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Prolactinoma and weight issues

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Old 07-14-2014, 09:08 PM   #211
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Only Macroprolactinomas are associated with vision problems or headaches, that is what I was told by the doc.

Also, I did finally see a specialist who basically said that the meds are risky and that my number isn't that high, no tumor is present and I don't want to have kids so don't worry about it, just check prolactin once a year to make sure it's not going up to truly high levels.
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Old 07-16-2014, 06:00 PM   #212
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Oh, that is good to hear MauiKai! As long as you keep track of your health it probably shouldn't be a problem for you.
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Old 07-31-2014, 10:31 AM   #213
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Default Hyperprolactinomea

Hi Eleven11 and everyone,

My prolactin levels are around 1250, and i've put on around 60lbs, mine is caused by a medication though and is a side effect. My boobs have gone from 34C to 40F!!! I too do a lot of exercise, and was disapointed when one of the instructors in the gym came to tell me that someone had commented that they hoped I wouldn't break the machine Which was hurtful and quite offensive.

I have been going to my doctor for over 8 years since my weight ballooned literally within months and he just used to say try eating less try weight watchers.

Went to another GP a few weeks ago and and was sent for blood tests proving that my hormone levels of prolactin have sky rocketed, which is why i am so angry with the healthcare professionals for taking years to do this. Atleast I know now, for now.

They are sending me to see an endocrinologist, and referring me to a specialist to take me off the drug administered 8 years ago which was never meant to be on long term but was worried for adverse health effects of coming off which is why i never did this on my own and have saught support ALL of this time.

Please, am i going mad or could this easily be the reason I have gained masses, and i mean masses of extra body weight???? I work out, i eat healthy I don't even drink anymore.

I just need to know i'm not alone and that there is help out there.

Many thanks
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Old 08-13-2014, 10:08 AM   #214
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There is no proven link between prolactin and weight gain at this point according to my endocrinologist, but as you say the med you were on probably had something to do with it. If the docs help you to wean off of that drug, you may well find your ability to lose weight increased. I hope so anyway! And that person at the gym had NO business saying something like that to you. A gym is there for people who need to lose weight as well as those who just want to keep fit. If their equipment is so shoddy and cheap and that a person who is over the ideal weight can break it by using it then the gym is the problem, not you.
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Last edited by MauiKai : 08-13-2014 at 10:09 AM.
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Old 10-25-2014, 02:14 AM   #215
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hey! knew to this site i was diagnosed with pcos at 16 and with prolactona at 25. im 5'2 and iv always weighed around 125 -130 and in Nov 2012 my mom died and i started gaining weight and couldnt get it off tried exercise diets etc. now when i was diagnosed with pcos at 16 i didnt have any syptoms really except no periods so i didnt take any meds and birth control made me sick( and i was okay with not having a periode) so fast forward to after my mom died i was 130lbs wearing size 7 and then my weight starting geting out of control so i went to dr and they did so many blood test and everything came back normal of course and finaly i found a dr who tested my prolactin and thats when i found out i had prolactoma. so im seeing an endro dr now and im on glumetza 500mg 4 times a day and cabergoline .5 mg twice a week and im still gaining weight!! im also add/adhd and take adderall 30mg twice a day.

has anyone notice that they were diagnosed with prolactoma or the weight gain happened after something tramatic happen in their life? or any one find any way to lose weight? i went from a size 7 to a size 12 with in a 6 mnth time lapse!!
sorry my spelling sucks but if any one has any advoce etc that would be great thank you!!
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Old 11-12-2014, 09:28 PM   #216
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Default Prolactinoma

I was diagnosed with a pituitary tumor many years ago, it
Came back 6 months Ago im currently taking dostinex and i have put on 15lbs i have tried many things such as going to a dietian, bootcamp, working out And no far nothing has worked i would appriciate if anyone knows whAt to do! I need help i feel frustrated
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