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JenMusic
05-07-2011, 02:07 PM
I debated sharing this on 3FC, because I'm not usually an over-sharer, but decided that I would feel better getting this off my chest and others might have valuable input.

A couple of disclaimers: I am seeing a doctor, and I know y'all are not a substitute for "real" medical advice. Also, this whole thing might be TMI.

So here's the story. My last TOM was in January. I'm 33 and very, very regular. Zippo chance of pregnancy (for real). I joined a gym in February, which is also when I took a diet break and ate at maintenance level for a while, so initially I thought it was just because my body was really confused. But when March and then April came and went and no TOM, I started to get concerned.

In addition to that, I started to have some abdominal pain that I call "twinges." This is not muscle soreness from ab workouts or monthly cramps. It's little twinges of pain in my low abdomen, sometimes with pain in my right lower back. I had a large, painful ovarian cyst removed in college, so I was thinking maybe it was another cyst.

And then, finally, the thing that drove me to the doctor's office. Starting sometime in February, I've had a few episodes where my urine is bloody. I mean, it's red. This is NOT menstrual blood, for sure, it's definitely coming from my urine. It's happened 4-5 times since February, and will last for one bathroom visit up to a couple of days. It's NOT every time I go.

Last week I saw my gyno. Of course, my urine was fine the day of my appointment. :dizzy: She did a pelvic, ordered an ultrasound, took blood to check my hormones, and put me on progesterone to force a period.

Yesterday I spoke with my doc's assistant. She said the ultrasound showed nothing, and that the progesterone has until next Wednesday to do its thing (still nothing there). But then I mentioned to her that I had had another episode of blood in my urine just the day before, and she became very concerned. She actually freaked me out (leading to the binge I described in a thread from yesterday). She kept saying that was not normal, and an issue of great concern, and that I needed to see someone immediately.

Well, I saw her boss!! And told her! And honestly, the doc didn't seem that concerned - she wasn't dismissive, but she said they couldn't really do anything if the blood didn't show in my urine.

Sigh.

I have an appointment with my PCP next Friday. The appointment is actually for a new patient visit/physical, because my insurance changed and I had to get a new PCP. I'm obviously going to tell her all this.

In doing research online (I know, I'm a terrible self-diagnoser!) I'm wondering if it's exercise hematuria. I started the c25k in late February as well, and I'm wondering if that's been knocking my bladder around. Anyone have any experience with this?

Oh, also, someone's probably going to ask if my BF% is low enough to cause me to lose my period. I really don't think so, and neither did my doc during the exam. According to calliper measurements AND the Navy method, I'm around 22-24%. I still carry quite a bit of fat in the stomach area (apple-shaped). I don't go under 1200 calories a day, and am usually closer to 1400. I'm not starving myself, I promise.

I'm trying not to stress myself out about all of this. I'm trying not to think of worst-case scenarios and bad diagnoses and possibilities. But it's hard.

So that's what's happening there. Any thoughts?


Tejas
05-07-2011, 02:42 PM
I have absolutely no idea, but if it were happening to me I would insist that it be taken seriously.

Have you checked the Mayo Clinic website? I trust that one.

Good luck!

silverbirch
05-07-2011, 02:45 PM
I don't know, Jen, so I'll send you a hug until someone else comes along. :hug: it's disconcerting, to say the least, but you've done the right thing in seeing your doctor. Sorry about the doctor's assistant. They can cause a lot of unnecessary trouble, as I know from current family experience. :hug: again


Arctic Mama
05-07-2011, 05:14 PM
Just get in the habit of doing a clean catch for your urine for a week or so, then you will be able to save and send in (if needed) the bloody urine. I agree it isn't normal, I hope you get some answers :(

mandalinn82
05-07-2011, 07:02 PM
Are you sure it's blood? Some foods (beets, blackberries, rhubarb) can turn urine red or pink, as can some medications. The presence of red color doesn't necessarily mean blood, which may be why no blood showed up in the urinalysis.

http://www.clevelandclinicmeded.com/medicalpubs/diseasemanagement/nephrology/evaluation-of-hematuria/

JenMusic
05-07-2011, 07:22 PM
Are you sure it's blood? Some foods (beets, blackberries, rhubarb) can turn urine red or pink, as can some medications. The presence of red color doesn't necessarily mean blood, which may be why no blood showed up in the urinalysis.

http://www.clevelandclinicmeded.com/medicalpubs/diseasemanagement/nephrology/evaluation-of-hematuria/

Mandalinn, I would LOVE it if it were something like that. And I knew about beets (which I've never even tried) but I didn't know about some of the other foods on that list. I don't take any of the drugs, but I do eat blueberries and blackberries from time to time. The only thing is, I've eaten those for years, but the urine thing has only been happening since February.

ArcticMama - I thought the same thing, that I need to just collect all my urine from now until my next doctor's appt, waiting for one that has blood in it. :) Surely bringing a mason jar of urine from home isn't the weirdest thing anyone has ever done at the doc's office! :lol:

fatburner77
05-07-2011, 07:57 PM
A urinary tract infection that has spread to your kidneys?

Gogirl008
05-07-2011, 08:20 PM
A urinary tract infection that has spread to your kidneys?

I thought of that too. I had serious scary blood in my urine from a bladder infection once, but I also felt like I had a brick in my abdomen and a low grade fever. I suppose it's possible you may not have had other noticable symptoms. :?:

But you also have had no period for at least 3 months, right? Not sure how that would factor into it.....

milmin2043
05-07-2011, 10:32 PM
I had blood in my urine from a bladder infection that had spread to my kidneys. I had no other symptoms except for a nagging lower backache. I went to the doc, they did all the tests and said I had the flu. Later that week I was taken to the hospital by ambulance and spent 2 weeks in ICU getting over it. No one took it very seriously, obviously. I'm not saying that's what it is Jen, and I hope it isn't, but it's just another thought. I'm sorry that you're going through this. :(

serendipity907
05-08-2011, 09:10 AM
I don't really have any advice to offer, just to say I hope you get some answers and feel better soon:hug:

lauralyn
05-08-2011, 10:01 AM
I am leaning towards Kidney Stones. They can cause both blood in the urine and also lower abdominal pain.

juliana77
05-08-2011, 10:43 AM
I am wondering if it could be endometriosis that is involving the bladder, although I don't think endo causes your period to stop.

Jen, I hope you get some answers soon. If you are worried, and I would be too, don't take their non-concern as an answer. You know yourself best and are your best advocate. I hope the new PCP works out!

Violet73
05-08-2011, 10:55 AM
It could be a kidney stone. I know you always hear of people having extreme pain with them, but I have a friend who actually just has twinges of pain with them. She goes to work and everything. The twinge of pain can occur when they move. The bleeding can occur when the move and then subside when they stop moving. This can occur on and off as they travel and you can have several of those buggers travel over several months and diet changes can bring them on. I'm not a doctor and not saying this is what this is, but it's a possibility. As far as your lack of period, that's a different thing and not related to the urinary bleeding. I've never been regular and have PCOS, but you say you always have been. hmmm...I hope you get some answers soon girlie... Maybe they need to do a complete hormone workup. It's possible the progesterone will help out soon too..

JenMusic
05-08-2011, 12:53 PM
Thank you all, so much, for your support and help. You've given me lots of things to think about and mention to the PCP when I see her. I've also decided that, if I have another episode of bleeding before Friday, I'm going to collect it myself and call to get in ASAP.

I think I feel frustrated and scared because I've done what we're told to do - see our healthcare provider - and my problem wasn't immediately "solved." I've never been seriously ill, and even when I had my cyst in college, as mentioned above, it was diagnosed that day and dealt with quickly. The uncertainty of this is scary.

On the other hand, I'm an optimistic, cheerful person by nature. I can't help thinking that pretty soon this will be resolved with a happy ending. I just want to get there now. :)

JenMusic
06-03-2011, 03:15 PM
Hey! I'm updating this in case it's helpful to someone in the future. Also, I hate loose ends. :)

After urine/blood tests, a CT, an X-ray, and an ultrasound (thank goodness I'm insured, right?) I've found out I have a kidney stone in my right kidney. It's about 1 cm according to my doc, too big to pass on its own, and I'm scheduled to have a lithotripsy next Friday, a non-invasive procedure where they use shockwaves to break up the stone into pieces small enough to pass.

I'm very relieved that it wasn't something more serious. The internist and urologist she referred me to were both much more concerned about the blood in the urine than my OB/GYN was, and both made it clear that I should have come in immediately on seeing blood - apparently microscopic blood happens occasionally for lots of reasons, but visible blood is a pretty big sign that something is acutely wrong. So, public service announcement - see the doctor if you think something is wrong! :)

bargoo
06-03-2011, 03:18 PM
Thanks for the follow up. Hoping everythong goes well.

lauralyn
06-03-2011, 04:14 PM
I thought that was what it was, I am glad you found out and are getting it taken care of.

Also, thanks for letting us know, I was wondering about this last week!

Amberelise
06-03-2011, 05:00 PM
Jen - I second that if anyone sees blood in their urine they should go in right away!

I have a male friend that saw blood in his urine off and on for nearly 6 months before he went in and saw someone about it. Turns out he had testicular cancer. He's in remission now, but had to lose one of his "friends" that he wouldn't have lost if he had gone in at the first sight of blood.

I, myself, ignored blood in my urine for a couple of days. When I went in I got a verbal lashing from my doctor. I had a urinary tract infection and was dangerously close to infecting my kidneys due to non-action.

Like Jen said, see the doctor if there's urine in your blood!

pnkrckpixikat
06-03-2011, 05:42 PM
did they ever figure out the lack of period?

JenMusic
06-03-2011, 08:04 PM
did they ever figure out the lack of period?

I'm still dealing with my OB/GYN on this one. I did a "progesterone challenge" which didn't work, then took a course of estrogen and am now on my second course of progesterone. Hopefully this will work. She did take a TSH level for my thyroid, and my number was 5, which makes just barely on the edge of underactive thyroid, but she wants to repeat that blood test.

So yeah, still a mystery there.