I googled "prolactinoma and weight gain" and found this site and thread. I am really surprised doctors don't say prolactinomas can cause weight gain since hormones regulate things like our weight and ability to lose it.
I was diagnosed with a 7mm microprolactinoma last January(2014). I finally had an answer! Around June 2011 I had lost my periods totally. Went to the doctor and she told me not to stress so much. Awesome. I started gaining a bit of weight in July 2011(10 pounds!). I was not amused but I figured I was stressing out because I had not changed my diet, routine or exercise. I slowly went from 115 pounds on my 5'4" medium build frame to 165 pounds within 2 years. I was getting looks and comments about my weight from my husband, classmates, friends, neighbors and family. I was exercising more and eating less. But who would believe me? Results speak for themselves?
I had gone to several different doctors throughout the time period of not having any naturally occuring periods at all and one doc had me on birth control just so my periods would occur. But at the time I couldn't afford birth control so that didn't help for long, plus I didn't feel like it made sense. It was just a bandaid.
Finally, I went to a walk in clinic and explained everything to a fresh faced young doctor but also mentioned that I think I might have Cushings Syndrome. So he sent me for bloodwork. Came back negative. Went to the same clinic, a different fresh faced young doctor and she asked why I was there and I said "I have no periods". So she sent me for bloodwork checking a whole list of hormones. The only one that was out of whack was my prolactin. So I was sent for an MRI.
I honestly think the only reason why I wasn't sent for bloodwork to check my hormones in the first place was because I never had any milk coming out of my breasts, which is what prolactin is supposed to do. I naturally have smaller breasts and they weren't leaking so it never came under my radar. It's hard when the main symptom of something doesn't happen to you, how is anyone supposed to know?
Well, I'm now on cabergoline twice a week since January(2014) and I have my periods back. They aren't like they used to be but I still have tremendous cramps when my periods happen. Never thought I'd be so happy for cramps. Unfortunately my weight has only just recently started dropping, like within the last two weeks. I have 3 boxes of "thin" clothes that I haven't worn for 3 years. I am hoping by this time next year I will be able to wear them again. If I didn't have a pituitary tumor I would expect to lose the weight normally and be able to wear them by the end of the summer this year. I am not getting my hopes up.
Here's to good health ladies!
btw, I also look "pregnant". I think it has something to do with the amount of cortisol or stress or whatever hormones are going on that makes us put more weight on in the middle? It's not a food baby(pizza?), it's hormones!!