I'm not sure what I should do with my calorie allowances as normally I split it over 3 meals and 2 snacks, but if I am only awake for lunch and dinner then do I cram a whole day's allowance into 2 meals and one snack or should I make a pro rata reduction because I've missed part of the day? I can't stay awake, it's not that simple, even if I go out somewhere I can sleep - I can fall asleep in the hospital waiting room, in a shop, eating my tea, anywhere, so I have to have these sleeps when I need them.
Anyone else with this sort of illness, maybe ME, FMS, EDS, etc. can tell me what they do with food allowances on these days?


