PLEASE READ THIS!! Especially if you are having sudden and intense headaches yourself.
Sorry for dredging up this threat after such a long period of time of inactivity, but I did want to shed some light on this, and what was actually going on with my headaches.
After my last post, my headaches returned. About a week and a half after the last date of my last post on this thread the pain was so unbearable that I checked myself into the emergency room.
Initially they diagnosed me with basic migraines and prescribed me some medicine and told me to me to buy over the counter migraine medicine if they started occurring again. The day after, as my husband and I were on the way to pick up my pain prescription, my right eye began to deviate. Over the following two days, the iris and pupil of my right eye were all the way in the right corner even though my left eye was staring straight ahead. The eye that deviated also happened to be the eye on the side of my head where my headaches were effecting. The meds helped the pain but the headaches were still recurring and the loss of control of my eye, and the accompanying double-vision, were worrying enough that I returned to the ER after a few days.
At this time, a neurologist was called and I was checked into the hospital for a night to be monitored. The next day, I was referred to an eye specialist. The eye specialist told me there wasn't anything wrong with the eye itself and that the deviation, paired with the headaches and migraine-like symptoms (nausea and vomiting) could be caused by a disorder known as psuedotumor cerebri, and that I would need to be examined by the neurologist again.
When I visited the neurologist he said it was most likely pseudotumor cerebri, which is when there is too much intracranial pressure on the brain and optic nerves caused by too much spinal fluid being produced or my body not absorbing the fluid quickly enough. However, only a spinal tap could verify it, to check my spinal pressure, and that, if there was too much pressure, they would remove some during the spinal tap.
Now, why am I saying all of this, when it seems otherwise unrelated to the purpose of this forum?
The ER doctor, the eye doctor, and the neurologists all agreed that what my most contributing factor for my PTC was my weight. I am clinically classified as obese, with a BMI over 30% and more than 100lbs overweight. I was told that losing weight would probably lessen the headaches, and help with appropriate fluid production/absorbing, but that it was never 100% if my symptoms or disorder would improve since its surfacing, even if I did so.
I waited a really long time before going to the doctors for these headaches, so I'm hoping that anyone else who is overweight or obese and starts experiencing excruciating headaches won't wait as long as I did.
I did have a spinal tap, though, and my ICP (intracranial pressure) was more than DOUBLE the normal amount. I was put on a medicine known as acetazolomide, or diamox, and the generic of it is very expensive.
I had to spend a lot of time in bed after my spinal tap, and even had to return to the hospital a third time to have a blood patch put in my spine to equalize pressure because they took too much fluid and I couldn't stand up without my neck and shoulders hurting, and couldn't even keep water down for 3 days. I ended up losing 12lbs in 3 days, and was very dehydrated when I was admitted to the hospital. That is not a goal or victory for me, because the weight was lost in an unhealthy way.
So I beg you, if you are having headaches suddenly, and you are overweight or otherwise, don't write it off as detox like I did, and get checked out. If you catch it earlier you will probably have a higher chance of recovery.
I have been on bedrest off and on for the last 5 months, and I am just now starting to work on getting healthy and fit again. Sorry for my inactivity.
