*** This is a short book ***
I saw my new surgeon for the second time today. Here's where I stand. Still draining profusely into the ostomy bag. The good news about that is... the umbilical stump is still 'attached' which is apparently what keeps the drainage site open so they don't want to mess with that tissue at all and that means no deep removal of necrotic tissue because every layer they remove leaves that much less tissue connecting to that stump. He says if they debride (remove) the necrotic tissue the stump will let go, the hole will close up and I have no more drainage site. Then bigger problems. The main risk factor is whether the tissue on the inside will heal he said, and he told me this could take literally MONTHS to resolve. He said there's not a thing to do but let it take its own time. Can't rush it. Can't change it. It's also become evident the original surgeon didn't sew me back together straight. My midline, is no longer midline so my belly is being pulled off to the left, pulls my pubic area with it and I end up with a swelling the size of a baseball in by groin by the end of the day because tissue is being pulled so hard to the side. He left WAY more tissue on the right side of my abdomen so I feel like a total freak. Now that I can finally SEE my genitals, I'm all lopsided.
I'm also not able to have a bowel movement and not even passing gass without senna (Senakot would be the name brand but really its senna leaf). So every night I have to take this now just so I can have a BM. Its like the peristalsis has stopped in my intestines.
My legs are having problems with swelling, as are my feet obviously. That is potentially very threatening too and he want's me to change my surgical garment and said I should have had one down to my knees from the get go. Of course, I haven't been able to even wear the one I got after the surgery because my belly swelled up so much with the drainage before I 'busted a gut' lol. hahaha. K. Those are the medical issues in a nutshell.
Legally, I sent a three page letter to the first surgeon cancelling my follow-up appointment with him and explaining WHY in detail. Blatantly. Cc'd the Insurance Co. Medical Services Committee Chair. Well all of a sudden doesn't he become oh so interested in my care. The emails and phone calls all but pleading with me to talk to them so they could 'explain' were coming to me faster than I could respond. When I made it clear trust had already been broken and the time to show concern was when I contacted them the first week and told them I'd spent 5 days in Emergency and that I wasn't willing to just have a little 'kiss and make up' chat on the phone the next move they made was to contact my new surgeon. Without my consent of course. And wrote me saying doctor A had spoken to doctor B and was satisfied with doctor B supervising my care on their behalf but wanted to remain primary care and very actively involved. So then I got REALLY pissed off because 1) I didn't authorize them contacting him, 2) They were nowhere to be found when the new doctor who is very, very senior in terms of respect in the field agreed to take on my care, and 3) This now made me wonder if doctor B was really going to stay focused on my care or would now be worried about protecting his buddy since doctor A claimed he knew 'Peter' ***** well.
So I contacted the new doctor's office and stated these concerns and they reassured me that doctor B was his own man, that they had been given the impression I was going BACK to doctor A (by doctor A of course), that they had agreed to take on my care and that meant putting MY needs first and from their perspective if doctor A is pissing his pants with worry right now that's his own problem.
So when I saw doctor B today, I was watching very carefully for his reaction to me and he was still quite, quite clear about the fact that I'm a mess but all we can do now is focus on helping me to heal and stay ok.
K, last but not least. I decided that rather than writing doctor A with my comments about how I didn't recall authorizing him contacting doctor A, or saying anything further about ANYTHING, it was time to talk to a lawyer. I put out feelers for doctors with an interest in medical malpractice and in the process got a surprise email from a founding partner in a well respected older law firm asking me three questions. What is the doctor's name. What procedure was done. Do I have clear medical evidence.
So I forwarded him a copy of the letter I wrote to doctor A, as well as a copy of the subsequent emails and decided at the least it would be interesting to hear what he would say. He contacted me an hour later and said he believed my case should be reviewed by their senior litigation partner and had taken the liberty to pass on my information and asked the senior partner to contact me directly.
So I wait to hear from him hopefully tomorrow.
End of chapter.



what can I say except stay strong...