Dieting with Obstacles - Anyone here dealing with Fibromyalgia or Chronic Pain?




tiggertat2
03-20-2012, 10:18 AM
Hi fellow beachers. I am new to this forum but glad I found it! I am on week 1 of phase 2. I only lost 6 pounds in phase one but I think that may be due to getting my period on the second week. Oops too much information? lol I was just wondering if there is anyone else on here that has Fibromyalgia or dealing with Chronic Pain and is on south beach? I could really use a diet buddy I could relate to. I have had FM, severe foot problems and TMJ for 13 years and I have gained a lot of weight from medications and FIM disease. (Fork In Mouth) :D

I can't walk for exercise but I ride a spin bike and swim when I can. I have a lot of weight to lose 70 to 90 pounds. I am really excited about the south beach lifestyle. I have always loved fruits and vegetables so I am finding this diet pretty natural.

I also want to thank everyone on here for posting their success stories. It has given me so much hope and inspiration!


weezle
03-20-2012, 05:38 PM
Hey Tigger! I have FMS, as well as some degenerative arthritis in my left knee and right shoulder (so far...) Losing the weight REALLY helps, but I've had a rough past 6 months or so even being 40+ lbs down. Sciatica and pain in lower back/hip as well as TMJ have been giving me problems. It was the first time the sciatica was so bad I needed medication (steroids, muscle relaxants, and pain pills) and the TMJ was awful for about a month and a half before it finally passed. I try not to take a lot of pills, as I tend to gain weight even taking anti-inflammatories (advil, aleve, etc) not to mention the prednizone (+10 lbs in a WEEK.) I only take the "good" drugs when I'm in a LOT of pain. Fortunately we've had pretty nice weather lately and my body hasn't hurt as much as it probably could have.

The only thing that ever helped my FMS was hydro physical therapy. They put me in a pool that was warmed above 96 degrees, had me walk on the treadmill in the water at a very slow pace, put an inflatible belt around my waist and tossed me into the deep end with some styrofoam weights, and made me work. It was exhausting, but it actually helped. No meds ever helped me with anything, even mildly.... Even my "good" drugs don't take the pain away, they just make it so I don't really give a :censored: and can sleep. :lol:

Stick with South Beach, girl! The lack of sugary crap really helps with the chronic fatigue, for sure. Good luck! Keep posting daily, it helps :D

Lisa

tiggertat2
03-20-2012, 11:19 PM
Hi Lisa,

Thanks for replying. I'm always sorry to hear about someone in as much pain as I am. Congratulations on losing 40 pounds! Wow so impressive and you give me so much hope. Sorry that you've had a rough six months and I hope things get better for you soon.

My story is a long one and I won't bore you with all the details but all of my problems stem from a high speed auto accident 13 years ago. Another driver ran a stop sign and hit me at 65mph. Before the accident I was very active and athletic. In an instant my whole life changed.
I also can't take medications without bad side effects or weight gain either. I am allergic to pain meds and the ones I'm not allergic to I am sensitive to. About 5 years ago I was on Cymbalta for about 8 months I ended up gaining about 25 pounds and got so dizzy and confused that my doctor took me off. It never really helped anyway. They then put me on Lyrica for 7 months I gained 30 pounds and my hands and feet swelled up like balloons! It didn't help either. I said no more. Since then I only take a sleep med and that is it and advil every now and then. I have also given up caffeine. I have some Lidacane patches and an awesome pain cream that my foot specialist had made for me. I just got those a couple of months ago. Funny how it took a foot doctor to give me those tools after 13 years of suffering!

I rely on self-management, exercise, (I love the water and swimming) and trying not to overdo it, (which as you know doesn't take much). But you know in the Midwest the weather does not help. Not being able to stand very long or walk very far doesn't help either. Fortunately I naturally have a positive attitude, I love life and laughter and I know that things could always be worse. I have learned to concentrate on what I can do and try not to shed too many tears over what I can’t do in the moment or what I can no longer do anymore. Any day I am alive and kicking is a great day no matter how much pain I am in. I'm hoping someday to love life in a much smaller size!

Thanks again for your reply and for your inspiration. If you can do it so can I!! Wishing you some pain free or less painful days to come.

Kat

(Ashamed to admit this, but here goes)

SW 236
CW 230
GW 150 or less


Lexxiss
03-21-2012, 07:34 AM
Kat, Welcome to our forum! I'm glad that Lisa could share some words of encouragement with you!

I do not have anything near your level of pain and admire you (both) for keeping one foot in front of the other to keep persisting. :hug: I can say this...alot of things get way better without the excess weight. At my high weight it was getting impossible to do almost anything. As I started losing some things did start to improve. Even at 250 (only 14 pounds above your high weight) my knees were so bad that I was anticipating surgeries even when I lost the weight. Even when I sat on our steps outside I needed assistance to get back up if my (butt) was lower than my knees. I now hover solidly around 190 and the transformation has been amazing. I'm up and down off the floor multiple times without problems at all. Even without your specific challenges, I think that's major progress.

Following South Beach has led me to so many healthier choices that I do believe that the inflammation in my body has to be so much less than it used to be. My mom has osteoarthritis and I've been pretty certain that genetics dictate that I would follow in her footsteps. My morning aches and pains are far decreased now.

This forum has been my lifesaver. I don't believe I would have stayed with the plan for this length of time without the daily encouragement of everyone here. I hope you join us on a regular basis.

Best wishes!

tiggertat2
03-26-2012, 12:04 PM
Debbie,

Congratulations on losing 88 pounds!! Wow that is incredible! I agree it is major progress, extremely impressive and inspiring. You should be very proud! I am so happy for you that you are able to get around so much better, your knees are doing better and you are healthier. I know how limited mobility feels, physically and emotionally. It's harder to deal with than most people can imagine.

Thank you for the welcome.

Friends call me Kat.

PhoenixRisingAgain
03-26-2012, 12:10 PM
Hi there! I don't have FM, but I have RA...

Some days I can't get out of bed; most days I do manage to, but it can be a struggle. I know that losing the weight won't cure my RA, and even my doc says that she can't even promise I will feel better (RA is so much more than "arthritis", for those who don't know). But I know that for me, it's TIME.

Been overweight for far too long. One thing that I refuse to give up to RA is my twice yearly roller coaster frenzy riding with my son at Busch Gardens, and well, the darn seats have been getting smaller and smaller each year doncha know!

NOT THIS YEAR!!!!

I note that we are at similar start/current/goal weights. If you want to a buddy, send me a PM on here! Maybe we can be direct one to one encouragement for each other since we are so close in those areas.

phoenix!

:book2:

tiggertat2
03-26-2012, 01:51 PM
Phoenix,

Thanks for the reply. I'm so sorry to hear you have RA. I know a little bit about it and it is a very hard illness as well. Sounds like we are in similar boats in different ways. My FM is on the severe end of the spectrum. Like you I have some very bad days. I congradulate you for keeping riding those coasters! You are awesome! I feel the same way about plane seats.

I would love to be your diet buddy. It's nice to find someone who understands. I am starting on the 2nd week of phase 2 today. So far I have lost 8 pounds! Had to brag lately all the scale did was go up.

Kat

BTW I'm new here. How do I PM you?

KO
03-26-2012, 02:39 PM
Hi Kat:
I have Cerebral Palsy, Fibromyalgia and Arthritis in a few spots. I had the same probs with Lyrica and Cymbalta. Lyrica made me swollen fat and blank Cymbalta less swollen but fat and psycho. (God bless hubby!)
I find when I don't eat Wheat my symptoms are better. Right now I'm working on being grain free for a month and seeing how that helps.
Elena Amsterdam from Elenas Pantry has MS and cites Fish oil and a grain free diet for keeping her inflammation down. Worth a shot!
Lisa I didn't know you had that stuff going on!
Anway You're not alone Kat! and while I am in and out of this forum the chicks here are super supportive!
Kierie

kaplods
03-26-2012, 02:59 PM
I also have multiple health issues including fibro, osteoarthritis, and autoimmune issues (as yet undiagnosed, but involving my joints, skin, and respiratory system), and also find I feel better avoiding wheat (and to a lesser degree other grains and high-carb foods).

I also swear by fish oil. I had to give up NSAIDS when I learned they were causing and/or aggravating my asthma and other respiratory issues.

I take double to triple the ordinary dosage (after getting approval from my doctor) and if I have to skip a dose, I REALLY feel it.

Any drastic change in weather, diet, sleep, activity level, emotions... basically any drastic change in my life whatsoever tends to trigger a flare, so to make progress I've had to make changes extremely gradually.

PhoenixRisingAgain
03-26-2012, 03:09 PM
I also have multiple health issues including fibro, osteoarthritis, and autoimmune issues (as yet undiagnosed, but involving my joints, skin, and respiratory system), and also find I feel better avoiding wheat (and to a lesser degree other grains and high-carb foods).

I also swear by fish oil. I had to give up NSAIDS when I learned they were causing and/or aggravating my asthma and other respiratory issues.

I take double to triple the ordinary dosage (after getting approval from my doctor) and if I have to skip a dose, I REALLY feel it.

Any drastic change in weather, diet, sleep, activity level, emotions... basically any drastic change in my life whatsoever tends to trigger a flare, so to make progress I've had to make changes extremely gradually.

I have heard people say about fish oil helping inflammation; any time that I have tried it, I could NOT get past the fishy burps! They drove me nuts. Is there a brand that doesn't cause those burps?

phoenix!

sunnysky
03-26-2012, 03:39 PM
I had the same problem with fish oil. My doctor put me on krill oil and I have no after effects.

kaplods
03-26-2012, 09:48 PM
Another way to prevent the fish burps is to freeze the capsules and swallow them while still frozen.

I've never had to resort to freezing, so I can't vouch for this personally, but I've heard many people swear by it.

Personally, I find that the cheapest brands cause the worse fish burps (not only more burps, but nastier-tasting burps). I don't have to buy the most expensive brand to avoid the burps, but I can't buy the super cheap brands without risking burps. I do sometimes buy super-cheap because the budget demands it, but if I have to buy a cheap brand, I make sure I take the capsules with food and BEFORE lying down (I take capsules in the morning with breakfast and near bedtime with a small snack. If I don't eat with the capsule or lay down immediately after taking the bedtime dose, that's when I'm most likely to experience the fish burps).

Also you can get Omega 3 supplements that are flaxseed based rather than fish based. Flaxseed tastes like sesame seeds, so if there would be any burping it wouldn't be fish-flavored.

PhoenixRisingAgain
03-27-2012, 07:44 AM
Another way to prevent the fish burps is to freeze the capsules and swallow them while still frozen.

I've never had to resort to freezing, so I can't vouch for this personally, but I've heard many people swear by it.

Personally, I find that the cheapest brands cause the worse fish burps (not only more burps, but nastier-tasting burps). I don't have to buy the most expensive brand to avoid the burps, but I can't buy the super cheap brands without risking burps. I do sometimes buy super-cheap because the budget demands it, but if I have to buy a cheap brand, I make sure I take the capsules with food and BEFORE lying down (I take capsules in the morning with breakfast and near bedtime with a small snack. If I don't eat with the capsule or lay down immediately after taking the bedtime dose, that's when I'm most likely to experience the fish burps).

Also you can get Omega 3 supplements that are flaxseed based rather than fish based. Flaxseed tastes like sesame seeds, so if there would be any burping it wouldn't be fish-flavored.

Thanks for this information! I will surely try the freezing method, since I have 2 big bottles of mid-cheapie pills that I have not been taking because of the burpies. I'll try it for a few days and report back.

I think I might also look for some of the flax seed based ones just to see if I see a difference.


phoenix!

:book2:

Ruthxxx
03-27-2012, 09:32 AM
You might also check out the Dieting With Obstacles part of the Forum for other hints.

MissusTaterHead
03-27-2012, 09:45 AM
Phoenix, I don't take fish oil anymore but I used to use the Coromega packets--they are orange flavored, creamy and they taste great! No fishy taste and no 'after effects.'

tiggertat2
03-27-2012, 12:25 PM
Ko, Kaplods, Phoenix and Debbie,

Thank you so much for your replies and words of encouragement and advice on the fish oil. Knowing that I’m not alone out there and seeing people with similar limitations and accomplishing their goals give me so much inspiration and hope. Congratulations to all of you for your weight loss. WOW so amazing especially with all the challenges you all have! You all inspire me more than you can imagine, not just for the weight loss but for being proactive and positive, as I am the same.

This is the first time in a long time that I feel like I have found something that will work, as I am seeing results. I think where I went wrong was skipping meals, not eating breakfast and then eating all my calories at night. I am learning to correct those bad habits. That and living with a husband that was anti vegetable and a junk food junkie was my biggest challenge. He is learning to enjoy vegetables slowly but surely.

I have a love of cooking, especially cooking from scratch, hence my FIM disease (Fork in Mouth). I have always been passionate about cooking healthy; I was a vegetarian for 20 years until I met my husband. LOL I was excited that many of my recipes that I have been making for years are South Beach acceptable. I will be posting some of them soon if anyone is interested.

Thank you again for sharing your stories with me and for the warm welcomes!
Kat

Diona
06-18-2012, 08:25 PM
Hello Everyone! I just joined this list after reading through the postings. I was just diagnosed 2 weeks ago with FMS, and while that is good news of sorts, any one with Fibro will tell you that is more than plenty. After 4 months of various and sundry testing to make sure I didn't have anything else, I guess this *is* good news! During my last visit with my neurologist, we were talking about the Do's and DO NOT's for me going forward. One thing was weight loss and the other was <gulp> exercise! He said "Have you ever considered a diet and exercise program?", quite nicely because he's an absolute peach. And because I'm more of a peach tart, I said "Doc, I wasn't always this old OR fat!" And he hit me with the first Do NOT: Do not go for a radical diet plan, taking into consideration my nerve health and not worsening this condition. He said he liked the SBD because it gave a good balance of protiens, good carbs and fats. I told him I would be happy to look into it. Exercise DO was go Slow Slow Slow to begin, and try to increase a little each week. Ok..so no Jillian Michaels for me! For a big boned 5'9 Dutch girl, I'm starting at a weight today of 239, down already from 256, and all I am doing is trying to catch up on a year of housekeeping that got left undone. The very best part is that my husband is going to do SBD right along with me. We start officially on Monday. We're just practicing it right now! :D I'm so glad I found this forum! Congratuations to all the people having their awesome sucess! Great Job! Wish me luck!
PS. My profile pic is of a little thing I call Attitude, because sometimes Attitude is all you have left, so hopefully it's a good one!:cool::cool::cool:

CatMat
06-18-2012, 09:01 PM
Someone earlier on mentioned Krill oil. That's what I take, and I have no issue with fish burps. The Krill oil caps are much smaller for the same amount of nutrients.
As for autoimmune - I'm trying to stay wheat free now, because I've been reading that the wheat we are eating today triggers inflammation. I have auto-immune thyroid disease. Not anywhere near what you guys with Fibromyalgia are dealing with, but I believe they are similar. Since Phase one is gluten free because of it's design, take a look at how you feel. I didn't think I could do it, but somehow that has actually become pretty easy!

Diona
07-15-2012, 11:19 AM
Well, here we are at the end of Phase I SBD, and 22 pounds gone. I know a lot of this had to be water weight, but I really don't care :D Its GONE! And I don't wan to ever see it again! 234 this morning, even with jammies still on. My husband, bless him, I hate him) is down 25, but he is a ton more active than I am and he's a man. Strangle him! LOL! Treadmill and I don't get along too well YET, but doing a lot of stretches and light weights trying to get things loosened up. FMS Sucks. One thing I noticed in Phase I tho, is that I didn't/don't have carb cravings. My galpal made extreme lo-carb cupcakes, and I took a bite and it was like sweet overload! I've noticed some people out there are restricted to their use of artificial sweetners, and I am recommended by my neurodoc to try to cut back on any artificial ingredient. My husband is finishing off the Splenda in his coffee, but I've switched over to stevia/truvia. Anyone have any information on using Truvia? Since I've gotten into label examination, there are a lot of things that just don't come into our house anymore. I think its too soon to really tell a difference in how I feel, other than it's easier to move, and I seem to have more energy! But..all in all...PROGRESS!
Keep doing great!!! Every movement is movement in the right direction

CatMat
07-15-2012, 04:21 PM
Wow - 22lbs! That is NOT all water weight! Congratulations! That is outstanding. The fact that your weight loss is even close to your husbands is pretty amazing - men usually lose weight twice as fast as we do!
Re: Truvia - I started out using it, but am going to pick up some Stevia drops the next time I'm near a health food store. The Erythritol in in Truvia is metabolized as a carb - even though it has no calories. That just doesn't seem fair!!!
Also, for your FMS - check out posts on topical Magnesium and things like Epsom salt baths. I've been reading about that recently, and their might be a "do no harm" application for you.

Diona
07-17-2012, 11:42 AM
Wow - 22lbs! That is NOT all water weight! Congratulations! That is outstanding. The fact that your weight loss is even close to your husbands is pretty amazing - men usually lose weight twice as fast as we do!
Re: Truvia - I started out using it, but am going to pick up some Stevia drops the next time I'm near a health food store. The Erythritol in in Truvia is metabolized as a carb - even though it has no calories. That just doesn't seem fair!!!
Also, for your FMS - check out posts on topical Magnesium and things like Epsom salt baths. I've been reading about that recently, and their might be a "do no harm" application for you.
Thank you so much, CatMat! I *know* it is amazing, to me too! I just had one of those AHA! moments! I went into my dresser, pulled out a top I could NOT wear 3 months ago because it was too tight to pull over my head and on. I got it on...and yes, it is still tight, but the thing is..I CAN wear it :D! That is my mini-project here. So, I reached a little farther down the stack and pulled on a top that I couldn't wear for 2 years because it was just too snug..and now its a little loose. YAY! With my husband and I..its not a competition. He's so awesome and supportive. When I get discouraged, he says "it's easier for men than women, you know that! You're doing great, and remember, your medications make your gain weight and you are still loosing!" I will keep him! I'm not looking for a magic bullet for the Fibro. I'll take the good days and use them to my advantage, and I'll tough through the bad days. Losing weight will help to make movement easier, and that's very cool for me! I'm noticing a difference already, especially with going up and down the stairs, so I can only imagine what it will feel like with a lot less of me! Thank you again, CatMat!! You're awesome!
PS: thanks for the info on Truvia. I don't use it much but there was something bugging me about the ingredients info on the box. Brain fog got me and I couldn't remember what! LOL!!!! Plain ol' stevia is not on the grocery list!

Diona
07-17-2012, 12:10 PM
Hi Kat:
I have Cerebral Palsy, Fibromyalgia and Arthritis in a few spots. I had the same probs with Lyrica and Cymbalta. Lyrica made me swollen fat and blank Cymbalta less swollen but fat and psycho. (God bless hubby!)
I find when I don't eat Wheat my symptoms are better. Right now I'm working on being grain free for a month and seeing how that helps.
Elena Amsterdam from Elenas Pantry has MS and cites Fish oil and a grain free diet for keeping her inflammation down. Worth a shot!
Lisa I didn't know you had that stuff going on!
Anway You're not alone Kat! and while I am in and out of this forum the chicks here are super supportive!
Kierie
Hi Kierie, wow! Good luck and congrats for how far you've come! Awesome job! Cymbalta nearly killed me with side-effects. I had no clue how bad I was until I'd gotten through withdrawal (2 solid months! gack!), and could look back on what I could remember! The song lyric that went through my head was "What a long strange trip its been..." Anyway, I'm on Lyrica now and found the smallest effective dose for me, no more crazies! I am also taking EPA and DHA capsules, 2 per day and a couple of Aleve at night for some arthritis relief while I sleep. When I weigh, I look at the numbers, then at my feet to see how bad my ankles are swollen then try to remember "its the meds! its the meds!" I wear compression stockings while working because I have to sit for long periods of time, to keep the swelling down, and they help.

I'm so tickled there are more people out there playing with the same deck of cards I'm holding! *you* understand!!! My friends really don't have a clue, and my husband, bless him, tries very hard! Thanks for being here, all of you!

weezle
07-17-2012, 10:55 PM
Laid up with a flare-up in the neck, upper back, and shoulder. My flare-ups are typically related either to temperature or stress, and clearly this go around is stress. Work has been overwhelming lately and I'm afraid my trigger/tender points are going crazy! Definitely have some nerve stuff going on. I don't usually take anything but Advil didn't cut it last night so tonight it's flexiril and tramadol. It's not doing much but loosen me up a bit and make me loopy. Hoping for a good night's rest tonight. Hope you other girls are doing well!

jandaman
07-24-2012, 03:53 AM
This is a great thread....so good to know I'm not alone in this

I also suffer from chronic pain-lumbar/SI clear up to occipital and FM. Also osteoarthritis in my knees.
Mobility nil, muscular atrophy and shortening, consequent guarded movements which just exacerbates everything....I spent 4 weeks in a rehabilitation clinic which gave me my life back after every single doctor i had been to see (even the specialists!) said there was nothing wrong and the fybromyalgia symptoms were just me overreacting, being wimpy and basically making the whole thing up. unbelievable!!! Perhaps one of the disadvantages to universal health care...

I also get flare-ups due to stress/anxiety & take Katadolon on bad days.
Exercise, physiotherapy and CBT keeps me in a good place....just so tough keeping up a regular regimen---still fighting/not accepting the cards fate has dealt me (not helpful)(and whiney to boot =) )

weird how i haven't thought about changing my eating habits to alleviate the symptoms, only to lose weight. thanks for the great advice!

have a great day

Ruthxxx
07-24-2012, 06:18 AM
Check out the Dieting With Obstacles thread. There are lots of fellow sufferers there with hints.

Diona
07-29-2012, 03:57 PM
So, I haven't had a lot to say lately because I have been sitting on a plateau, and didn't want to get any one as discouraged as I felt. Maybe I should have shared, maybe I had to wait to get some positive outcomes before I did. I am not sure but I'm back! I'm on Lyrica for my FMS, and my major side-effect is water retention. I'm dealing with it. And not well, but I am. Anyway, my husband had a lo-carb Atkins and SB friendly cookbook, and he had a recipe that he tried for low-carb high protein rye bread. Perfect for Phase II of SB! So I made a loaf, and it didn't turn out like bread, but more like a rye bread brownie. Oh well, it tasted good, so I did some adjusting to the water temp for yeast proofing, tossed in a tablespoon of molasses, and added more oat bran, rye flour, and brown rice protein, and tried again. Much better results! Mr. Scale and I had a battle every other day, and I was about as discouraged as I can be, and it was just Friday things started inching downward again! Hurray! Progress! :carrot:

While this was going on, in retrospect, I was noticing that my clothing was getting looser, and I generally felt better. Ok, I'll take all that. I was reading a lot about FMS and nutrition, and comparing what dietary changes I had actually made for us while SB'ing, not counting pastas, potatoes..what had I changed and how did that compare with nutritional advice on other FMS sites. I do think by adding in allowed SB superfoods such as spinach, kale, fennel, and changing to better, leaner, and grass-fed or organic meats has made an impact on me too. Last night, while out with my band wife friends, I felt a flare-up starting, and it is going on yet today. But, it really is the first big one since I started getting started to do SB, and frankly, to even feel this much widespread pain feels "unusual" compared to what the last few weeks were like. Again, Progress!! This flare will calm down, as we all know. I can't say what triggered it, but I know that the last week has been hectic and busy, and I know I've not been getting enough rest or sleep between band gigs, practice and work. And that is as critical to feeling decent as anything else. There's just so much to do! LOL! :dizzy:

Hang in!! Take good care of yourself!!

Diona
09-13-2012, 02:18 PM
Today I reached my halfway goal, and didn't realize it until I edited my sig line. This isn't the easiest thing to do, losing weight with FMS and taking Lyrica, but I am hoping someone else can take courage from this note. South Beach has made dieting a very good thing for me, and I find it easy to follow the good eating habits it helps establish. It's made it easier to stick with it, a lot easier, and to limit any slips and stumbles along the way. Birthdays happen, holidays happen, and starting Sunday, a cruise happens for a week! I have told me that I will behave as much as feasibly possible...See you all in a week! :)

seabiscuit
09-17-2012, 03:02 AM
Hey Tigger-

Just wanted to let you know you're not alone. I have Fibromyalgia, was diagnosed with it in the Spring, and I also have a number of other health issues. I have found that with the right medicine that it is easier to manage. Do you have a good rheumatologist?

Two rheumatologists who I have seen say that weight loss really helps improve Fibromyalgia so that is just another reason and motivation to keep trekking on the weight loss journey!

Take care, and feel free to private message me anytime ;)

Also, I have found that the book Fibromyalgia for Dummies is a good book.

Maybe you can find a support group in your area?

:hug:

All the best,

Amy

sistah phat
09-23-2012, 01:50 PM
Oh, I feel for you. Maybe you can benefit a little from my experience. I don't have FMS (thankfully) but I do deal with chronic nerve pain and sciatica, both of which originate from a cervical spinal injury. I have about 7 years of experience with Lyrica. At a low dose it seemed to be marginally effective at controlling the pain but, after about 1 year my doc had me try it at about 3x the usual dose and my pain symptoms were greatly diminished (the good) Unfortunately, I also gained about 100 lbs. in the 5 years since the dosage increase (the bad). I had no motivation to lose weight, my mobility, as limited as it already was, became severely limited and I started to exhibit signs of depression (the ugly).

Last spring it just got to be too much. My doctor recommended going back to gabapentin. I started on Neurontin immediately after the accident (in 1999) but it seemed like it was losing effectiveness over time. This time, she suggested a different, time release formulation combined with Tramadol (a synthetic opioid). So far, it seems as effective as the Lyrica at controlling pain but I don't have any drastic increases if I am the least bit late taking my next dose. I have regained motivation to exercise and eat right. I've lost more than 10% of my highest weight since May. I can't say it was all due to the switch away from Lyrica, but the difference is more than coincidental.

I recommend keeping up with the SBD. Even if your weight loss slows you will at least learn to eat foods that are healthy. My current strategy is to count calories using the food choices that I learned from Ph II and Ph III of SBD. After 4 months, this is the longest stretch that I've sustained without a plateau and the increase in exercise (including 1 hr in the therapy pool each week, regular stretching and meditation) have helped me manage the pain.

Diona
10-01-2012, 05:49 PM
So sorry about your condition, but excellent advice. I am 99% positive that my FMS was a background condition after a severe lumbar injury 14 years ago that went undiagnosed or even discovered by me until 7 years later (torsion and scoliosis of L4-L5). son of a...... But then after the neuropathy got unbearable my doctor tried me on Lyrica and I felt FANTASTIC.. and lost 11 pounds just from being able to move again without wincing. Then the insurance said "oh no no no! No Lyrica for you! But you can take Cymbalta, we will approve all you want of that!" and so I did. About a year and a half later with an extreme Cymbalta mania going, constant diarrhea, spasmodic head motions, eyeballs rather bulging, abdomen swelling, Parkinson's gait and arm/hand movements (feeling a lot like Quasimoto I was!) I insisted there had to be a correlation to Cymbalta and they moved me to neurontin for my withdrawal off Cymbalta (it's horrid..not recommended for the faint of heart). Neurontin did ok initially but at the highest dose to manage the leg/back pain, that is when I tacked on 25 pounds in water weight alone from the swelling. So she referred me to a neurologist and he was the one that took me off neurontin and started me on Lyrica again. It was a tough sell for my insurance company to pay for it, but he got it through after some 300,000 dollars worth of tests to satisfy them it wasn't anything more than neuropathic leg and back pain (chronic) and now...Fibromyalgia.. the spazzy stuff quit after a while, but I was left with horrid muscular pains in my upper back, shoulders, arms, neck...well, any place have muscle groups. But, on the other hand, it wasn't a brain tumor, ALS, MS, Parkinsons, or a myriad of other diseases... and that was it for me! If it wasn't going to kill me, or even really "hurt" me, I was going to get my rookie into high gear and he suggested that I try SBD because it provided more complete nutrition and also allowed for oils that would help my nerves themselves to be healthier. "I gotta Mayan Temple I am determined to climb," I told him, "And I got stuff to DO!" He said, just go slow building up..you've been very restricted for so long, take time and care of yourself." I climbed my Mayan Temple week before last, by the way, all by myself..perhaps ungracefully..but all by myself. And now that is off my bucket list. Also, you CAN go on a 7 day Caribbean cruise and not gain any weight, if you are gentle with yourself and forgive slips. It's ok to slip, you just can'f fall on your butt if you do, and just keep going. A slip is not an excuse to fall into the buffet line with 4 platters, right? It's just a bit of something you can enjoy for that moment, not a gateway into failure. Since I've been back home now for a little over a week, another 2 pounds has fallen by the wayside, and I am still so thankful and joyous about my little accomplishments. OH! And I found out that I *can* still ride horses! Not the old barrel-racing days, but I can still get on there without killing myself or the horse, and the after effects were not too shabby! Attitude..it's half the battle! Starting is the battle half done..so I figure I've got a quarter of the way to go :) Right?

cecc
10-02-2012, 07:07 PM
Theres a new fish oil out here in Australia it's called, "Fish Stix" anyone heard of it?

Bellamack
10-02-2012, 07:12 PM
Hi Lisa,

Thanks for replying. I'm always sorry to hear about someone in as much pain as I am. Congratulations on losing 40 pounds! Wow so impressive and you give me so much hope. Sorry that you've had a rough six months and I hope things get better for you soon.

My story is a long one and I won't bore you with all the details but all of my problems stem from a high speed auto accident 13 years ago. Another driver ran a stop sign and hit me at 65mph. Before the accident I was very active and athletic. In an instant my whole life changed.
I also can't take medications without bad side effects or weight gain either. I am allergic to pain meds and the ones I'm not allergic to I am sensitive to. About 5 years ago I was on Cymbalta for about 8 months I ended up gaining about 25 pounds and got so dizzy and confused that my doctor took me off. It never really helped anyway. They then put me on Lyrica for 7 months I gained 30 pounds and my hands and feet swelled up like balloons! It didn't help either. I said no more. Since then I only take a sleep med and that is it and advil every now and then. I have also given up caffeine. I have some Lidacane patches and an awesome pain cream that my foot specialist had made for me. I just got those a couple of months ago. Funny how it took a foot doctor to give me those tools after 13 years of suffering!

I rely on self-management, exercise, (I love the water and swimming) and trying not to overdo it, (which as you know doesn't take much). But you know in the Midwest the weather does not help. Not being able to stand very long or walk very far doesn't help either. Fortunately I naturally have a positive attitude, I love life and laughter and I know that things could always be worse. I have learned to concentrate on what I can do and try not to shed too many tears over what I canít do in the moment or what I can no longer do anymore. Any day I am alive and kicking is a great day no matter how much pain I am in. I'm hoping someday to love life in a much smaller size!

Thanks again for your reply and for your inspiration. If you can do it so can I!! Wishing you some pain free or less painful days to come.

Kat

(Ashamed to admit this, but here goes)

SW 236
CW 230
GW 150 or less

very similar to me.

I broke my back & neck and recovered well, but a few months later ached all over and went to doctor then rheumatologist and diagnosised with Fibro (1991) never heard of it at the time. I have had neck surgery and an artificila shoulder. Did the Cymbalta thing for a year. It is not fun, but I keep going and people don't even know how much pain I am in.

Diona
11-10-2012, 02:54 PM
:carrot: Size 16 Victoria Secret Jeans Worn out Last Night! :carrot: And I was dancing up a storm for at least the first 2/3rds of the night. Evil Drunk Chick then came and grabbed me by both wrists and JERKED me hard out onto the dancefloor! I am so thankful I didn't have anything in my hands or fall flat on my face! None the less ...guess who has a flare up today? :tired: I am required to be out at the gig with the band so I'm trying to excercise, housework through it. And I think FMS just sucks. Determined to get through this? Oh yes!

Yeah, I'm usually in a pretty dang fine mood, and I am an optimist now. This stuffs not going to kill me so I might as well just fight through these speed bumps. When things get tough I just remind myself: Self, you have hiked the Grand Canyon more than anyone you have met, you have white water rafted the Colorado in spring melt, you've kayaked the Gulf and Atlantic and done class 4's in a longboat, you aced college and had a good time at it, you are a respected geeky person, so wtf? Get off your tookus and get the f***ing laundry done! Geeze, Girl, there is stuff to DO!!!"

No I'm not always gentle with myself.

As I get closer and closer to my weight goal, I have to tell you that so far things have not gotten any easier or better with regards to my FMS. However, and this is important, I have found that dealing with it has become easier. Every little 1/4 pound seems to just help 2 pounds worth. Yes, just a few ounces makes a big difference. On days where I gain back a bit, I'm starting to feel that it will be gone again in a couple of days, and I have almost lost the belief that I will wake up some morning and all that fat will be back on me like I've never done this. I don't know if I'll ever lose that fear. Talk about irrational!

Have a great day, everyone. Keep fighting the good fight, Relax and just do this!

Diona
11-18-2012, 10:26 AM
I'm really glad you have found your key to living more comfortably, Sistah, I'm still walking my knife edge of good days and bad days. But I have a question for you? How in the world did you get a pain killer? The physicians up here are so adverse to anyone taking any pain killers they don't even recommend taking Tylenol or Advil. Or they think I'm a faker or a person just wanting drugs or something. I know painkilling drugs have limited effectiveness with FMS so I'm wondering how you brought this up with your doctor. Your experience with Lyrica sounds like it went the same route as my Cymbalta one took.

Oh, I feel for you. Maybe you can benefit a little from my experience. I don't have FMS (thankfully) but I do deal with chronic nerve pain and sciatica, both of which originate from a cervical spinal injury. I have about 7 years of experience with Lyrica. At a low dose it seemed to be marginally effective at controlling the pain but, after about 1 year my doc had me try it at about 3x the usual dose and my pain symptoms were greatly diminished (the good) Unfortunately, I also gained about 100 lbs. in the 5 years since the dosage increase (the bad). I had no motivation to lose weight, my mobility, as limited as it already was, became severely limited and I started to exhibit signs of depression (the ugly).

Last spring it just got to be too much. My doctor recommended going back to gabapentin. I started on Neurontin immediately after the accident (in 1999) but it seemed like it was losing effectiveness over time. This time, she suggested a different, time release formulation combined with Tramadol (a synthetic opioid). So far, it seems as effective as the Lyrica at controlling pain but I don't have any drastic increases if I am the least bit late taking my next dose. I have regained motivation to exercise and eat right. I've lost more than 10% of my highest weight since May. I can't say it was all due to the switch away from Lyrica, but the difference is more than coincidental.

I recommend keeping up with the SBD. Even if your weight loss slows you will at least learn to eat foods that are healthy. My current strategy is to count calories using the food choices that I learned from Ph II and Ph III of SBD. After 4 months, this is the longest stretch that I've sustained without a plateau and the increase in exercise (including 1 hr in the therapy pool each week, regular stretching and meditation) have helped me manage the pain.

Kat117
11-18-2012, 09:29 PM
I can;t get a consistent diagnosis so I am not sure if I have fibro, rheumatoid athritis, or both. I do know that I am hypothyroid and have some pretty severe food allergies.


I also found out that food allergies have the same symptoms as RA. trying to get a definite answer this week. Am on 120 mg of Cymbalta for chronic pain. It has reduced the pain by about 50%.

i started taking black currant seed oil at the suggestion of the advisor at my local health food store. This was back in March. I take 5,000 MG a day. I noticed within a month or so that I wasn't as tender in the trigger point areas. I have been taking it every day. I also started using clove essential oil directly on my tender points and it has been very helpful more than Aleve!

Diona
11-19-2012, 10:59 AM
All I know is that it is time-consuming and costly to get a diagnosis of FMS. They rule out about every other thing in order to get there, and RA and a myriad other issues, for me, were eliminated. I will be very glad when they can get certain indicators for a firm diagnosis, but this is a syndrome it seems, and those are harder to pinpoint.

I know that I'm getting a lot of positive motivations with weight loss following the SBD, I guess because it gives you more fruit/veggie options, and it keeps your "feel good" level about it pretty high. I've hit a few plateaus along the way, but I try to hang in with it until those pass, and they do pass. I'm still quite limited as to what exercise I can get in. I"m not sure if losing more than 50 pounds has really helped with the FMS at all, but just generally I feel much better, so don't give up and keep going! I imagine that each ounce that leaves I can feel..and that feeling is a good one.

It 's funny you mention food allergies..I've got a couple weird ones..watermelon and bivalve (clams, oysters, scallops..two shells) sensitivities. Maybe more subtle ones as I get older..not sure and still investigating. But I do have a lot of mold/fungi/pollen allergies that drive me crazy nearly all year long up north here. Down south, not so much. Go Figure!

I can;t get a consistent diagnosis so I am not sure if I have fibro, rheumatoid athritis, or both. I do know that I am hypothyroid and have some pretty severe food allergies.


I also found out that food allergies have the same symptoms as RA. trying to get a definite answer this week. Am on 120 mg of Cymbalta for chronic pain. It has reduced the pain by about 50%.

i started taking black currant seed oil at the suggestion of the advisor at my local health food store. This was back in March. I take 5,000 MG a day. I noticed within a month or so that I wasn't as tender in the trigger point areas. I have been taking it every day. I also started using clove essential oil directly on my tender points and it has been very helpful more than Aleve!

Roo2
11-19-2012, 11:49 AM
:goodluck:I had it for years I try do not take meds for it because they have to many side effects . if they are not going to take away pain or symptoms I would rather just deal with it under my terms.
personally I would not take an anti depressant ,if this was a disease that affected mostly men I think they would take it more seriously.
I use distraction as away to deal with it but I know I have also used food in the past.
I deal with it on a regular basis but bouts of the overwhelming fatigue that Zap my strength for me are the worse. This fatigue can reek havoc on plans to get things accomplIshed and to make matters worst I'm tired but can not fall asleep.
I work night shift and sometimes I am unable to sleep more than 1-2 hours later that week I will keep have to pay my sleep debt off,this can be so frustrating.
Working days is not an option because DH work opposite shifts to care for the family and I am mother's caregiver so I need to be with her...so we just carry on.
I find my dogs are a great distraction and I can get my walking in at the same time.
Believe things happen for a reason .
I believe keeping a positive attitude keeps things in prospective.
In life we all have challenges it just how we choose to deal with them.
Now I will get off my Soapbox.
Roo2:carrot::carrot::carrot: