I am so sick of this!!
I just got back from the hospital where I was expecting to have 2 large painful abscesses drained and packed. They did the 2 abscesses and then found 4 more so I had 6 drained at once, no break in between. I was a total mess, crying and shaking at the end of it.
I am so sick of all this. I tried every therapy suggested, even though I was afraid of the mega side effects. I gave each therapy tons of time to work. I had major surgery which will affect my life forever. I did everything , tried everything and am just as sick as ever.
Now I have to go back tomorrow to get them re-packed and you should see the sticky bandges he put on, I am going to scream like I'm on fire ..there are some in very sensitive areas. Ugh. And, he wouldn't give me any pain meds. And, my gastro is MIA until tuesday- as it is, I only have about 10 left.
I will do anything to get better. I would sell my house. I would give everything I own. Take any supplement. Change my diet. Inject myself (BTDT), take the devil in pill form (BTDT again) to make this go away.
Nothing is working and all I want is to get better!
It frustrates me to no end to hear someone say, oh yeah my such and such 8 times removed has crohn's... and since they have had what like 1 flare in thier life, no abcess, no fistula, no arthrits, etc they know EXACTLY what its like to be me?? And then the co-worker who said, my friend has crohn's- yours must be pretty mild b/c if it was severe you'd not be fat.
Seriously??
My crohn's is in my colon; most people's are in the small intestine. Theirs affects their absorption of nutrients. Mine does not. My gastro and colo-rectal surgeon said I had the worst case of crohn's they'd ever seen. But, I feel so misunderstood by others.
sometimes this just really sucks.
If you made it thru my sob story, I'm so sorry. I'm crying even now- just really needed to vent.