Wow i just found this thread. It amazes me how many posts there are stating there dr states this has nothing to do with weight gain. I remember when my periods stopped and i remember how the weight started going up and up. Now 50lbs heavier (4yrs later) i want it off. I just started my cabergoline about 4 weeks ago, and i agree.. if you miss one my face seems to swell up. It took months of argueing with my OBGYN about not doing BC and that there was something wrong before any testing was ordered. If i had stayed on the BC i would still get periods and would have never found out i had this.
I've had a baby prior to all of this (he's 12) and i only went up to 176 lbs! I cant stand the way i look, and have a closet full of cute clothes that i want back in! The only reason i'm not 200+ is that i was in a bootcamp 3 days a week 5am for 4 months prior to my dianog. Also i've been married now for 1.5 years and my husband has no kids. I fear
1. I cant have any
2. If i do i'll blow up so large I'd to depressed to even wanta do anything.
I'm thinking of just pushing for surgery.. which if it's not a secreating tumor is the only way anyway. I'm tired of this wait and see... test.. wait.. it's too much money and too much time. An MRI was $1800 (thank god we have good insurance) to get one every 4 months to just "see" how things are going.. or even every 6 is crazy.
Since mine is macro (over 15cm) So i guess that's why they are atempting to shrink it first. Either way, I've waited too long. My endo is great, but the low libido and me not feeling "sexy" is not helping my marriage.
I have a question.. does anyone know anyone who has NOT had to take drugs for the rest of their lives?
sorry for the rant.... but it does make me feel better.
I've had to argue and take matters in my own hands with my drs. It took weeks to get referrels and appointments, lots of copay and nothing had been done .. my nero dr. took 3 weeks to get a referrel together.. by that time i had gone to another dr and gotten them to approve it.. and i have a PPO!
ok ok i'm done.. sorry guys.