Not much time right now- but I might be able to help with some ideas. You are in the US, rignt? You're on SSDI & your monthly amount is a little over the amount to qualify for Medicaid? Other then the amount of your monthly SSDI payment, do you otherwise qualify for Medicaid finacially (ie- not over $2000 in the bank, IRA, retirement fund; only own one car, own one house that you live in, etc?). How much do you spend per month now on medical expenses that Medicare doesn't cover?-ie: drug copays, doctor copays, etc? Has anyone talked to you about 'medical spend down' to qualify for Medicaid?
Just to give you a little backgroudn on myself, I'm also 34 & on disability. I recieve SSDI and I also qualify for Medicaid because I pay for in home health aid (its my Mom- and she would be doing it if I paid her or not). If my local Center for Independant Living hadn't pointed me in the right dirrection, I don't know what I would have done these past few years considering my medications were over $5000 per month, plus another $1500-3000 in copay for doctors, durable medical equipment/supplies, labs, procedures, etc.
If you would rather talk privately, you can PM me....
Christine Restarting all over....again...but at least I'm trying
Taking little steps~ 10- 15 pound steps to be exact
1st Step~12/20/05 ~~~ 2nd Step~1/31/06
~~~2/21/06 I've released 10% of my body weight!!!~~~
Now onto Step #3 of 10- Releasing another 15 pounds~
One for each 5 pounds released