Okay... I thought I'd introduce myself, but I've rewritten this message 6 times now, because it sounds like I'm whining, and that wasn't what I wanted my first impression to be.
I was never skinny, but I was never really huge either, not until I hurt my ankle and couldn't walk or swim anymore. I gained a lot of weight after that happened, and couldn't lose any of it.
I'd never been able to lose weight, no matter what diet I was on. Turns out that was just a symptom of the whole mystery... When I moved, I chose a new doctor, and the first thing she asked me was if I'd ever heard of PCOS. I hadn't, and 3 endocrinologists later, it was clear that they hadn't heard of it either... Or they had, but they figured if I would just join Jenny Craig I'd do fine. The 4th turned out to be a reproductive endo, and she actually listened to me... but then she decided she wasn't convinced that was what I had. I had the symptoms, but didn't respond to the medical treatment at all. So she referred me to a 5th, who also wasn't convinced... in fact, the 5th one just threw up his hands in confusion and said he didn't know what to do.
I'm hoping that when I see the reproductive endo this week she doesn't do the same thing... I would hate to have to start all over again. Especially since she was the first one that listened to me...
Meanwhile, not only have I developed insulin resistance, I produce TOO MUCH insulin as well. So they tried glucophage... both the XR and the regular. I was sick for the entire 8 weeks I was on the medication... I couldn't eat anything without being sick. The really disgusting part was that I wasn't eating, and what I did eat didn't stay with me, and I *gained weight*
! They took me off of it, but said that Avandia was out of the question because along with the other whacky body chemicals include elevated liver enzymes. The Avandia can also apparently cause water retention in the legs, which also lets it out for me: I have nerve damage in my left ankle, so that already swells everyday, and definitely doesn't need any help!
And this seemed like a good place to try, because at least one of my friends became very angry with me when I reacted poorly to her suggestion that I try the "salt water diet" that Oprah swears by...
I figure somebody has to understand what this is, and at least will listen without getting mad.