Good afternoon Ladies
Well it is another quick pit stop here at 3fc as I am going out in under an hour and as per usual I am not ready. I think I am paying for my 2 days of being a busy bee I am absolutely shattered. So I have taken a nap this afternoon to recuperate.
This morning I read an article suggested by somebody at an MS site I frequent. The title of the thread was how to do you describe the fatigue or tiredness you get in MS. But the article was somebody describing to her friends what it was to live with Lupus. She did it by saying they had x number of spoons. For every thing you do you lose a spoon. When it was getting later in the day sometime because you were low on spoons you had to make decisions on what to do that would use the least up. She was saying you never forget because if you use up today quote of spoons and then push yourself to do more or like borrow from the next day. It would have a knock on effect that the next day you were so limited to what you could do. I found this so poignant it was describing me to a tee.
MO :~ Yes waiting is the worse position to be in. You constantly ruminate about the whole thing get yourself worked up. Then into the process you don't sleep. It is a vicious circle which is so hard to break no matter what anyone says to you it doesn't make an iota of difference. I am a born worrier and my DH says if I have nothing to worry about I create things to worry about. But my best wishes for the Friday and wishing you a speedy recovery.
VALPAL :~ So sorry that you are having trouble with your medication I hope your MS nurse in Winnipeg is about to sort the matter out. You really could do without the hassle. Will be thinking of you and hope that it gets swiftly resolved.
Yes I have to take naps in the afternoon some times as there is absolutely no way I can carry on without them. Like yourself I don't do mornings. I use to be up with the lark only a few hours sleep needed but that is definately a thing of the past. I am not normally up before 9am but it is nearer 10am more often than not. I need at least 10 hours sleep to be any use to anyone. I think it is a combination of the MS and the drug regime I am on. I am on high doses of carbamazapine and increasing gabapentin gradually to cope with the pain.
I had to give up work do to the tiredness. But also the fact I could no longer restrain a disturbed patient. When a patient is disturbed they may need restraining for their own safety and they are very strong under these circumstance. I had loss of strength down one side. I was afraid that my weakness would injure a member of the team. I could not live with that knowledge so it was time to give up. Quite frankly I was so shattered in one way I was so glad no longer to put myself through a grueling day.
Right I really must scoot. Now only half hour till I leave. So I best get my skates on.
bye see you soon xxx

HI LADIES ~ we had a beautiful day today; just stayed home and did cooking; made a batch of bran muffins and a large pot of homemade veggie soup base and put up 16 containers in the freezer; so handy and yummy.
ROSEBUD
The forecast calls for frost this week. Was today managable enough to get to the site?
I think many people with medical and psychiatric problems have a degree of isolation regarding their condition and frequent do not have people whom they can confide in regarding problems. No one can truly walk in your shoes unless they have the same problem. I am not saying friends and family are not supportive but they do not truly know what it is like. Sometimes you hide things regarding your condition in order to protect loved ones. ( I have been there and done that )
