Anyone see this last night? I only watched it as there was nothing else on but it was good.
Radio times -
Quote:
Craig, Leona and Chris all have Prader-Willi syndrome, a condition where the part of the brain that controls appetite doesn't work, so you feel constantly, insatiably hungry. To make matters worse, PWS slows the metabolism, so it's hard not to put weight on rapidly. Hence, Craig weighs 17 stone, even though he's only 13. And he always craves food. Five minutes after eating cod and chips, 30-stone Chris is hungry again. Left to their own devices, those with PWS become obese and the only treatment is strict rationing, a tough regime that we see Leona undergo. Your heart goes out to all three, but there's always the hint of a freak show in programmes like this. Still, if it helps to change attitudes to obesity, so much the better.
What an absolute horrible condition. I hate feeling hungry, to feel like that all the time would be ****. Craig the lad in the UK started to go to a specialist boarding school where they have 3 meals a day and had good results. Leona in the US went to a place where they had strict 600 cals a day! Chris went back to his Mams and was still gaining weight.
The worst thing about it was that I recognised myself when they were talking about how others just look and judge!
With my job and everything I quite often feel like saying to people "Have you ever thought about coming and talking to me about how you can regain control?"
I barely recognise my own hypocrisy - as I am overweight and can't control it and that I feel I have the right to even think that, when I hate that people must think it of me!
On the other side though, a client has already been in to see me today to ask whether it is possible he has PWS! He is 42 yrs old and eats like 3 hungry horses (as opposed to me and my one hungry horse sized diet!). He honestly thought that he could go to his GP and be diagnosed and so be absolved from all blame or guilt!
I expect to see a few more of my regulars over the next few days, so I suppose I will hear this more "I might have a little bit of that Prader Willy thing" you know, like the young girl who was a little bit pregnant!!!
So I am glad I watched the programme, cos now I am educated, both personally and professionally.
I used to be a carer for adults with disabilities, and looked after someone who had Williams syndrome. It is different from Praeder-Willi, but he had a lot of eating issues. Mainly, that his tongue was very large and quite insensitive, he could feel textures but not taste food unless it was extreme - salty, sweet etc. He loved creamy foods, but wouldn't go for substitutes like yoghurt. It was very challenging to get him to eat healthily. And most of the time we failed!
And because of the intellectual/learning part of the problem he couldn't understand the impact on his health that his food choices were having. At the tender age of thirty he had huge issues with stomach ulcers, high cholesterol and borderline diabetes.