Dieting with Obstacles - Fibromyalgia #198




View Full Version : Fibromyalgia #198


Happy Canuk
12-18-2012, 12:34 PM
http://photos.imageevent.com/happycanuk/christmas/christmas/HelloPinkwinter1_Laufey3.jpg

Hi Candice, Joanne and Yami no Ryu.

Candice - I got your card, thank you. I did send you my PC, as a reply on your note. I used to send out cards, but now I find it a source of irritation so haven't done so now for the second year. My fingers hurt a lot, and that is the problem with writing out cards. Your family has grown and you are all looking wonderfully well (especially you, when you are sick). You know what they say - "But you don't look sick!" Yeah, right!

Joanne - I am sorry to hear that your son and DIL are still there and not planning on making a move soon. I love my kids, but I don't want to live with them, or have them live with me. When my son moved back home for a short time, several years ago, we reverted back to the MOTHER/SON relationship instead of moving forward. I believe that is just natural, but still I was used to having my house the way I wanted it. Enjoy your time at your daughters and a bit of a respite. Hope you keep feeling not too bad.

Yami - nice to see you here. I can't tolerate any of the pain meds either, so I have had to look elsewhere. I have OArthritis as well, and I have been able to manage it and the FM, through chiropractic treatment and massage, and a few other things over the years. I am better now than I have been in years. Not so much pain from the FM anymore either, but still get that darn fatigue and brain fog. I try to eat lots of fruit and veggies, and protein. I have done well with staying away from sugar and starches (in the form of bread, pasta etc) but eat potates and they don't seem to bother me. I have recently been diagnosed with Hypoglycemia as well, and that plays into the Atrial Fibrillation that hasn't been too good the past couple of months.

Take one day at a time, copy the letter you read here, and give it to those that need to understand.

I want to wish you all a Merry Christmas and all the best in the New Year.


Yami no Ryu
12-18-2012, 01:00 PM
Thanks for the advice :) I always feel better when going to the chiropractor. Also, I find if I take in too much salt, it makes it MUCH worse. Starches don't seem to bother me overmuch, and I'm glad. I love my pasta! LOL

Happy Canuk
12-18-2012, 01:17 PM
I see you are Canadian as well, just at the opposite end than me lol I live in Alberta. I didn't think that wheat was a problem for me at all, but then I watched the Wheat Belly guy that wrote the book. He was on Dr. Oz, and I found it very interesting. Had already not been eating it. Dr. Oz did a test for all to see: To see if it was true or not. He had a few women eat a sandwich for lunch, then tested their blood sugar levels; The next day, he had the same women eat a chocolate bar and did the same test again. He was amazed that their blood sugar level was higher from the bread than from the chocolate bar. It is the higher blood sugar that stores the fat. I don't think I have lost one ounce from NOT eating starches or sugar, so I don't know what to do next. I believe it is the Beta Blocker that I have to take for the Atrial Fibrillation that interferes with the way your blood sugars work.

I love pasta as well, but after eating it, I feel bloated.

I guess the best thing to do, is leave all additives alone. I do no that MSG is a real problem for me, as it gets my heart palpitating and causes a migraine. I think as wel learn more and move forward, we all find out what our triggers are, especially those of us who can't take meds.


Yami no Ryu
12-21-2012, 03:46 PM
MSG does me in.

I saw my pharmacist today for the first time in several months. He used to be HUGE, but he's lost so much weight. He has a ways to go, but he's not in imminent danger of death....seriously, he was. I asked him how he was doing it and he said he completely cut out processed foods. If it's not real food, he doesn't eat it. He was, and still is, too big to exercise but he is well on his way. I'm so very proud of him, and I intend to follow his advice. :)

Mima
02-09-2013, 09:24 AM
Glad to see you are still here. Was great reading your posts. I am fine-as good as can be expected with 3 kinds of arthritis but I am so happy I had that back surgery!!! I probably wouldn;t even be walking.
Such great weather in FL-everyone back home is totally snowed in. My little girls are one and almost 3. My son was here a couple of weeks ago so I got to see Addy. I had to go back home because my favorite aunt died-almost 90. Got the flu and couldn't fight it. But she was in poor health. They had a lovely service and I got to see all my cousins, brothers and Addy and Lily.
Bye for now. Mima

Candicej
02-10-2013, 11:24 PM
Hello ladies, glad to see some posts here..lots of times I talk to myself on the board.

Happy....thanks for x-mas wishes....Yeah meds can be a drag....I can't do them either. Glad you are getting the fm thing undercontrol....I think I have it then a big weather system comes through and wow...pain pain pain~!~ or I just do something that bothers me..most things do.

Hi Yami....yes msg is a killer and am finding pout salt is too....well I don't do salt but you get it in hidden in most things.....dh brought a meal home tonight and it was loaded with sodium..I like to cook my own and use no salt...this week has been bad.....

Mima..good to see you and gld your back surgery is helping..I am having back trouble...hurt it last summer, got better and now I hurt it again...have to use a cane sometimes to get around so I won't fall....just picking up something little will bother me...still taking down my lights and things form x-mas....

Our 1rst grandbaby will be here soon and we will travel a 3 and half hr trip to go see here..but not right away...the mother wants to rest a bit before having company.

Joanne and how are you doing and Meme????????

Mima
02-16-2013, 03:04 PM
Wow for the grandbaby Candice. You are going to be so happy . I waited to go see Addy-her other grandma was there.Brrr-cold and windy here today. My daughter and Lily are coming down in a week. Lily is almost 3-miss her so much.
She;s still a redhead. Bye for now Mima

Candicej
03-09-2013, 08:40 AM
We just got back from seeing Little Eliana Rose, she is just precious!!!! I miss her already.

Mima we have a redhead too:)

Candicej
03-09-2013, 08:43 AM
:)

Happy Canuk
03-11-2013, 10:37 PM
Hi Candice and Mima.

Candice - congrats on that beautiful new baby. How sweet. NOTHING is like a gchild. Wonderful. My first gdaughter will be 15 next month. Sure don't know where the time goes. Good grief!

Mima - when doyou come back home? Or are you going to live fulltime in Florida now?

Not much going on here. Planning a trip to europe in May so hoping all goes well. Have trouble with the Atrial Fibrillation but the FM has improved a LOT. Just the fatigue that is annoying, but that comes and goes. Right now, with the change of seasons, I am more aware of all of it.

Have a good evening

Candicej
03-18-2013, 11:54 PM
Happy I never did get your postal code..please send it again::)....my fm was doing good for a few months and then the time change and weather thing..glad you are feeling well enough to travel. You get around quite a bit for and old lady!LOL

WE miss seeing our Little Eliana, she is growing so fast. Can't believe yours is 15...wow!

MemeToo
04-12-2013, 01:12 AM
Hello ladies. Been a while since I've been here. I see the thread is still not being used much. I have not been well. Disease has progressed more plus I've had colds and the flu and then I fell and have been in a wheelchair and on crutches ... still on crutches and they have messed up my hands, arms and shoulders and thrown everything else out of whack. Not complaining... could have been a lot worse. Hubby also fell ... he was very lucky. He fell off a ladder in the garage and hit the boat motor, a large table AND a saw before crashing on a concrete floor and came away walking! God is good! It is storming tonight so that just makes it all worse.

I've missed talking to all of you. I hope you've been good! I just haven't really felt like 'talking' to anyone. I know you've been there before ...

sabrinadmd
04-16-2013, 03:38 AM
Hi All,

My name is Sabrina and I'm brand new to 3FC. I do apologize in advance if I'm not doing this correctly...forums are really new to me!

I'm from the US originally (SF Bay Area!) but I now currently live in beautiful Queensland, Australia. As I'm posting on this tread, I'm sure you've guessed my obstacle as well...I was diagnosed with a chronic pain condition similar to fibro about a month ago. The worst part that I'm struggling with most? The condition started with my health kick! Yup, the pain all started when I started losing weight...ugh! So even though my doc is suggesting I get back to the weight loss journey, a big part of me wants to just give up and eat cake instead (with a HUGE glass of wine..hehe).

I'm a little too shy to put up my numbers yet, but I would love some advice from some fellow fibro warriors. What diets have you had success with? Google is both a friend and enemy as I've tried to look up fibro diets and have found info on going gluten-free, South Beach, etc...it's gets overwhelming so quickly! I've tried Jenny Craig and had success, but dropped out due to expense (not working at the moment) and I've tried Weight Watchers at home but I think having no support is my main issue.

I would also love some feedback on what you do to cope with all the joys of fibro. A friend's mom has the same condition and I've had a chat with her and she's recommending walking, water aerobics and yoga/stretching for exercise along with losing weight, plenty of sleep (thinking of trying to fit in daily naps...thoughts?), and massage as her main methods for coping. I know that everyone responds differently but I'm curious to know what you have tried and what has had success for you.

Sorry for the long post and sorry if I'm butting in as well! Thanks in advance for all your help :)

MemeToo
05-05-2013, 07:51 PM
I think this thread has been abandoned.

Candicej
05-07-2013, 01:42 AM
Not completely Meme!

Candicej
05-07-2013, 01:46 AM
Sabrina....just trial and error...I find taht WW works for me and eating healthy..not a lot of sweets and BAD FATS and that kind of stuff. I do pilates daily on an areo pilates machine and lots of stretching...I used to do water classes but my skin had problems with the water so stopped...but it was excellent when I did it. I garden some..love it but it makes me hurt and go on long walks when I can..weather permitting....the winters are brutal and summer much more tolorable after the sun goes down.


Meme..are you doing any better?

MemeToo
05-07-2013, 04:11 PM
Not as much as I thought I would. I'm still on crutches. I was hoping to be off them by now. It's hard to lose weight when you can't do anything. I'm back up in the 160s. UGH! Lugging that around on my hands and arms is killing me. My fibro & RA are both working overtime. I have a family reunion in NC next month (6 wks) and I would like to lose 10-15 pounds before that but it will be very hard if I can't at least walk. My favorite aunt died last week and I couldn't even go to the funeral (it was also in NC). It will be 5 weeks Thursday since I fell, you'd think I would be off the crutches or at least one of them by now!

Just sign me: Couch Potato

MemeToo
05-07-2013, 04:17 PM
Sabrina ... I'm not being rude. I didn't answer your question because I'm not really doing anything right now. My Rheumatologist has me on methotrexate, naproxen & tramadol but other than that ... I'm just sitting waiting to heal from a fall. Sorry I can't be more help! :(

sabrinadmd
05-12-2013, 05:27 AM
Hi Candice and Meme!

Thanks for replying - I have to admit I felt a bit silly writing on here as I wasn't sure if it was proper etiquette...

Candice - trial and error...ugh, that's what I thought! I struggle to lose a pound a week no matter how hard I work or what I do, even when I was quite active which is really hard these days. I'd like to lose a bit but honestly sometimes I just want to give up! I've tried Jenny Craig, a home delivery system, Weight Watchers at home, counting calories... I've had a little success, around 25lb loss but I'm a bit stuck in limbo now that I'm not moving as much. *Sigh* Thanks for the advice though!

Meme - No worries at all. Sorry to hear about your fall, wishing you a speedy recovery!

Thanks again for writing back!

Candicej
05-16-2013, 03:23 AM
sabrina don't give up..the weight thing is a very slow process...sometimes I only lose 1/2 a month....if I could be more active on a regular basis it would help but I can't...I go in spurts when I feel good enough to do it and try to not overdo but I am know for overdoing like most Fibromites! I see you are an Aussie???? I chat with a gal on FB and used to belong to a yahoo email group with a lady from Queensland with Fibro...but everyone quit posting.

Meme....are you doing any physical therapy for your fall? What did you hurt..your hip? It just takes time.....I don't like sitting still either!!!!!!

sabrinadmd
05-20-2013, 07:42 AM
Hey Candice,

It's just so frustrating how slow it goes! But I just found out that I'm gluten and dairy intolerant, so hopefully elimination of these will help! I am the same way - part of it, I guess! I am American originally but indeed I live in Australia now - just outside of Brisbane in Queensland.

Thanks again for all your help and good luck!

Candicej
05-22-2013, 01:31 AM
Sabrina...yes finding that out should help quite a lot......good luck on your new quest!

MemeToo
05-27-2013, 04:51 PM
FINALLY ... I can walk without crutches!! But, when I do for more than 10 or 15 minutes my back and side start hurting ... go figure. Guess it's from limping or giving to my right side. I pulled the ligaments and muscles in my groin and fell on my hip. Messed up my leg, hip and back but mainly the groin area. I thought I had broken the bone but my Rheumatologist said it wasn't broken but it took months for an injury like that to heal. It has been over 2 months now. I've been on crutches before for months at a time but I don't remember it being this hard. Guess my arms and hands were not in as bad a shape as they are now. I'm in so much pain now I can't stand myself!

Mima
05-29-2013, 10:29 AM
Hi guys I am here. What a 2 months it's been. We got a call in March that Brad's youngest brother-only one actually had a rare incurable brain disease. So we came home and started helping out. Brad is working on his house-I help with paper work. His wife is Cambodian and cant even write a check because she doesn't know the numbers in English He died on April 21st-very quickly for that disease but he was getting harder and harder to take care of. His poor wife-she is only 43 . Fortunately she has 2 sons and one lives with her. What a culture that is-they are the sweetest people.
Then cousin Roger died but he had had pancreatic cancer for 3 years/ In all. 12 people died last year including my all time favorite aunt/
Finally getting back to normal-I only go over once a week to help and I should be there now. Going camping this weekend,
Brad insists that we go back to FL in September-just in time for the hurricanes,
Meme=so sorry about your condition and you are so young . Congrats Candice-my youngest is Adalyn Rose. I don't see enough of them . But I am happy Jim is bacxk from Afghanistan.
I know some one named RYU and it is pronounced LOU. Nice to hear from you.
Well gotta go-gotta find 2 titles to the cars and fax Verizon her ss card and license so I
the acct can go in her name. Nothing was in her name but now most of it is.
Hi Happy and Joanne. Mima

Mima
05-30-2013, 10:07 AM
I am allergic to wheat dairy soy and cannot eat raw vegetables lately. The stores are full of good products. Not when I was first diagnosed30 years ago. So check out the grocery store. I love rice milk and i u send away for bread and pastry. To Berlin farms in Ohio. Course you have to spend a bit more money

Happy Canuk
06-09-2013, 11:18 PM
Hi Meme, Mima, Candice and Sabrina.

Nice to see we are not dead in the water just yet:)

Meme - What have you done to yourself now? When did you fall? I am happy to read that you are now able to walk without crutches. Gosh, you have really had a time of it.

Mima - Sorry for your losses. Are you still away 6 months or are you staying in Florida longer?

Candice - how are you feeling. It is darn hard to lose without being able to get around.

Sabrina - I have to go read your original post.

We went to Scandinavia for 3 weeks, and just got home a week ago. Had a great trip. Had some problems with the Atrial Fibrillation while away, but I am alive to talk about it. Going to see the Cardiologist on the 25 June, and hopefully will get some answers as to what is going on with this heart.

I'll say goodnight for now and see if anybody comes along a talks to me:D

Mima
06-28-2013, 04:35 PM
Just got out of the hospital from gastro bleeding. Ulcerated scar tissue in my intestine. Have severe diverticulosis had a colonoscopy and the prep was brutal because of the ibs doc said my colon could perforate. I am on flax seed and Metamucil. And probiotics. I am so careful with my diet but it happened anyways. Sanrina you got good advice to help you with the fibro. The hospital would not give me all Meds and Tylenol but they asked if I wanted Percocet. Resting up today. I slept almost 12 hours last night. Candice that baby is gorgeous. Meme. So sorry about your pain. I think of the fact that I am a believer and when I get to Heaven my body will be new. Glad you got to go on a trip. Happy. Bye for now mims

Candicej
07-05-2013, 01:56 AM
Well if we old timers aren't just fallin' apart!LOL

Meme..glad your crutches can be done without for a bit...it will take time..over 10 years ago when I broke my foot and used cruthes it was very hard to get my body back to normal whatever that is. Fibro bodies just can't take trauma! Hang on girlie:) Ouch on the groin strain.......

Mima...hope you heal up fast....sorry to hear about your colon. You just never stop running;) Is Brad still pretty healthy? So we both have a Rose...Ours is so adorable..she was here a few weeks ago and will be back the end of July....can't wait to see her! She is 4 months now. I miss being able to see her often..they live over 3 hrs away but we video chat with her:)

Happy...Sounds like you had a nice trip..but hope they figure out your heart problems.

My pain has been better lately..but still tend to overdo...and my pelvic stuff is back...IC or pelvic floor they can't decide and haves not gone to a urologist yet...just didn't want another doc to go to now. We had very nice weather this week and had a whole house generator installed so if power goes off it kicks on in 30 seconds....the power goes off in this neighbor hood a lot. But we gotta break it in for 10 hrs..first..then they will come and set it to run 12 min a week for maintainance. Got trimmers coming next week cause it hurts me to wack at the shrubs and trees here.

Mima
07-14-2013, 06:48 PM
Hi all. I am doing ok. Have to take Metamucil every day so I won't get in trouble. I also have been taking pearls. A probiotic for a month and have not had ibs. Even after ice cream. It still gives me sinus trouble but not a stomache ache. Now I have had lots of asthma. We have had hot and humid weather for a while. I had 3 year old Lily here overnight. What a trip. She needed band aids to make her game work. Batteries! She is trained so its not too hard bye for now and hi to all.

mandmsgirl
07-18-2013, 03:41 AM
I have had a lot of obstacles this year...I have fibromyalgia, hypoglycemia and I tore the cartilage in my knee 6 months ago but I found a wonderful way to lose weight. I make smoothies with chia seeds and put them in my oatmeal or yogurt and it controls my appetite.

Mima
07-23-2013, 09:29 AM
Good morning A boring rainy day but we need it Oh good-I have plantar fasciitis again-probably from wearing crocs all summer . Back to my orthotics .
Getting ready for VBS-hope my coteacher shows up tomorrow. Just to plan. Rose will be back soon-babies are so wonderful . Hope you all are as well as can be, 2 more months til we go back to Florida. Mima

Lupus
08-06-2013, 10:48 AM
Is it ok to post here? I have lupus and fibro, been very frustrated, I had my spleen and part of my pancreas out about a year ago and thus I was put on the south beach diet.
I fall on and off because of stress (I am a stress eater) and gaining weight just really hurts with the fibro.
I am trying to control my portions and fat (I tend to eat more nuts than I should, not bad fat though) but I have been exercising so I am wondering if it's ok to have more, I am guessing no, but controlling my appetite has been a challenge.
I think I will try chia seeds, I hope they help.

KayMaxim
08-23-2013, 01:02 AM
Keep going ladies! You can make it!

Lupus
08-26-2013, 07:41 PM
Keep going ladies! You can make it!

That meant more to me than you might realize, thank you:hug:.

Candicej
10-30-2013, 05:22 PM
ah chia seeds will give them a ry too!

Lupus yes u an post here...not very active thread here anymore like the old days...ya just gotta stick to it..everyday counts and it al adds up.

Havig a hip leg pain problem..need toget to the doc but have had workers here again..always something.

Happy is your addrss the same as last years?????

Mima how is your planter faciaitis?

Mem..dd you survie the crutches?

Candicej
11-03-2013, 03:26 PM
Well I have hurt my back cleaning and playing with the grand...among other stuff I'm sure. The doc said to rest for 2 weeks with feet u s often s I can. nothing over 5lbs to lift..no cooking or baking due the bending and twisting...can't really do much...t all causes pain anyway. and just when my Fibro was doing well There is too much to do here that is not everyday stuff..but am making dh help with laundry ad small stuff. They thin it is disc due to the pain down my leg..severe pain!!!!!! But there are other things too that can cause it. no MRI yet...I want but they say no for now.

So I am rying to do stretches that don't hurt my back so I do not get a flare...not very happy camper...

anyone have this issue?

Candicej
12-05-2013, 07:56 PM
Well it's been a month and no one is posting here! My back is still bad..2 docs and MRI...2 herniated and 2 buldging and a narrowing are the cause of the pain so trying not to do a lot of lifting or bending..but its holiday time and I am busy with lights and wrapping and stuff...no baking or cooking yet...

Candicej
12-20-2013, 11:57 AM
Just popping in to see if anyone is around...still got leg problems and very painful...

The kids were here for their x-mas..our little grand is so cute now!!!!!!

Candicej
12-20-2013, 11:59 AM
:tree::tree::tree::ginger::ginger::ginger:

Candicej
12-20-2013, 12:06 PM
:candy::candy::candy::candy::candy::candy::candy: :present::present::present::present:

Candicej
12-23-2013, 05:11 PM
Merry Christmas all!!!!!!!!!!!

Candicej
12-29-2013, 12:16 AM
Holiday is over.....it was nice..but still my leg pain..do not want to go for a shot in my back so trying to rest....

Candicej
12-30-2013, 11:33 AM
I guess I will just go on talking to myself until the rest of you show up!LOL

HEmum
12-30-2013, 12:47 PM
Hiya :) I'm new here and have fibro. I'm 30 and have been having fibro symptoms for 4 years now. Not nice at all :(

Candicej
12-30-2013, 09:52 PM
:)

Candicej
12-30-2013, 09:54 PM
Hello Hemum..sorry you have Fibro...it is not nice to have but you can manage it, it might take a while to get it under control. Tell us about yourself???????

Candicej
01-13-2014, 07:00 PM
Hello.....

anit
01-23-2014, 11:59 PM
Hi. I'm new here too. I've had fibro for 17 years. I find I can lose a bit of weight but give up as soon as my fibro flares just feeling like what's the use or I'll do better tomorrow. I started gaining weight 25 years ago when we found out our daughter had autism. I got into the habit of using food to make myself feel better and now I am here with 110 extra pounds. I also found if I am hurting eating a LOT of sweets helps the pain a bit. Of course long term it hurts more to carry the weight. I now seem to use food for any discomfort. I would be glad to hear about others experience with dealing with fibro.

Candicej
01-24-2014, 06:55 PM
Hello Anit..first time I have heard that sugar helps anything!LOL My Fibro has been good for nows..but this sciatica pain is killing me...can't do nay of my stretches that help my Fibro....and this cold is terrible this year.

Candicej
01-27-2014, 07:57 PM
Hello.............

Candicej
02-09-2014, 06:50 PM
Hello....

LoopyLou
02-25-2014, 05:14 AM
I'm new here too. Was diagnosed with Narcolepsy about 13 years ago and Fibro about 10 years ago. I'm not on any meds for the Fibro as they ma interfere with my Narcolepsy meds so I'm basically winging it and learning what I can and cannot get away with re exercise. I usually find that of I have a good day and decide to spend the day getting jobs done and gardening that I'll be laid up for a couple of days after. However I have also learned that my Narcolepsy meds give me mental alertness and the need to do more things which is great usually but not when my body literally cannot do it lol.

bittsbee
02-25-2014, 06:36 AM
Hi
I have fibromyalgia, insulin resistance , pcos from last 5/6 years.On top of it suffer from small fibre neuropathy in legs and fatty liver issue.i can totally understand how difficult it gets when flare up happens:?:.
I always had difficulty in loosing wt , but frm last six mnths the scales have refused to budge.Started 5.2 dietfrom nov , and goin to gymnasium for 2 days a week. No wt loss, but my energy levels have gone up a lot with 5.2.have increased my protein in take and reducing carbs in the diet.How much I wish I could see some results.
And this wet winters r killing me.:mad::mad::mad:.
Take care everybody.....and let me know wat is working for you.....

Occheermommy
03-10-2014, 04:34 PM
Hey I have a question. When u have flare ups do u feel swollen. Especially in hands. I had a really stressful weekend and really tiring, today hands feel like balloons and hurt everywhere. I know it is a flare up but it sucks. And scale says back up .6 so I was sad. I'm sure it is weight gain from water/swelling. Even though I drown myself in water every dY 2-3 liters a day. I feel like crap.
I'm sorry just complaining.
I have fibro, hypothyroid, anxiety,and depression. U know all the stuff that tends to go with fibro. I think I have the whole list but 2 cause I don't have periods anymore.. And I mean the long list of fibro symptoms/co diseases.
Anyway new to this one so wanted to give some background

MemeToo
04-10-2014, 01:41 PM
I guess everybody has left this thread. I'm sorry. Kept looking in but no one but Candice shows up. Sorry to see this happen. You can find me on Face Book if you want to hook up.

canadjineh
04-10-2014, 01:50 PM
I guess everybody has left this thread. I'm sorry. Kept looking in but no one but Candice shows up. Sorry to see this happen. You can find me on Face Book if you want to hook up.

Just found this thread, I too have FM diagnosed for 4 years. Hopefully you will be back MemeToo, as you haven't left us your Facebook name...
I don't take pharmaceuticals for my fibro (my choice & my MD's choice too) but I do take supplements that help. I also have gone gluten free (very seriously like a celiac does) and it has totally cleared up my IBS.
I am off to the chiropractor this morning as I find he helps a lot with my pain - I go for a realignment & tune up lol every 6 weeks or so.
I will check back later on this thread to see if anyone else is back on it... I know some days you just don't want to bother with anything, even being on the computer can be too much for your hands and neck.
Hope to connect with other gals soon. You are welcome to read my profile for more info on me & fibro. It's short I promise. :)

Liana

MemeToo
04-11-2014, 01:32 AM
Hi Liana, this thread used to have quite a few people on it. I participated for years but kind-of dropped out a couple of years ago. Most of the people have about stopped, it seems. I've been posting in here for almost 14 years but the last year or so no one much has been here when I would come back to read the posts so I stopped, too. I keep up with one or two on face book.

I have Rheumatoid and Osteoarthritis & Fibro as well as various other aliments like anemia, tinnitus, neuropathy and glaucoma. I manage on as few meds as I can get by with including 2 big ones: Methotrexate & Enbrel.
Like everyone else, I have my good days and my bad days.
I worked with all this mess, raised 2 kids, 4 grandkids and ran the house for years but I'm retired now so can kind-of call the shots if I want to stay in bed a little longer or get up and try to act nice. :p

Hope some of you guys DO get back in here soon!!! I miss talking to you.

MemeToo
04-23-2014, 11:27 PM
Still nobody around, huh? Talkin' to myself?? OK ... hope you all had a good Easter. Mine was great. Just found out my son is getting a divorce. My best friend and her husband has been split up for about 3 years now and she told me last week THEY are getting a divorce and son-in-law has serious liver disease and now has kidney stones again. AND ... Pastor has been diagnosed with Fibro. Just wonderful news after wonderful news here. Hope you guys are fairing better! Would love to hear from you.

canadjineh
04-23-2014, 11:50 PM
Still nobody around, huh? Talkin' to myself?? OK ... hope you all had a good Easter. Mine was great. Just found out my son is getting a divorce. My best friend and her husband has been split up for about 3 years now and she told me last week THEY are getting a divorce and son-in-law has serious liver disease and now has kidney stones again. AND ... Pastor has been diagnosed with Fibro. Just wonderful news after wonderful news here. Hope you guys are fairing better! Would love to hear from you.

Yikes MemeToo!! Sounds like a lot (not so good) going on in your neighbourhood...
I hope you are able to step back and care for yourself before getting too involved with these other issues. It sounds kind of selfish, but we really can't be there to support others when our own reserves haven't been built up. I also have Osteo, but from car accidents and overuse injuries as a Fitness Instructor. :exercise:
btw, tinnitus is also a fibromyalgia 'symptom.'

I am to be found mostly on the Ideal Protein threads as I have been maintaining my weight loss of 31 lbs for almost 8 weeks and I like to give the other gals as much support and menu ideas as possible.

A big Hi to Occheermommy who joined us here in March, hopefully she'll be back. You know how it is with fibro fog though - if it's not in front of your face you forget it's there... That's why it took me so long to get back here, lol. I forgot about this thread totally.

We had a beautiful sunny spring day and DH & I went for a 1 hour walk tonight after dinner - which is just what I needed because I kind of overdid it with the hunks of Grana Padano Parmesan at dinner :cheese: It's great to listen to all the birds & frogs out here. The redwing blackbirds are absolutely singing like nuts these days - obviously building nests & protecting territory!

Liana

canadjineh
05-08-2014, 01:43 PM
Just a check in Hi! :wave:

Liana

MemeToo
05-19-2014, 01:34 AM
Gee, I hate we have all lost touch like this after so many years.
Wishing all of you the best in life and hope you are not in too much pain to write now!

canadjineh
05-20-2014, 12:39 PM
Gee, I hate we have all lost touch like this after so many years.
Wishing all of you the best in life and hope you are not in too much pain to write now!

Hi Meme: Good to hear from you, hoping you are hanging in there... how is your weight loss plan going...
I am still within my goal range although up a couple of pounds over the past week...I was eating things that I probably shouldn't have, lol. Although I am doing well with the gluten free part, I had GF junk food one day and it set up some cravings for me :( Right now (the past month or so), I am having a great deal of trouble with my temporomandibular joint - right side only?! It's hard to chew stuff like apples, even cut in pieces, and radishes, etc. Everything else seems to be feeling pretty good, I've been roller skating and hiking this past weekend. Strange how the pain areas 'move around' isn't it?

Liana

MemeToo
05-21-2014, 12:41 AM
Hi Liana, yes ... it is strange how pain seems to move from place to place from day to day. That is how Fibro works, I guess. I also have Rheumatoid and Osteoarthritis so it is hard for me to tell where one stops and the other begins. I, too, have been eating a few things I know I should not and I know I will pay for it but ... today is my 67th BD so 'I just HAD to'. ha My daughter made me Mexican tonight and had the whole family over to celebrate. My son bought me a BD cake and a 'hat' of all things. It was actually wonderful! I had a really good time and ate way too much spice and sugar. I know I will be hurting tomorrow but sometimes we do what we do, enjoy our lives and pay for it in pain. Not everyday mind you, but sometimes. Otherwise, what would our lives be but applesauce and sawdust on our couches and beds? And, face it, we'd still be in pain to some degree. Maybe not quite as bad, but still in pain. I don't know about you but I'm never completely pain free and I choose to go on and live my life! Besides, I have pain pills for days like this. As for my weight, I have been staying about the same for nearly a year now. I'm not really considered overweight for my height but I'd still like to lose about 15 pounds. I've had surgery on both knees (Osteoarthritis) and it would help that. Rheumatologist thinks I need more surgery. I'm saying, no right now. No skating or hiking for me. I can barely walk some days. But you keep doing what you're doing. Sounds like you are on the right track!

MY BIRTHDAY 2014 ... NOT 39 ... MY SON'S IDEA OF A JOKE BECAUSE I SAID I WAS NOT HAVING BIRTHDAYS AFTER AGE 39!

46281

canadjineh
05-22-2014, 11:50 AM
Hahaha, really sweet picture, MeMe. This is your 29th *39th birthday* so that's what you can call it... I also have Osteo from car accidents, work accident, and old sport overuse injuries, so I know what you are talking about, lol. Sometimes it's hard to tell what to blame the pains on. Not that that would even help anything anyhow. :p

I truly feel that attitude makes a HUGE difference in this disease/syndrome, whatever you want to call it. One can choose to be in pain and exhaustion and feel like a victim, or one can choose to live their life as best they can despite having pain & fatigue. I took a wonderful course from a university that was led by people who are experiencing chronic pain and it helped me focus on what I CAN do and not what I can't do, and how to take control of my feelings about my situation. You might find a look at the website interesting... it's a licenced program done in conjunction with Stanford University. http://www.selfmanagementbc.ca/chronicpainprogram

Hope things go according to your plans for the day - keep up your healthy eating... talk to you soon :hug:

Liana

canadjineh
05-26-2014, 06:18 PM
Hi, checking in...hope you are all doing OK! :D

canadjineh
06-01-2014, 05:13 PM
Hi all:
I'm hoping the weather is fine for the next week or so and I'm feeling pretty good too, since DH & I are going for a little holiday, to Kananaskis (Canmore, Alberta) for a bit of hiking in the Rockies, and then on to a very fancy Inn that is in Calgary for a bit of pampering. I won the stay through a draw after donating to our local womens' shelter. I'm looking forward to this!!
http://www.kensingtonriversideinn.com/

Liana

Happy Canuk
06-12-2014, 06:45 PM
Hi Meme and Liana, a fellow Canadian. I live in Alberta, and I sure hope you enjoyed your holiday into the Parks and on to Calgary. Nice to win such a nice trip.

Meme - you are looking wonderful as usual. It seems like it has been a coon's age since I have been here. Nobody was coming so I didn't either. I hope you are starting to feel better than you were. Just plain nasty to feel bad all of the time.

Liana - Too bad that you have these problems as well. Have you tried the chiropractor for the jaw problem? I had that problem for years, since my 20's. It would get like lockjaw and I couldn't open my mouth (some people were really happy lol). Anyway, 5 yrs ago, I mentioned it to my chiro and he did a quick treament (painless) and I had 2 more and have never been bothered with it again.

My daughter went to a TMJ specialist and ended up wearing a splint. She was 16. Never thought about the chiro then.

Having a bout of FM at the moment. The weather here is so up and down and it doesn't sit will with my buddies, FM and Arthr-itis. I am waiting for a Catheter Ablation for the Atria Fibrillation, which has gotten out of control. They tried to change meds, but nothing worked, so I was scheduled for the procedure on 03 June, but they cancelled it, as they has an emergency, so now it's the waiting game. Hoping it won't be too long. It gets in the way of my life!

Candice - are you still peeking in? I hope so. I hope you have been well.

Everybody take care.

canadjineh
06-14-2014, 02:02 PM
Hi Canuk: Glad to meet someone new! We had a wonderful time in Kananaskis (although the trails we wanted to do were heavily damaged by last year's flood or closed due to bears) We ended up doing a couple we hadn't planned on - more popular trails and easier :halfempty:halffull: but we still had a great time. Kensington Riverside Inn was amazing and we felt so pampered there in Calgary. On our way home we stopped back in to Canmore to go to the Alpine Club of Canada Open House and had fun with the bear spray demo & practice, lol, avalanche transceiver practice, local caving info and free lunch :D. When we got home there was a phone call on our voicemail telling me I had won the Alpine Helicopter Three Sisters Sightseeing flight for 2 from the draw at ACC. LOL, I'm just so darn lucky!! Not sure if we will be back to Canmore for this later in the year, or if they can transfer to the Heli-Wine Tour from their Kelowna heliport.

Hope your week has gone well and you are feeling better soon. I go to the chiro for a 6 week tune up but haven't thought about the TMJ/chiro connection much - he suggested self-massage of the joint from inside the mouth but I have fingernails, tried this & it didn't work very well. I know I'm not explaining it very well, but I do trust him - I've used him for many years and he is seriously into the kinds of sports DH & I are in and around the same age too, so that helps. He also works with quite a few FM'ers too.

Liana

canadjineh
06-27-2014, 11:43 AM
Hi anyone out there, lol. Just posting to encourage all us FM'ers to get moving at least a little bit today. Gentle hugs to all!

Bull
06-27-2014, 09:14 PM
Hi,

I am new to this forum. Glad to see that there are some here that share the same health issues as me. I also have fibromyalgia and am on nortriptiline, gabapentin, toradol, arthrotec and Tylenol arthritis. I have the good and bad days and the fatigue and brain fog. I believe I have had this condition since 2001 but got diagnosed recently. I gave other conditions too such as stills disease and osteoarthritis. I have been in accidents and gone through a stressful divorce.... But I'm still alive :).

I am starting the ideal protein diet tomorrow and although I am worried due to my health I am also very excited to start it! I just hope that I don't fall off the wagon.

Also how do I put the bar at the bottom of posts that show the weight loss progress? I'm new to this so I feel silly asking this question lol.

I'm glad I have found this forum :)

canadjineh
06-28-2014, 07:53 PM
Hi,

I am new to this forum. Glad to see that there are some here that share the same health issues as me. I also have fibromyalgia and am on nortriptiline, gabapentin, toradol, arthrotec and Tylenol arthritis. I have the good and bad days and the fatigue and brain fog. I believe I have had this condition since 2001 but got diagnosed recently. I gave other conditions too such as stills disease and osteoarthritis. I have been in accidents and gone through a stressful divorce.... But I'm still alive :).

I am starting the ideal protein diet tomorrow and although I am worried due to my health I am also very excited to start it! I just hope that I don't fall off the wagon.

Also how do I put the bar at the bottom of posts that show the weight loss progress? I'm new to this so I feel silly asking this question lol.

I'm glad I have found this forum :)

Hi Bull: and :welcome3:
You can get your little 'ticker' after a certain number of posts - I believe it is 20 but could be wrong... hang in there! I did my weight loss with IP as well and am in maintenance - there are a lot of active IP'ers in their own forum threads but I will definitely look for you on this Dieting With Obstacles 'sticky.' Congrats on starting to get healthier again by losing some excess weight. Your joints & muscles will thank you! :hug:

I found not long after being diagnosed that my fibro was a lot better when I went completely gluten free and IP has a lot of foods that fit into this category so if you are GF too, IP is very doable.

Liana

Bull
06-28-2014, 08:34 PM
Thanks liana! I am super excited to be finally taking my health seriously and making it a top priority. First day today. So far it's been good. Mistake I made is that I slept in and had a late breakfast around 11:30 ... Then for lunch I had to go grocery shopping and had it at 7 pm... Now cooking some dinner. Tomorrow I shall be on track with having my meals on time.

canadjineh
07-16-2014, 01:12 PM
Hi FM'ers: Just checking in, how's it going? Things are working well for me right now - staying at my maintenance weight and feeling pretty good except for the TMJ issues. Makes it hard to chew - maybe that's why maintenance seems so easy, lol. Less food, naturally!
Liana

canadjineh
07-28-2014, 01:34 AM
Hi, hoping someone else is 'lurking' and just hasn't posted anything lately. I went for my first paddle of the year (I know it's kinda late in the year for the first...) in our canoe on a lovely little lake yesterday. A bit sore in the trapezius today, but totally worth it! We loved watching the turtles swim underneath the boat and listening to the loons call to their chicks who scrambled onto their backs when 'danger' approaches. A very hot & sunny day.
Hope the days are going well for all!
Liana

lucindaarrowspark
07-28-2014, 06:47 AM
I am here too. My struggles with Fibromyalgia and chronic herpes has been helped tremendously by eliminating sugar and wheat carbs. I also get cramps in my jaw at night . But since losing weight the pain all over my body has subsided. I am off Lyrica! I am off all medications.

canadjineh
07-28-2014, 10:07 PM
I am here too. My struggles with Fibromyalgia and chronic herpes has been helped tremendously by eliminating sugar and wheat carbs. I also get cramps in my jaw at night . But since losing weight the pain all over my body has subsided. I am off Lyrica! I am off all medications.

I agree, going gluten free (like celiac) has made all the difference to me. I'm certain it's great to be off meds! I have an MD and Rheumatologist that are also into alternative therapies, so I'm taking some supplements right now that help me (no meds) and getting a tune up to my SI joints and lumbar spine (where I also have arthritis) from my chiropractor every 6-8 weeks or so. I know the jaw stuff is also made worse by my C-spine issues from an old car accident - every once in a while pinches the nerves that run up the side of my head through my jaw and ear area.

canadjineh
08-11-2014, 12:53 PM
Just a hello out there to any lurkers, lol. Post a hello back for more conversation... Hoping your day goes well and you get some joy you can focus on instead of pain and exhaustion. :hug:
Liana

Bull
08-11-2014, 01:12 PM
Hello! Have been in a flare and not been OP. It's so hard to stay OP when I am hurting. Found out I have rotator cuff tendinitis in right shoulder and got the cortisone shot but seems like it hasn't helped. Same pain in left shoulder and got the X-ray and ultrasound done. Go to see the dr tomorrow to discuss results. Feeling crappy :(

canadjineh
08-13-2014, 03:03 PM
Bull, I'm sorry you are feeling so crappy. Any idea why the tendinitis? Been painting any walls lately, lol? Doing too much front crawl in the pool? That was the cause of my DH's rotator cuff tendinitis a few years ago when he was in Master's age group competitive swimming. He needed to work on some flexibility in his shoulder and perfect his body roll after rehab. It can be hard to stay op when in pain, you just want to soothe with food... try some music you enjoy, positive visualization, a chat with an understanding friend. If you have anyone else in your household, ask them to help you with food prep - cleaning up veggies and cutting them up, precooking some meat portions on the BBQ or in the oven or crock pot. Try to choose the easiest IP foods and dinner plan while you are in pain, and just realize, it's not forever, you will feel better in a while and be able to be more ambitious with your meals. Gentle hugs to you right now. Treat yourself well, but try not to focus on the negative and find something good about your day you can keep in mind. :hug: :bubbles:

Bull
08-13-2014, 08:28 PM
Thanks for your kind words. My left shoulder also has a tear and would need cortisone shots. DR advised to get trigger point injections to deal with the overall pain that I have all the time in my body. I believe that I have over used my joints by doing toooo much work. I am a single mom and before I was single I was looking after a lazy ex and did all the work inside and outside the house with very little kids. Lesson learnt that we MUST look after ourselves first and foremost. Sometimes we should be selfish for our own sake. AHhhh but its too late now. damage has been done and my body is paying the price for it. More Xrays for my feet and ankles and knees. Still flaring and in pain. Having a hard time staying OP. I haven't taken the vitamins as I am sick and tired of taking pills. its been two weeks I haven't and I hope its not damaging to not take them. I just needed a break from pills. I am taking my pain medications though. I had ice cream in a waffle bowl on Monday night and BOY DID I ENJOY It and I am NOT guilty about it.BUt now I am back on plan LOL. lets see how this week goes. Feeling bummed and then I read about robin Williams...depressed and sad!

Wannabehealthy
08-13-2014, 09:06 PM
I think DH has fibromyalgia. He gets weird pains in different places. It goes away and comes back somewhere else. He calls it his traveling pain. He will not go to a doctor for it, and even if he did, he would not take meds for it. But the more I hear about fibro the more I think that's what he has.

He had shingles in April and the pain from that never went away. He has it every day on top of all the other pains he gets. But he is very active...never sitting still...always doing something. He works through his pain and doesn't let it get him down. He never took the antiviral meds the doctor gave him. He took a couple of the pain pills but they didn't agree with him so he quit them too.

canadjineh
08-14-2014, 04:30 PM
Hi gals, I've noticed, and my docs have commented, that contrary to 'popular opinion,' people who have FM are usually 'go-go', perfectionist, Type A personalities and FM is like a whammy hitting straight to our very busy lifestyles. It can be very hard dealing with the pain and fatigue, alright, when we are used to doing so much for ourselves and others. I took a 6 week pain self management course taught as an outreach program originally from Stanford Uni (School of Medicine) and found it VERY HELPFUL. I know it is run via several universities in the US & Canada and is free with a wonderful workbook and manual and stretch CD. It isn't just for FM but chronic pain from any syndrome/disease, such as heart disease, diabetes, cancer, etc. Here's the link: http://patienteducation.stanford.edu/programs/cpsmp.html
You should be able to get more information on programs in your own area and they are run by trained facilitators who also have chronic pain and have gone through this course.
As much as we hate taking pills, Bull, the vitamins & minerals are vital to keep us relatively healthy otherwise and actually help the pain. Try to add them back to your program since they also help with weight loss.
Here's a short article written by MD's on magnesium - which is important to lower inflammation, lose visceral fat and help the body feel more energized:
http://www.med-health.net/Magnesium-For-Weight-Loss.html

Personally, I find that if I miss taking my supplements or get 'glutened' by mistake, I am 'quickly headed downhill in the FM department.' If I am regular with my supplements and watch my diet carefully, I don't have to take any medications at all, except once in a while (1 dose a week maybe) I will have to take Robaxacet extra strength after a very active day. I also have arthritis in my spine, L ankle and hands so I know what you mean about the pain in the joints. You may have other conditions besides FM that can add to the pain and depression that stems from that.

Here's hugs to you gals and your DH wannabe, and just know I am thinking about you and if you can try to slowly get back to plan... :hug: You will feel better I promise!

Liana

Bull
08-14-2014, 06:51 PM
Thanks liana for the valuable input. I know I have to get back on track with the vitamins especially. Today I have lost 20 lbs... Reached my mini goal so I'm happy and ready to do it two times more :). Starting tomorrow I'm gonna get back on my daily routine with the vitamins and be OP with the diet. Tomorrow is my weekly WI too. Let's see how it goes. Thanks :)

canadjineh
08-15-2014, 03:56 AM
20 lb mini goal, WTG!! Bull! See, you will get there and the lower weight will help with the pain levels, too.
:carrot::carrot: