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Anyone with kidney disease

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Old 03-29-2005, 05:17 PM   #1
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Default Anyone with kidney disease

Anyone one out there with kidney disease? I have presumtive IgA nephropathy for the past 20 years now...(I'm 30). I will be having some additional tests soon and most likely a biopsy. From what I've learned and read in the past I should limit animal proteins. I've read that you should limit sugar as well so to limit the occurance of diabetes, which can damage the kidney. Geez so what's left but to be a vegetarian...how boring! for me anyway. Oh and yes, I can't eat Wheat, so I'm really in trouble here. I guess if I do all this, I will lose weight for sure, since there won't be much left...lol... ANyone on a low antigen diet? Or low protein diet? Ok, sorry so much info, but I guess I had to lay it all out to find someone with a similar experiance.
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Old 04-01-2005, 10:36 PM   #2
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MELISSA? did you have protein in your urine? or do you know? I have a friend that might have this..
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Old 04-02-2005, 08:05 AM   #3
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YEs, Blood and protein in the urine. Please know that many kidney conditions can cause protein in the urine..Even bladder infections...This condition usually comes on full force during an upper resperitory infection/cold/or sore throat. That's typically, when you would see more blood in the urine. Let me know if You need more info.
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Old 04-02-2005, 06:14 PM   #4
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Good friend of mine has 3+ the amount of protein in her urine, she is freaked out by it. Doctor wants her in to see a specialist asap, she goes on 4/7. She feels fine, foundn o blood in her urine, she did have to do a 24 hour catch thou..
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Old 04-02-2005, 09:02 PM   #5
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There are so many things that can cause protein in the urine, including auto immune disease, liver, kidney, bladder. Sometimes taking too much asprine or tylenol can cause this too, if I remember correctly. For better reference see here. http://www.kidney.org/kls/factsheets/showFS.cfm?id=132. Hope eveything works out ok. LMK how the 24 hours comes out and the nephrologist.
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Old 04-02-2005, 09:44 PM   #6
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I have Polycystic Kidney Disease.

You should watch your salt as well & have your blood pressure checked.

As for low protein, I'm not on it RIGHT NOW per se, but I will be going low-pro within the next 4 years. I've already made some simple switches, ie meatless breakfast patties & cutting out most meat I don't like.

What else did you need to know? Are you seeing a nephrologist regularly? Do you know your GRF? Your creatinine & BUN?
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Old 04-03-2005, 10:14 AM   #7
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Suchaprettyface, Thanks for the info. I've actually had this condition for 20 years now. BUn creatnine levels are normal....although will we see with this last bunch of tests that I took on Friday. 24 hour for protein has been as high as 1 gram and as low as 365. The doc's concern is that there is more damage then told by the blood work numbers, so she wants a biopsy. In general, I've been told to watch the protein input, because it's rough on the kidney's. But I am wheat intolerant and can't eat that either. OH YEAH, what's left, boring veggies and fruit, which I love, but that's a sugar too. I'll post the results when I get em'. thanks for your response. What are your levels?
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Old 04-04-2005, 12:07 PM   #8
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Quote:
Originally Posted by melmcc99
Suchaprettyface, Thanks for the info. I've actually had this condition for 20 years now. BUn creatnine levels are normal....although will we see with this last bunch of tests that I took on Friday. 24 hour for protein has been as high as 1 gram and as low as 365. The doc's concern is that there is more damage then told by the blood work numbers, so she wants a biopsy. In general, I've been told to watch the protein input, because it's rough on the kidney's. But I am wheat intolerant and can't eat that either. OH YEAH, what's left, boring veggies and fruit, which I love, but that's a sugar too. I'll post the results when I get em'. thanks for your response. What are your levels?
I guess I need to read up on your disease, will do that when I get home.

If you can't have wheat, have you tried spelt bread? They have it @ the health food store. A bit more expensive, but at least it's not wheat. Are you able to have quinoa, rice, barley, any other grains?

Let me know what your results are!

My levels are as follows: GRF is 85-90 (this is percentage of kidney function), Creatinine is 1.2, not sure of blood urea nitrogen, will get those results when I go back to the neph.
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Old 04-04-2005, 01:26 PM   #9
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THanks for posting your stats. I eat rice bread and rice pasta, but I was thinking of the risks for Diabetis and all. Since all grains turn to sugar ya know, I feel that we should watch that too. I guess what we really have to do is eat everything in small amounts and not go crazy with anything ....boy, we should be super thin! Ugh, I hate being overweight and I hate having problems. I've been pushing this darn disease under the rug for about 5 years now, since the birth of my daughter. I mean, who has time for this or any other illness. Hope you're having a good one. I'm gonna get some exercise in today. Nice here on the east coast. Little chilly though.
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