, good points and bad, we are all in different parts of the World or Country therefore usually have points of interest for the others to read and chuckle about or relate to and give support. Bucks us up if we are a bit down or when we feel a bit lonely........SO WELCOME!!!!!! Always good to hear from someone else.
    Well everybody else, still not feeling that great. I still have company staying, being my Son and DIL. Dont know how long theyre going to be here but the novelty has worn off a touch when youre having to fight to get near your pc I had to get up really early to get on here this morning. The weather has taken a turn and instead of rain every day like we were getting for three weeks we have heatwaves. I am not kidding you this weather has taken leave of its senses. Its now toooooo hot to do anything. Kills my legs....I know moan moan moan ......I am going but I will be back soon hopefully....Everyone have a great day!

  • okidoll!!


    So glad you joined us! Sorry you have this dreadful RA & Lupus, but, we're here for you, girl. My daughter & family just arrived home Saturday night from Lawton, Ok. My SIL was in the army for 10 yrs, & was stationed at Fort Sill the last 6 yrs. He served 1 yr in Irag, & decided to do what we've all been begging him to do...got out of the service, this time. He was afraid he would leave my daughter & two grandchildren without a husband & father. He had planned on retiring from the Army, as his dad did, but that's what love does for you. His dad was in the reserves, & called to Irag & left the same day that Chris came home....Valentine's Day. He didn't get to see him. But, his dad is home for a month, so he's with him now for a couple of days. Didn't mean to get started on all that, but, you're from OKC!
    Tell us more about yourself!

    Iamgonnadoit....You're finding such cute graphics!! Sorry you're not feeling so well. Hope you're better soon. I'm glad my Remicade "kicked in". My step-dad went into the nursing home with my mother...very suddenly. My sister & I have really been busy. We have their apartment, & a storage unit to go through, sort out, & clean up! We've really been working the last couple of days. I come home more exhausted than I expect to be. Once I site down, my energy is totally gone. My DH has been very understanding, so far, about meals being cooked, etc, but don't know how long that's going to hold up. I know what you mean about the company. You love them....but....

    Joanne...I'm praying for you through the storms. Do be careful. It's headed our way, slowly, looks like. It should hit our daughter's place in Thomasville, first. Just N of Mobile.

    Rita...So good to hear from you. I have a lot of cramps in my calves & feet. If I walk much, at all, my feet will cramp. Hope you're feeling well.

    Hello to everyone else...Have a great Labor Day!!

  • GOOD Afternoon ladies hope everyone is having a great monday Joanne glad that you are safe will be enough work with just the yard clean up glad it wasnt worse for youWelcome Okidoll sorry to hear that you have the health problems hopefully we can be a help to you as I am sure you can be to us well ladies need to get some laundry done so hubby can have some clean underware so ladies have a great evening at least when I did wake up today it was in Ohio just waiting for it to get me motivated Rita
  • More about moi -- Okidoll
    I'm Kelley. 31 married 9 1/2 years w/ no kiddies --- two spoiled fat kitties. It seems like all four of us in this house are battling the bulge. I'm an at home gal so I have the time to exercise but what I want and what I can do are at two different ends. I'm sure you all know what I'm talking about. Nobody understands this weakness we have. I like to call it a "death fatigue", because you literally think this must be what it is like to be dying. Add in the pain, and you can feel you joints and body burning. Sucks Rump!

    I'm so glad to find you all. I've been having real trouble finding the strength to exercise. It is either I'm too stiff, in too much pain or too weak to walk. My husband bought me a treadmill, and I used it religiously until almost 1 year ago. I'm very worried, because I know two things: 1.) the extra weight will increase and 2). it is important for me to remain mobile and moving. I feel really trapped and frustrated. Cooking takes so much out of me. My husband has great patience with me, but I can tell he gets frustrated w/ the house being a mess and dinner. My big problem is portion control. Kinda feels like I'm at the foot of a mountain, and I know the climb up is going to be impossible.

    Whenever I talk to someone who has just been diagnosed w/ Lupus or RA or any other auto-immune disease I try to tell them that no matter what eating extra food does not give you extra energy. I fell into that trap when the weakness hits you. You think if you eat it will give you energy, and of course it doesn't. When you are just trying to find out what is wrong with you, or you are just trying to survive your weight seems like the last thing to worry about. Many of us, myself included, have had to take steroids (I only take them now once a year or so w/ a bad flare). Those play a number on us. So many factors in dealing w/ chronic illness that most diet professionals don't understand.

    Funny thing is that my mother also has Lupus and RA, but she struggles to keep weight on her. She is just so tiny now. She tries very hard to keep her weight up, but she doesn't even weigh 100 pds (she's about 5'1").

    As you can tell, I'm very wordy. Thank you for the welcome..

    Kelley/ Okidoll in OKC
  • Yep!! I can tell you have RA & Lupus okidoll!! At such a young age, too! You know, it really would help, I believe, if other people understood. I'm not a lazy person, & it bothers me to not do the things I want to do, when I want to do them. I may need to clean house one day...but, so fatigued that I can't. Then, another day, I might have a little energy....but, while I DO, I need to go do other things, while I'm able to get out of the house. What meds are you on? I am now on Methotrexate (one shot per week), & Remicade treatments(5-6 weeks apart).
    I know what you mean about the eating. When I get weak, I still have the false impression that eating will help. Just puts on weight! I lost my weight last summer.(around 47 lbs) I didn't do any exercising, of course. I ate mostly fruit in the morning & lunch...then, for supper I ate a regular meal, only out of a saucer...very slowly. I drunk a lot of water & gave myself one free meal a week. We go out to eat most Friday nights, so I gave myself that meal. During the week I could think about it, & plan where I wanted to go & what I would order. The weight came off 1-3 lbs a week during the summer. I've maintained until recently. I took two vacations & gained 10 lbs back! Nothing for me to do on vacation, but eat. (excuses, excuses!! ) I've managed to lose 3 lbs of it, so far. Good luck.

    Hi Rita...I've let my laundry get too far behind. My step-dad went into the nursing home, suddenly, so my sister & I are having to clear out his apt. & storage building. Not a lot of time, & we're neither one really physically able to do it. No one else, though. He's in the same room with my mother. I hope it helps her. The Alziemer's has really been bringing her downhill, lately. The day he went in, she just sat there looking straight ahead. He's been going daily & staying with her, & she would laugh & hold his hand. She can't really talk anymore. Maybe it's just a bad week for her. Maybe I'll catch up on the laundry today.
    Hope you're feeling well.

    Seems most of us have slowed down with the posting. May be the holidays. Hope no one is too sick. I'm praying for all of you.

    *I can no long say I have a SIL in the army!! After 10 yrs of service, & finally getting back safely from Iraq, he & daughter & our two grands are safely back home!!!!!! God is Good!