Anyone else living with nephrogenic diabetes insipidus?

  • it's a condition that runs in my family... luckily, i only inherited a mild case. basically, my body doesn't properly retain water, so i'm in a constant state of dehydration. quite literally. i drink at LEAST a gallon of water/day, but my lips and mouth are still dry, and so are my skin and hair. i drink very little soda, if any... not a big fan of salt...

    anyway, maybe i'm grasping at straws, here, but i'm just recently wondering if this condition could also contribute to my weight problem. i've always been overweight, and i know that one of the huge staples of any diet plan/nutrition plan, is to make sure you get plenty of water, and that's always a problem for me. it seems like no matter what i do, i can't seem to lose much weight. if i DO manage to lose it, it comes right back in no time at all. i watch what i eat, and i've even had friends comment on the fact that i eat REALLY healthy, have a fairly active lifestyle, and don't eat much, but never lose weight.

    so i guess i'm just looking to see if anyone else has the same condition, and wondering what your thoughts are, on all of this...?
  • Could be you aren't eating enough - post a day's menu and maybe we can be of more help. When you don't eat enough, your metabolism slows down. Have you asked your doctor or done any research on the net?
  • i think you might be right... my doctor referred me to a dietician earlier in the year, and i was following her advice. her recommendation was to stick to about 1400 - 1600 calories/day.

    but that wasn't really working... the other day, i found calorie-count.com, and based on my age, frame size, height, weight, average hours of sleep/night, and activity levels, they suggested about 2,100 calories/day for healthy weight loss. so i've been following that, and so far it seems to be working (and i'm feeling a LOT less restricted!)...

    i'm still curious about the water thing, though. next time i go to the doctor, i'm going to bring it up, and request that they do the necessary testing to OFFICIALLY diagnose it, and start me on the diuretics used to treat it. at least then, maybe i won't be so dehydrated all the time.

    i have tried to do some research on the 'net, but it's such a rare condition that there isn't much information that i can get my hands on... well, there ARE some medical articles, but i don't even begin to understand what they say. *lol*