ebb&flow-
Thank you so much for your response. Bless you and your precious little boy. My heart hurts for you because I can imagine the kind of internal struggle you must go through on a daily basis when trying to decide the best way to proceed. I have been very blessed that none of my children have had any serious illnesses. I am sure that I could hold it together on the outside, but inside I'd be a total mess with worrying.
You are absolutely right about my family's concern. I feel like a total a** for jumping to conclusions with what my husband said and causing him to feel worse. He has legitimate reasons to be worried. I am sure that there are all kinds of scenarios running through his head of what could happen. I need to be more sensitive to the idea that my husband and sons are genuinely worried about dear old mom.
I feel, at this point, that there is nothing stopping me. I have not felt this alive in many years. I was actually training to run the White Rock Marathon in 1999 when I was told that I had Parkinson's disease. After I heard those words a few times from a few different doctors, it's as if the world stopped. I didn't even realize it at the time, but I stopped living. It was as if I slammed on the breaks. My life was so hopeless, in my own mind, that I might as well have been dead. I wasn't doing anything except going through the motions of taking care of my young family. I was sleeping any time I possibly could and eating in between to squash the pain.
My son that took the pictures on the swings is responsible for getting me running again. We were at the park, walking, and he said, "mom, when was the last time you ran?" He was a Marine and has a huge booming voice and personality. He said, "come on, let's try it, just for a few seconds". Well, I ran that day, and have been running almost every day since. Something clicked back on in my mind that day and now I am very fearful to have anything happen that might turn the switch back off. I have to talk to myself a lot about what will happen when dbs batteries need replacing, or if the doctor says I shouldn't try to run the marathon.
I have to be kinder to myself also, and I really am working on that. I have to figure out that everything I've done so far is a victory and not put so much pressure on myself. It's strange because before when I had so much internal conflict, I would eat chocolate and tons of carbs to push back the pain. Now, I have to deal with it and it can feel like a scab that keeps getting picked over and over. This journey has been wonderful and very scary at times. I wouldn't change it for the world. Thank you again everyone for your wonderful comments.
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