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Hi Chrily & Joanne....
I know what you mean about the RA, Chrily. There are so many people that just don't understand. I don't want sympathy, I just want them to know that it is a disease that I have to fight everyday. I get so tired of hearing "you don't look sick"! I'm glad of that.........but, you know what I mean. I called my Rheumatologist office today & told the nurse what my Neurologist said. She said that my Dr wouldn't be there until Monday. (There's a different Dr each day for the treatments....sometimes I have mine, sometimes another one.) She said to bring the MRI film then, & leave them for him to go over. He may call & have me do other testing, or wait until the 21st to talk to me. At least, I feel like I'm doing SOMETHING! Yes, the RA scares me. More than anything I've ever been through. It takes control of me, instead of me controlling it, & I don't like that. WOW...excitement in your neighborhood! I hope no one was injured. Thanks for the prayers, my friend. Get some rest. Joanne...I didn't know you had been through so much. I'm sorry. You deserve that beautiful beach of yours. Enjoy it to the fullest! You, do, however, need to go light on that candy! I'm one to talk, I can't even stay on my diet, because of my sweet tooth! Take care of yourself. Love to all, Charlotte |
OH come on you two..I'm the one who works in a candy warehouse. If I can stay away from the sweet stuff, you can too. Just do not dangle any choc. covered cinn. bears or peach rings in my face. :lol:
Charlotte-I'm glad that I get to see the same doctor everytime I go in. All and all, my RA is pretty stable right now. When I got my last blood work back, my inflammation was low and my c-reactive protein test was finally in the normal range. I was .6 this time instead of 8.0. I haven't even taken Bextra for a long time now. I'm just living on methotrexate and the occasional advil. The splint really help my wrists but that is pretty much the only place I have any problems with anymore. Okay...off to bed for me. I have to work tomorrow and the morning comes a wee bit too fast for me. I am just not a morning type I guess. Have a good night ladies.... ~chris |
Hey There
Angel-Chrily- I guess I am the oldest/youngest one here. :lol: You know the saying'what doesn't kill you makes you stronger'?Well my life could be made into a book. The things we keep in the shadows sometimes are the things that make us stronger..I have a sister that hides her head in the sand. She wants to believe that things were always perfect in her life and everyone elses life.Sadly life is not like that. I have always tried to be realistic and face things and deal with it..
When the chocolate is put in my face,I'll eat it. :lol: :lol: No control!!I'll just give up something else.. Yes ,I like the beach. I am one of those people who likes to be alone there. My sister ,Mary, Has decided lately to be there at the same time. I don't want to hurt her feelings,as she has a lot of issues that may never be resolved.She just talks too much about past life and I really don't want to hear it..I guess I have to go deaf.. Bye...Joanne |
Ok everybody, cheer up!! It's almost spring & even almost Easter!
Well, Joanne...You may have to go to the beach with your sister, & then make another trip alone. :^: Unless, she's the type you can sit down with and explain wanting some "alone" time. Bad situation to be in. I didn't realize you had a sister living that close to you. You've probably said something about it before, but, you know me & my "sometimers". :o We have a beautiful day here, today. I hope there are several more like it. In fact, this whole week has been nice. Hi Chrily...I forgot you worked in a candy warehouse!!!!!!!! How in the world do you control yourself???????? I'd have to put masking tape over my mouth. :lol: It's ok with me that I see a different Dr at times. I know all of them & like all of them. It's mostly that way because sometimes our Dr doesn't have patients coming in that day, or works in a different town that day. A Dr has to be nearby our room while getting the treatment, though, in case complications arise. They come in for a general "check up" & talk. So, if I have any new problems, as I did with my thumb, I trust all of them with it. I've made it sound like a dozen, but there's only four. :D Glad you've got your RA under control. Wish your wrists would stop bothering you so much. My RA is all over. It's a constant battle, but not giving up, yet! Well, gotta go. TGIF!! Everyone have a good weekend. Got a few people missing.......hope all are ok. |
Hey There
Angel- I have two sisters in this town.. Eleni who values her alone times the same as I do and Mary who has been living in N.Y for 30 years and is trying to establish a close relationship her way..I don't want to hurt her feelings and drive her away ,but, there are issues.She seems to always think we leave her out. Not so. We are just homebodies. So I guess I am going to tell her I will meet her at the beach. It is a 3 mile walk from my house. I will be increasing my walking time and that can only be for the good.I want to lose another few pounds anyway.
I will be 72 years young next week(10th). I am going to keep it quiet. I gave Eleni a picture to put on the site. She is good at that..There is so much I need to learn..I hope there will be a lot of years left for me to do the things I want to. Hello Chrily-When chocolate is brought into the house ,I have no desire to stay away from it!!!.. My hubby loves cocoa puffs.. Did you know they make a great dry snack.Just a handfull now and then.I will eat bakers chocolate..That is how bad I am..He eats pie ,cookies. etc and complains about his weight. I told him last week how many cal. were in Whoppers.. I don't touch any of that.I weighted in at Tops at 145 this week. I want to lose about 5 more.. It looks like we are the only three here lately.. Let's not let this site get lost.. I would really miss you...Got to get to the laundry..Bye till later....Joanne |
Hello everybody. I am still alive, although for awhile I wondered. The flu got hold of me and I just wasn't able to be on the computer. Today is really the first day I feel like I can play again. So my time was limited.
I haven't read all the threads yet, but I do hope things are going well for everybody. I will read and be back later. I just read Chris, that you work in a candy warehouse! I suppose it would be like working in a bakery. Sooner or later you get tired of it all. I worked at Sears candy counter years and years ago. Would go from school and eat Cashews. I actually grew to hate them. Thank goodness I am NOT a chocolate lover. I can take it or leave it, but I love sweets, especially caramel. When the fatigue takes over, I crave sugar and would almost kill to get it. Hopefully, this will now be under control. Joanne - keep up the walking. How are the knees doing now? I have had a bad 2 months, now I am into month 3 and praying that it will be better. I want so badly to start walking, but just haven't been able to. Hope everybody has a good day. |
Joanne-You sound like my ex-sil. She is a big chocoholic too. She was craving chocolate so bad one day and the only thing she could find was that Magic Shell chocolate syrup for ice cream (the stuff that makes it look like a dipped cone). She tipped her head back and just poured it down her throat. I'm a chocolate craver but I can control it most of the time with sugar-free hot cocoa or sugar-free fudgsicles.
Okay Hey Happy Chanuk! I'm glad you're feeling good enough to come out and "play" with us. I had a touch of the flu last week. I know I was really run down and feeling like I was ran over by a freight train. I'm happy you're back. Hi Charlotte-How's your day? I'm hoping not too bad considering your situation with your spine. We are so sunny here today. After the housecleaning is done...the kids are going to play outside! I'm going to enforce that one. Let them run off some of the excess energy they have. Okay...back to the cleaning. Talk to you soon. ~Have a Great Pain Free Day!!! ~chris |
Hey There
Happy- Glad to hear you are feeling better..Since my last injection way last year the knees have been doing ok. If I overdo they will hurt but nothing compared to what I was having. I walked 4 miles today. I am going to try and keep up that pace.
Hello everybody...Joanne |
Just a quick hello today.......got lots to do. Sent my MRI films to Rheumy this morning by DH. Hope he doesn't call me with problems. :^: Happy Canuk....so glad to hear from you! :D I was just about to pm you, to see if you were ok. I'm so sorry you've been sick. Hope you're a lot better real soon.http://img.photobucket.com/albums/v1...r/highfive.gif Chris....been thinking about you. I hope life is calming down for you a bit. How's mom? We've been having having problems at the nursing home with care for my mom. Some little things, some not so little. I don't want to be a pest, but I want her taken care of right. She stays scared a lot (far advanced with Alziemer's & doesnt' know what noises, etc are) We DO know a new woman sharing her room was ill with her, making her upset & cry. Our mom is quiet. The other lady didn't like it that mom's tv was to be kept on one channel at all times. (the one that I'm on, for the music...it calms her. Also, if a car wreck is on or shoot-em-up...she thinks she's involved, so we have to be careful). The tv belongs to mom & we pay the cable bill. My sister went Saturday & found a large fan sitting on the tv, the tv was unplugged, & something had been spilled around & under it...real thick & syrupy! Mother was laying in bed clutching her pillow & shaking. (don't know how long she'd been that way.) She was staring at the fan on the tv. She has cataracts, so probably thought it was someone standing over her! My sister went down to the nurse's station. Sunday, the other lady was moved to another room. :) It's something all the time. Sorry......suppose I needed to vent. :^: The nurses all seem to love her & pet her a lot. It's just that sometimes we think some of the younger ones just do what they can get by with. Hi Joanne....I remember Eleni...wasn't sure she lived in your town, though. I hope everything gets worked out with your other sister. My younger sister & I are very close. We married brothers & live close. Our older sister lives only about 1 1/2 hrs from us. She is jealous of our relationship, but never comes around. Maybe once a year, she'll come see mom. We used to go see her, but she never came to see us....so we stopped. We love her, just not close. How are you going to celebrate your birthday??? I do hope you get that picture put on the site. I'd love to see you. Gotta go get ready to go to the station. Hope all have a good day. |
Hey There
Angel.. Our sister Mary met us at a nice restuarant for lunch today. She gave both Eleni and I a nice Birthday gift.. It was really pleasant.I met her later at the beach for a walk. Now she tells me she wants to meet at my house and walk out to the beach!Eleni's B/D is tomorrow(8th) and mine is Thrus. As I said it will be quiet. Just my hubby and I after Tops. We have always made big things out of those special days. It is time for us to slow down. I told my son that Holidays were not any fun for me anymore. Too much work..
You know, you Have to stay on top of the staff in the N/H. Check everytime you go. I used to look to see if they were wet, and if they were turned as they should be,so there would not be any bed sores. My mother-in-law was in the home where I worked. I was charge nurse there. The staff knew I would check every patient.Needless to say ,IF YOU SEE SOMETHING,YELL!!They will only give as much care as you demand. I'll remind Eleni about the picture..Otherwise send me a PM and I will try to mail one to you.. Bye for now Hello Chrilly and everyone..Joanne |
Here is a picture of Joanne when she became a KOP
It won't let me put it in 2 places. Go to the Fibromyalgia #136 thread to see picture of Joanne |
Thank you Eleni!!!!!!!!
What a beautiful lady you are, Joanne!!!!!! You sure don't look your age. ;) You must be only maintaining your weight, also. Good job!!!!! :D Eleni.....we'd like to see you, also. Can't be satisfied, can we? :lol: Charlotte |
Joanne- I have to agree with Charlotte. YOU DO NOT LOOK YOUR AGE! You look great!
Charlotte-OH my gosh! I didn't realize that Alzheimer's could affect a person that way. I had no idea she doesn't know what some noises are and that she can be agitated. I just want to cry thinking of her being scared and shaking. I can remember my great-grandmother being in the nursing home. There was some nurses that were just awful. She was paralyzed on both sides from 2 strokes and my grandma had gone in to see her and noticed that they hadn't been turning her. She had the worst bed sores. After that, my grandmother watched for everything. They finally moved her to a different wing where there was a better staff. Some of them just seem to want to collect a paycheck and not be there for the residents. They all seem to get forgotten about. I am so glad that you do care for and worry about your mom. I wouldn't think you're being a pest. You're just taking care of your mom and making sure she gets the best care. Nothing wrong with that. Hi Elani-Yes, we want to see a picture of you too. ;) If I can figure out how to do it...Maybe you'll see my face at the end of this post... ;) Okay...don't know how...I'll figure it out sometime ~chris |
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I think I got it but I'm not sure....If I did, here is a picture of me and then one of Nicole, and finally Tiana and Kayla on the rocker.
~chris |
Your daughters are beautiful, Chrily! Just like their mom!!!!!!!! I'm so glad I can now put faces to a couple of names. We need pics of the others, now. I think I'll save them, if you two don't mind. Might want to get those smiling faces out & look at them on days when I'm down. :) Your daughters remind me of my daughter's girls. (Trina...one of my twins...had 3 little girls in a row) They were a hand full when they were young, & still are now that they are young teens :lol: but in a different way. VERY sweet girls. I went to their house Saturday morning to work on their computer (I saved it's life. :^: ) & all three had to try on their "pageant" dresses for me to see. They are so beautiful, I cried. I can't believe all of my babies are growing up. Thanks for the pics......we want more!!!!!! :D Joanne...we've always made big deals over birthdays, also. We're beginning to slow down, too. We were giving all children & grands $20 for their birthday, but, this year, decided to stop. Money just got so tight, & family is large. We'll just do what we can, in a smaller way. I DO hope you have a very nice day. What did you tell your sister about meeting you at your house to walk to the beach? Maybe after you're at the beach for a little while, you can tell her you need to walk on down the beach alone for a little while...that you'll be back to her soon. Just trying to help you come up with ideas. Maybe we'll hit on something that works. :^: Well...I've got ulcers all in my mouth......very painful. Rheumy says it's from the Methotrexate. I get them quite often. I'm glad I'm off today. But, will make it very rough putting in upper dentures for the 1 hr evening news, etc this evening. :^: Life just isn't grand, anymore......... Hope all have a good day. |
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