100 lb. Club - For those who have had their gallbladders removed
Just wondering if any of you have had any of the same pain you had before the surgery. My dh had his out in November and starting having the same pains a couple of weeks ago. Don't know what it is yet, he can't get in to see the dr til next week. I'm hoping it is not more gallstones, apparently they can form in the bile ducts even when the gallbladder has been removed.
03-17-2004, 10:49 PM
I have gotten a few twinges in my back and some pain if I over do it in the gym but no pain like a full blown attack. I hope everything turns out ok. Please keep us updated!
03-17-2004, 11:38 PM
I've never had any pains since having mine out in June 2001 but mine was so compacted down they couldn't even tell if I had stones or not when it was removed.
03-18-2004, 01:51 PM
A few pain in the immediate weeks following, but none since!
03-18-2004, 08:40 PM
If you do an internet search for Merck Manual and then look up cholecystis there is a section under "treatment" that describes gallbladder type pain after gallbladder removal. Hope hubby feels well soon!
03-19-2004, 08:30 AM
I had mine removed when I was 16 - it was 1986!!! I never felt anything bad after my surgury.
03-19-2004, 01:22 PM
i had mine out in 1996!....... but i was 18. my aunt and i had ours out the same day.
i had pain for years after i had mine out. they called them phantom pains. like if you have a limb amputated you can still feel it........ i had them really bad during the pregnancies.... and that's really the last time i felt them.
hopefully its nothing but phantom pains but let us know though!
i didnt have gall stones though. mine just quit working.
03-20-2004, 06:21 PM
I had mine out in 1999 and I have had a few minor phantom pains, but nothing like I use to get before having mine removed.
I have done internet searches about what could be causing this pain my dh is having and because his symptoms are so similar to the pains he had prior to having his gallbladder out I am thinking he has developed gallstones again in the bile ducts. We'll know more I hope when he gets to see the dr this week and hopefully she'll send him for an ultrasound to see what is going on. I don't think it could be phantom pains particularly as they didn't start til 5 months after he had his gallbladder out and also they are very severe. Well we'll see. Thanks everyone for their input.
03-22-2004, 10:49 AM
If he gets more stones in his bile ducts, it can be very serious, becuase if the bile duct gets blocked the bile has no where to go because there is no gallbladder. It can lead to complications such as pancreatitis (sp?). Make sure he sees his Doc as soon as possible. I had stones in my bile duct and that is why they postponed my surgery so they could get them out first.
Let us know what happens.
03-22-2004, 06:39 PM
my first phantom pain was about 5 weeks after i had it taken out. i was scared to death that they took the wrong thing out and i'd have to go back in for another surgery. LOL during pregnancy it got so bad i couldn't move. i'd be stuck where i was til it quit hurting. it hurt from my front all the way through to my back just like it did before i had it taken out. it hurt so bad i just wanted to die.
please update us as soon as you find out what is going on..
I can't believe that phantom pain can be that bad!! I wonder if you had just developed more gallstones in the bile ducts but they were small enough that they had passed. Did you see a dr when you had the pains and how did she/he determine that it was only phantom pain and nothing more serious? How on earth do you treat phantom pain?? I'm really perplexed by this whole thing!
My dh is going to the dr tomorrow morning and I'm insisting on an ultrasound, x-rays and the whole shebang. We aren't going to wait longer while they're slowpoking around sending him to "specialists" particularly when it takes forever to get appointments. Ah the wonders of public health care! So far nothing else seems to have developed, my dh is just having tons of pain. I've been checking him over as best I can, mostly I've been watching for jaundice. I do hope in some ways that it is just phantom pain as I don't want anything to be wrong with him that is going to require more surgery but I don't know how he'll overcome phantom pain. Oh well, I'll keep you updated on what happens.
03-24-2004, 11:52 PM
the first time i had the pains was before my post op follow up so i did have the ultrasound and all that for the check up. that's when they told me about phantom pains......... and that i had scar tissue build up around the incisions and they could cut that out but it would only lead to more scar tissue.
my pains were most painful during pregnancy and my ob even said phantom pains without even knowing my gall bladder history.
i really believe part of my problem when the pain was at its worst is because of the weight gain i had. i've only lost 20 pounds from my highest weight but i haven't had the pains since.
and yes phantom pains can be that bad........ or maybe i'm just a huge wimp LOL
but anyway. i'll be checking back throughout tomorrow to see what the doc says so please let us know as soon as you find out! and i'm hoping its nothing serious!
Thanks for posting back Shelly. Haven't been to the dr yet but my imagination has gone wild thinking of all the things it could be. Sadly being a nurse in these circumstances is not always a good thing. My dh is not overweight so it isn't like he would have a lot of pressure on the scar tissue that would cause pain. Actually he's lost tons of weight because of having these problems because he is in so much pain he doesn't want to eat. Yesterday all he had was a bowl of soup. He stayed up really late doing work and I woke up when he came to bed and he said that he felt like he was dying, he was in so much pain and then also that it hurt to have his shirt on, just the fabric touching the skin on his chest and abdomen hurt. You know to me that sounds like something is definately wrong. Oh well, his appt is in about an hour and I suppose he'll have to wait for an ultrasound but I'm making sure he is getting all the tests he needs. Also what meds did you take for the pain? I suppose being pg you couldn't take much but even Tylenol #3's aren't doing much for the pain. I am very frustrated because my dh is in so much pain and there isn't anything I can do to help him. :(
03-25-2004, 06:38 PM
are you back from the doctor yet? i wasn't able to check in like i had planned (dillon had a bad day at school so i ended up having to go get him)
are his incisions already healed up? is it hurting around the incisions?
is he going through a lot of stress?
i didnt take anything for the pains.... i'd just try to sleep it off.
Well the visit to the dr was about the most unhelpful as I'd ever been to. Basically she examined my dh's abdomen, made no comment about feeling anything suspiscious and is sending him for ultrasound and bloodwork. For the pain she didn't want him to take anything stronger than Tylenol #3 but he could take regular doses of ES Tylenol. Right! My dh hates taking pills, I have to practically bang him over the head to take anything. His incisions have been healed up for ages and mostly are just fine except the one in his belly button is a bit firm. It hurts all over, doesn't seem related to the incisions. yes he is having tons of stress. I think she is suspecting an ulcer but so far the pain does not really seem to get better or worse when he has food or if he is empty. He seemed a bit better last night and today, might be he feels better after seeing the dr. I'm just mostly concerned because it really could be a lot of different thigns and I don't want it written off as something insignificant and not have the dr do a thorough workup. I guess we'll have to see what happens after the ultrasound.
Hi Jen, I know I haven't posted in the last few years and I am still here in Northern Ontario busy being a mom.
I was reading this thread and I can relate to what your dh is going through. I had my pains just about a year after having the gallbladder out. They told me I was having bile duct spasms (same symptoms as a gallbladder attack). Hurt like heck.
I was given a precription for "buscapan" (sp?) which reduces the spasms.
Tylenol #3 were what caused mine, it was the codeine in it.
Hope this helps.
Thanks Sam. My dh has tried the buscopan, it doesn't seem to do anything. We are still waiting on the ultrasound next week, hopefully it will show what is the problem.
My dh had his ultrasound this morning and the tech said she couldn't see any stones in the bile ducts or that the ducts were dilated. She also had a good look at his liver, pancreas, the lower part of this esophagus and something along the side, probably part of his intestines. Anyway there was nothing remarkable that she saw or was going to tell him and he has an appt next week to follow up with the dr. I am kind of relieved that there are no more stones but still perplexed as to what it could be. If it is this phantom pain how long will it take to subside? Right now dh isn't having too much pain mostly because he isn't eating!
04-05-2004, 12:42 PM
Well, I guess I am glad nothing showed up, but sorry that he is still in pain. :(
Just wanted to post an update. My dh finally got a call from the dr's office about the ultrasound. It sounds like there is a lot of adhesions and scar tissue around the incision where the gallbladder was pulled out and this is what is causing the pain. So I guess it is this phantom pain that other people were talking about. What I want to know is how long can he expect this to last?? He is hardly eating because everytime he does he ends up in pain and also just generally he is feeling very poorly. His weight has dropped down to 199 and he was up to 211 when he was feeling better post surgery. The dr's office is going to send him for a CT scan so they can get a better idea of the amount of adhesions and scar tissue that is there and to make sure there is nothing else going on. Also he is going back to see the surgeon. I suppose they may have to open him back up to remove the adhesions if the pain does not resolve on its own.