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-   -   Paranoid about my health? (https://www.3fatchicks.com/forum/general-chatter/219783-paranoid-about-my-health.html)

goal4agirl 12-16-2010 08:03 PM

I'm so sorry your going through all this :hug:. I am not a medical person...but we do have to take charge of our medical needs or they will just fall through the cracks.
I agree with the other posters that you need to find a new doctor. One that will look you in the face and talk to you like a human being and with some respect.
I would take pad and pen with me that I had written down every symptom I had, medications I take mgs. and amount daily, test that have been performed with a negative- so that the new doctor will know that potential illness was ruled out, your diet and exercise plan and explain everything in detail to him or her about what is going on with you.
Sometimes when I go to the doctor I can't remember to tell or ask everything- so the pad goes with me.
Ask the doctor questions- could it be MS, my thyroid, carotid artery blockage, etc.? Ask if a complete blood workup be done.
I googled Potassium deficiency symptoms (I have this sometimes)
because some of the symptoms match- as do lots of other things. But if a blood workup is done it could be checked.
Please keep us posted how you are doing- I hope you feel better soon!

bonnnie 12-17-2010 02:59 AM

Kaplods: I talked to my mom again and she did have a symptom before the blind eye - in the same eye, she would see super bright lights - which was a problem with the optic nerve and went undiagnosed.

And another event that led up to the blind eye happened when she was hiking in the woods with my father. She had a short bout of paralysis and her mind could no longer tell her one leg what to do. So, my father carried her back to the car and they went to the emergency room right away.

As my mother has always been involved with support groups for the disease - I've met so many people that had a symptom, were diagnosed, and then their lives turned upside down... But there are typically two kinds of MS - one is less regressive than the other. I also met two women that were in wheelchairs and then were literally cured from having a baby.

Other things that people with MS have trouble with: Extreme Heat. They literally cannot go outside on hot summer days, their bodies don't react properly/ the cooling mechanism doesn't work. That will literally zap ALL of their energy.

The most obvious symptom is the mind/body disconnect - insofar as the nerve system doesn't function (due to the damaged myelin sheaths around the nerves). So, they lose control of their body parts.

So, print sized tear, I don't think I'm helping. I am really inclined to find differences between your systems and MS symptoms - I don't know why. I guess I am hoping you don't have it.

I have only met 2 people that complain of the extreme fatigue and tiredness that you have: one was diagnosed with lupus, and the other with chronic fatigue (sort of).

kaplods 12-17-2010 03:00 PM

Odds are it isn't MS, it could be, but there are many, many more things things it could be. You can't know based on the symptoms. Even your doctor can't know by just the symptoms, and any doctor that claims (s)he can is full of crap.

Mine turned out to be fibromyalgia, but it could have been a dozen different things, including MS, Lyme disease, brain tumor, narcolepsy, early-onset Alzheimer's, clinical depression, thyroid disfunction, rheumatoid arthritis, lupus, myofascial pain syndrome or other muscle disease, bacterial or viral disease such as mono, autoimmune diseases (I did test positive for autoimmune disease, but not strongly enough to say it's the primary cause of my symptoms).

You don't have to have diagnostic tests for absolutely every possibility, but you and your doctor will be on a trial and error mission to discover what the problem is and how to treat it. He or she will start out with a tentative diagnosis, begin treatment and evaluate results. You've got to be an active participant and help the doctor evaluate the results. Is the treatment helping? Are symptoms improving or getting worse? Are there new symptoms?

If the treatment isn't helping, don't let a doctor brush you off. Ask for the next test (you probably won't know what the next text should be - this is why you need to have a doctor you feel you can trust). If that treatment isn't helping, push some more. Try to be very specific about your symptoms, even if it seems unrelated - mention it.

Use a symptom and food diary, so you've got specific facts to take to the doctor. You and he may find patterns that neither of you would have thought to look for. Wheat and sugar seem to be significant symptom triggers. If I eat a lot of sugar (even from natural sources like fruit), I feel like crap. I would have never guessed that (isn't sugar supposed to give you energy, I thought. My doctor said "it does, for a short burst, and then you crash).

Bottom line, you need a doctor you can trust, even when you disagree. A doctor you feel is paying attention and actually listening and taking into account what you say.


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