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Dieting with Obstacles Those with special health concerns such as diabetes, fibromyalgia, pregnancy, etc can post here for extra support and help.

Fibromyalgia, MS & Lupus

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Old 01-06-2006, 03:38 PM   #1
Molly Bloom
 
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Default Fibromyalgia, MS & Lupus

Ugh...I am starting. Fortunately, my MS is mild but I am very fatigued.
I can walk now without extreme pain, and yesterday I walked 30 min!
I am starting Weight Watchers, and have 150 pounds to lose!

I know I am going to have to just push myself, to exercise. But if I don't I will give into disability and I don't want to do that!!
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Old 01-06-2006, 03:52 PM   #2
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Molly,
Go slowly. You don't want to have so much pain that you quit. If 30 minutes is OK for you stick with that for a few weeks so you can work up to longer.
You can do ti!
Mel
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Old 01-06-2006, 05:52 PM   #3
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Yes, I am - but I need to do it. Today I walked 30 min, also.
And I am sticking with WW, after a not-so-great holiday (as far as dieting).

I also have Hashimoto's thyroiditis and high blood sugar, but who's counting?
Good lord, with all these dx, you'd think I was dead. But I'm not.
It has taken me a couple years, but I am better -
I know the weight loss will make a huge difference in my energy level.

I AM going to do it!!
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Old 01-06-2006, 08:54 PM   #4
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30 minutes!!!! With MS fatigue!!! TERRIFIC!!!! Give yourself a pat on the back MollyB54. I too have MS and also have 150 lbs to lose. I don't have the other problems (Fibromyalgia / Lupus).

My MS is mild also but even "mild" MS has that awful fatigue which, for my money, is so much worse than the flare-up blind, deaf, numbness spells.....

Seems like I can take the flare-ups because I know that they will be around for a couple of months, my body will heal and then, back to (pretty much) normal (so much as normal is once the mylin sheath has been damaged ) but that ever present fatigue has been with me for 25 years now so I guess it isn't going away.

Be kind to yourself and give yourself that ATTAGIRL!!! because for you to do30 minutes with the fatigue, well, that's positively super!!!! Just remember to take it slow and don't get overheated. It's kind of like the old saying about running away so that you can live to fight another day (I wish my swiss cheese brain would remember stuff - alas another MS casualty - or maybe I'm just older than I think).....but you get the picture.....
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Old 01-07-2006, 09:26 AM   #5
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Hey Boo! What are you doing for a diet program?
It's helpful to talk to someone else who has similar health issues & wants to lose weight too!
I am sticking with Weight Watchers. It's only been a few days now, but I feel better. And the exercise -- I do have to force myself to go, but that I have just decided that is a "must" in my day. I don['t have to stay long - 1/2 hour is all, but I do have to go.
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Old 01-07-2006, 10:33 AM   #6
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Hi Molly. I do have FM and Osteoarthritis in the lower back. My range of motion sometimes is the pits. The fatigue that I get from FM can be very debilitating, far worse than the pain. Come join us in our Dieting with FM thread - some of the people on there don't have FM, but certainly do have chronic pain. That is really the issue. Trying to exercise with ANY kind of pain is a challenge.
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Old 01-07-2006, 01:04 PM   #7
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Sounds good! I'll hop threads
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Old 01-07-2006, 02:22 PM   #8
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Hi Molly.... I am new to this site and really excited to find such a wealth of information. I have recently been diagnosed with Rupus (combo of RA and Lupus). I feel I am under control somewhat but find myself having to pay attention to my body so much closer now. I am currently at 266 and could stand to lose alot. I was given the rainbow diet to follow. I was doing great until the holidays and have made up my mind that enough is enough. So here I am...... lets work this together (smile)
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Old 01-07-2006, 03:42 PM   #9
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Hi Muchi! That sounds great to me. I take plaquenil for lupus, and am not on any MS medication now - the avonex aggravated depression so I stopped it.
I am doing much better now, also, but still have some pain - it just isn't debilitating like it was even 6 months ago.
I haven't started weight lifting yet - want to talk to my rheumatologist about that....
We can lose the weight!! You should edit your preferences and get a tracker. One day at a time...that's how I am looking at it.
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Old 01-09-2006, 09:29 AM   #10
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Default Hi!

I have mild MS also and just started a walking video. I only walked 10 mins and my legs were burning. I wanted to walk more but thought I shouls take it slowly. I really dislike that my mind is willing but my body is weak. I have 50 lbs to lose and have been up and down for years.
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Old 02-05-2006, 08:00 AM   #11
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Hello all. I was about to start an "Autoimmune Support" thread when I saw this one. I am currently going through a diagnosis for MS. I have had one brain MRI come back positive, then a Lumbar Puncture and MRI of cervical spine both come back normal. I have my first appointment with the MS Specialist tomorrow. I had also suffered from high blood pressure, Type 2 diabetes and high cholesteral but got those under contrl by losing 70 pounds starting in Oct 03. I now have those three issues udner "lifestyle control" - how cool is that? I did my own program that was the "best" of WW and South Beach. WW mut have been watching me, because now they call my plan "Core" BTW - if you read "Thin for Life" by Anne Fletcher, you will see a lot of people lost their weight and keep it under control by devising a plan that is "right" for them. I do believe that that is the secret. WW is great as far as learning what a portion size is and how to eat healthy and varied. I also think a meeting with a great leader is invaluable. But you need to make it work for you.

In Sept (while training for a marathon - how much does that suck?) I had my first "documented" possible flare by having optic neuritis. I actually think this was my 3rd flare. Since then I have gained back almost 15 pounds since the fatigue has stopped me cold. Before my flare I ran 4x a week, lifted 3x (I hang out a lot on the Ladies Who Lift section), and did Pilates or yoga 2x a week. Now I can barely make it to yoga once a week and if I do 30 min on the treadmill the fatigue gets me for 2-3 days. I am having a hard time accepting where I am physically. I know part of the fatigue is caused by the Neurontin I am taking for the "buzzing" in my leg. I have heard there are some good medications for fatigue and plan on asking about them.

So, based on what the doc says tomorrow, I am back trying to get my body as healthy as possible. I plan on starting WW again (for the accountability hand discipline), easing back to cardio and using my yoga as weight training for a bit.

I know in my heart something is very wrong with me. I do not know for sure if it is MS or something else, but I have now had shingles 2x within 13 months of each other, and I know this is not normal. I also know the difference too well between "I am tired and need a nap" and "I have body numbing, total exhaustion fatigue and I need to put my body down right now". Hopefully I will have some answers soon.

Looking forward to meeting you all and working through all this together.
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Old 02-08-2006, 09:20 PM   #12
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Hey there! I JUST signed up. I am so glad to have found this site! I picked this thread because I have Lyme Disease. For years, we thought I had Fibromyalgia. Then, one morning I woke up and couldn't use my hands, shoulders, and could barely walk. Went to my doc; blood tests came back HIGH FOR Rhuematoid Arthritis AND Lupus. Went to a Rhuemy, got x-rays, etc. He came in and announced that I had NO arthritis of ANY kind, showed me my x-rays and explained. He also ruled out Lupus, but agreed that this was too much pain for Fibromyalgia and I was then sent to an Infectious diseases doctor. After the first month of treatment, I began to less and less pain, and the fatigue had subsided tremendously!
Well, my 2 yr. old is tugging!
Later!
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Old 02-10-2006, 07:47 PM   #13
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Default MS since 2000

Hello,
I have had MS since July of 2000 or should I saythats when I was diagnosed.
I was gratfull at the time, because they where also looking at Lou Garrets disease.
It took me a good year to deal with the ups and downs both physically and mentally. I was lucky to get on Avonex right away. I later switched to Rebif.
I am now med free and feeling great.
The only down fall isthe extra weight I put on from steriods and emotional eating. I guess that is the reason I am here now.
I am glad to see all of us here to support each other. I am starting to go to a gym this Monday. I just had knee surgery in Jan. and the doc said today I can start exercising. Yeh
I know for those of you who have MS that slow and easy is the best way. We can not overheat our muscles. Less weight more reps is what I have been told. Also have been advised less speed on Treadmill and longer time.
No fun, but what ever it takes to get us healthy.
Remember MS is what you have not what has you.
judi
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Old 03-21-2006, 05:45 PM   #14
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wow! i just found this thread..... thanks to someone recomending i come see in this forum.....

i too have MS..... been diagnosed for 2 years or so....... i will begin my Rebif this evening.......

my symptoms are pretty mild.... compared to lots.....

i also have a sister that has MS, and two cousins...... therefore my family was asked to be a study family to see what might be the link in all of this.
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Old 04-01-2006, 09:59 AM   #15
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Hi All-

I am relatively new to the board and found your thread today. I have a condition similar to MS called dystonia. It is characterized my constant painful muscle spasms and involuntary movement. I hope you all do not mind me joining your thread. I have lost 34 pounds in the last year and I am attempting to lose 15 more before June 1.

I recently broke my ankle and was off my feet for 3 months so I am just starting to do some light toning. Unfortunately aerobics is a ways off for me I need to get my bones strong again first. I am looking forward to the summer so I can swim. Do you all have any suggestions for light non weight bearing exercises?

Love and Light,
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