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Prolactinoma and weight issues

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Old 07-14-2014, 08:08 PM   #211
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Only Macroprolactinomas are associated with vision problems or headaches, that is what I was told by the doc.

Also, I did finally see a specialist who basically said that the meds are risky and that my number isn't that high, no tumor is present and I don't want to have kids so don't worry about it, just check prolactin once a year to make sure it's not going up to truly high levels.
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Old 07-16-2014, 05:00 PM   #212
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Oh, that is good to hear MauiKai! As long as you keep track of your health it probably shouldn't be a problem for you.
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Old 07-31-2014, 09:31 AM   #213
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Default Hyperprolactinomea

Hi Eleven11 and everyone,

My prolactin levels are around 1250, and i've put on around 60lbs, mine is caused by a medication though and is a side effect. My boobs have gone from 34C to 40F!!! I too do a lot of exercise, and was disapointed when one of the instructors in the gym came to tell me that someone had commented that they hoped I wouldn't break the machine Which was hurtful and quite offensive.

I have been going to my doctor for over 8 years since my weight ballooned literally within months and he just used to say try eating less try weight watchers.

Went to another GP a few weeks ago and and was sent for blood tests proving that my hormone levels of prolactin have sky rocketed, which is why i am so angry with the healthcare professionals for taking years to do this. Atleast I know now, for now.

They are sending me to see an endocrinologist, and referring me to a specialist to take me off the drug administered 8 years ago which was never meant to be on long term but was worried for adverse health effects of coming off which is why i never did this on my own and have saught support ALL of this time.

Please, am i going mad or could this easily be the reason I have gained masses, and i mean masses of extra body weight???? I work out, i eat healthy I don't even drink anymore.

I just need to know i'm not alone and that there is help out there.

Many thanks
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Old 08-13-2014, 09:08 AM   #214
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There is no proven link between prolactin and weight gain at this point according to my endocrinologist, but as you say the med you were on probably had something to do with it. If the docs help you to wean off of that drug, you may well find your ability to lose weight increased. I hope so anyway! And that person at the gym had NO business saying something like that to you. A gym is there for people who need to lose weight as well as those who just want to keep fit. If their equipment is so shoddy and cheap and that a person who is over the ideal weight can break it by using it then the gym is the problem, not you.
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