Dieting with Obstacles - Hypothyroidism?




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girlonfire
06-28-2009, 09:21 PM
Next week I will be getting some blood tests done because my doctor thinks I might have hypothyroidism. I'm a little nervous, but does anyone here have this condition? What can be done to help combat it's effects?


sunflowergirl68
06-28-2009, 09:30 PM
The only things that can help with hypothyroidism are medication, exercise, and diet. However, medication is almost always necessary. I'd start seeing an endocrinologist if you are hypo.

HeatherMcG
06-28-2009, 10:11 PM
I am newly diagnosed as of May. I have changed my diet to a more thyroid friendly one. I exercise. I also take 1 rx every morning. Don't worry. Not only is hypo VERY common, but it is also highly treatable. My best advice would be to start reading. Books, internet, magazines. Just make sure the source is qualified!


hokiegirl00
07-04-2009, 09:30 AM
I have hypothyroidism also. I was diagnosed about a year and a half ago. It's definitely manageable but you will have to take a pill everyday and visit the endocrinologist every few months to get your levels checked. After a few weeks of the medication, I was surprised by how much energy I had lost and just hadn't noticed since I guess it was so gradual. You'll feel much better.

Meg
07-04-2009, 09:38 AM
Same here. :) I was diagnosed in 1995 and have been on Synthroid since then. The good news is that once I started counting calories and exercising, I was able to lose weight without any problem (and keep it off for 7+years).

Cebsme
07-04-2009, 09:57 AM
Diagnosed in May. Taking T3 and T4 medication (2 pills per day instead of standard 1 pill per day). Counting calories and started exercising. I couldn't loose weight to save my life without the medication, with the medication I am doing the same things I was in the past, eating better and exercising and the weight is coming of much better.

spleenqueen
07-05-2009, 09:56 PM
I had my thyroid out and have been taking synthroid also. I haven't been to my endo doc since my weight loss (I go every six months) and I was wondering if she does adjust my dosage will it effect my weight loss? Anybody have experience with this?

Me Too
07-08-2009, 10:05 AM
My thyroid yearly numbers keep going down every year and my Dr doesn't seem to be to worried. Last year it was 2 years ago it was 2.3, last year 1.47 this year .89. I am getting a little worried and do plan on seeing another dr.

the loser the numbers, the faster my thyroid works? right? the i should be losing weight faster, oh this is so confusing, i need to do some research on the web.

BarbPA
07-08-2009, 10:29 AM
Me too...hypothyroid. I was diagnosed about 8 years ago and have been taking Synthroid since then. I see my endocrinologist every 6 months and my dose has increased over time. Once I put my mind to losing weight I have been able to do so.

spleenqueen - my dose did not change after losing a significant amount of weight. Just depends on the bloodwork results.

:)Barb

spleenqueen
07-08-2009, 12:42 PM
:DGOOD:D - everything has been going so well and I have been working so hard I don't want anything screwing it up - call it synthroid paranoid!!


:carrot::carrot::carrot:

Featherfire
07-08-2009, 02:37 PM
I was actually JUST diagnosed after three years of my family saying that my sudden weight gain (108lbs in 6 months) and lack of progress in losing was sheer laziness. I opted out of the prescription medication option, and after only three days just taking a few extra vitamins (selenium, kelp, and adding some coconut oil), I feel AMAZING. I've energy that I haven't felt for a long time, and in that time, without doing anything differently, finally saw the scale moving downward! I'm so motivated to kick my butt into gear and finally see the body I mentally already have, that this energy boost and complete change in how I feel for the better is the best thing that could have happened. I have answers and know it wasn't just depression and stress keeping me from reaching my goals. If you're afraid of medication, or just plain stubborn like I am (raised by a physician and a nutritionist, so I'm very anti pill just out of my hippy ways and sort of rebellion), try adding a few surprisingly inexpensive supplements to your day and see how you feel. It's made all the difference in the world to me. I'm actually affected by caffeine for the first time in YEARS! *bouncy*

SlimmingDownSouth
07-10-2009, 01:17 PM
Me Too - It depends on what "thyroid number" you are talking about. Your Free T4 is the active hormone. It drops in hypothyroid. The Thyroid Stimulating Hormone (TSH) is the the usual screening hormone and it raises in hypothyroid. There is also your Free T3 but it is rarely checked.

spleenqueen - BarbPA is right. Let your numbers be your guide. The actual hormone levels are simple to follow and doses may need to be adjusted rather your wight changes or not.

Featherfire - I am thrilled with your success... but I am curious if your thyroid function tests normalized with your remedy. Are you still hypothroid but feeling better or have you become euthyroid (normal thyroid)?

Where do I find info on the selenium, kelp, and coconut oil for Thyroid? I'll start googlin'.

But, always remember herbs and vits are "pills" too... they just aren't purified and regulated as closely.

HeatherMcG - A "thyroid friendly" diet? I would like to learn more about that. Looks like I'm headed back to google again. :)

Thanks for the info, guys. This place is sure full of information.

QuilterInVA
07-10-2009, 01:28 PM
You are playing with fire to decline the meds and treat yourself with unhealthy coconut oil. Herbs and vitamins are okay but the problem with herbs is the strength can vary from batch to batch. Thyroid disease cannot be cured and will only get worse. If taking those things for a few days has given you such improvement, what were your numbers to begin with?

Featherfire
07-12-2009, 12:55 AM
I can understand where some of you may be concerned with my choice in self treating. I am under supervision from my father, who is a physician, and honestly haven't felt this good in close to a decade. I've been talking the rite-aid brand centrum for women multivitamin along with an extra kelp supplement each day. I also added in a selenium, per suggestion of my g.p., with whom my father consulted. I'm not only trying to combat the incredible lack of energy, insomnia and hair loss, but I want to feel human again. This is what has been working for me. Certain routes aren't for everyone, and some aren't safe, but I can assure that my choice to not take the route of modern medicine and relying on supplements that are more natural and less "manufactured", being lab created versus in nature is working for me, and I am on the route to complete overall health.
Some of it, I wouldn't be surprised if it were a placebo effect, mind over matter and such, but I'm feeling better and seeing a change inside and out. Prior to the diagnosis, I was severely hypothyroid, and had been for many years, though I never thought to have it tested until multiple family members suggested it as a cause to my struggle to lose weight. Honestly, I never even heard of it until my mother first suggested I talk to my father. I also don't have health insurance, therefore can't afford the prescription route if that had been what I had chosen. I'm uninsured, as I can't afford to have another monthly income deduction, especially as I'm unfortunately unemployed at the moment. (Left a steady job for a new with more money and it fell through just as pretty much all jobs in the southern part of the state vanished until fall)
I'm feeling good and healthy, which I think is most important. If people want to supplement, as long as they take only the recommended daily dosage from the label or as recommended by a physician, I feel it's a safe and more affordable route. ^_^

Featherfire
07-12-2009, 01:01 AM
...I almost forgot about the coconut oil bit....
I'm actually using it on my hair, versus ingesting.
It's really been a miracle for the dry brittle and extremely fragile hair that has been residing on my head since my symptoms started. It feels silky smooth, stopped breaking, and the shedding has almost completely stopped. I only lose a few hairs that I notice per day if either my hair has been in a tighter ponytail, or while trying to wash out styling products that leave helmet hair like build-up.
I'm definitely tempted to cook with it as well or start my day with a mini-shot glass style oral ingestion, though I'm still adjusting to actually remembering to take my vitamins every morning, never mind adding one more thing to the ritual.
I made sure to do my research on coconut oil before purchasing.
It actually made its way into my hands because of the condition of my hair being so terrible, but from what I've read and heard while visiting multiple natural food stores (I'm trying to keep my life as organic/natural as possible, clothing included when I'm at my goal size!) it's actually VERY good for you when not used in excess, like all things. Moderation is key.

harrismm
07-12-2009, 01:20 AM
http://www.endocrineweb.com/hypo1.html
Please seek advice of your physician.Do not attempt to self treat this disease.Read above.Left untreated, rarely, but CAN be life threatening.

SlimmingDownSouth
07-12-2009, 10:05 AM
But what about your hormone levels? Have they been rechecked? Are you Euthyroid?

Again... I'm wondering if that is treating symptoms or the underlying problem.

disneymom3
07-12-2009, 01:15 PM
Just a point regarding the cost of medication. The generic for Synthroid which is Levothyroxin, can be purchased at many pharmacies for only $4 a month. If you already have had the blood testing done, that is the expensive portion. I understand that you have other objections to the medication route, but don't let finances be part of the problem.

Bette k
07-13-2009, 10:56 PM
I want to add a warning about untreated hypothyroid, it can turn to cancer. I had undaignosed hashimotos for years acording to my surgeon and in around 20% of all cases it will turn to thyroid cancer. I had my thyroid removed in October of 2005 because of cancer. I have to take medication everyday to survive, I have a big scar on my neck, and I am at a higher risk of getting a secondary cancer so I have to be extra vigilant about every aspect of my health. All that because I was not diagnosed and wasn't put on the medication that could have controled this before it turned to cancer.

Thyroid problems are not something to ignore and hope they go away, thyroid cancer is the only cancer that is increasing in the US today.

walking2lose
07-15-2009, 12:06 PM
My thyroid yearly numbers keep going down every year and my Dr doesn't seem to be to worried. Last year it was 2 years ago it was 2.3, last year 1.47 this year .89. I am getting a little worried and do plan on seeing another dr.

the loser the numbers, the faster my thyroid works? right? the i should be losing weight faster, oh this is so confusing, i need to do some research on the web.


Are you on synthroid?

SlimmingDownSouth
07-16-2009, 10:43 AM
Thanks for sharing your story, Bette. Hashimoto's Thyroiditis can be tricky because it can cause bursts of hyperthyroidism during the inflammation before it burns out into hypothyroidism. And when we throw in the different types of thyroid cancers... it's a whole new level.

So, I throw my voice in with all the others. This is not a simple problem. You need to see your doctor regularly and they need to be following your levels.

My prayers and thoughts go out to you, Bette. :hug:

Bette k
07-18-2009, 11:39 PM
Thanks for sharing your story, Bette. Hashimoto's Thyroiditis can be tricky because it can cause bursts of hyperthyroidism during the inflammation before it burns out into hypothyroidism. And when we throw in the different types of thyroid cancers... it's a whole new level.

So, I throw my voice in with all the others. This is not a simple problem. You need to see your doctor regularly and they need to be following your levels.

My prayers and thoughts go out to you, Bette. :hug:

Thank you for your support.
For me thyroid cancer was a bit of a blessing. I feel so much better without my thyroid than I did with it. It gave me a chance to re-evaluate things in my life and I am happy with hwere I am right now in my life.

girlonfire
07-19-2009, 01:47 AM
My thyroid seems to be functioning fine

SlimmingDownSouth
07-19-2009, 05:34 PM
Glad to hear your tests came back normal. One less thing to worry about. :high:

TappingPeony
07-27-2009, 02:18 PM
It has been interesting reading this thread. I had Grave's disease when I was 18, and nearly total thyroidectomy when I was 19. I believe that my other hormones were keeping me euthyroid for a long time, but it finally petered-out when I got pregnant with my 2nd child 10 years later. I have been on Synthroid for 22 years now. Unfortunately, it has been the source of my weight battle, and thyroid meds have never helped me lose weight. It is also part of the reason I could never get pregnant again, and after 10 years of trying, we adopted our daughter. I can always tell when my thyroid is in need of attention, and have had interesting causes over the years. Once it was because of pharmacy error, once it was heat stroke, and once it was iron toxicity from my vitamins. You have to read to see what kinds of things might interact with the thyroid med, and vitamins are a biggie unless you spread them out correctly. I have always taken synthroid at night so it doesn't upset my stomach--that might have been because of the baby at the time I started but have done it ever since. It never bothered me so much as the last couple of years with going through menopause. The best thing I have used for the splitting nails and hair loss was a suggestion from a dermatologist I was seeing for another reason--1000mg Biotin. Takes a little while, and a little trial & error, but I was pleasantly surprised -in about 4 weeks my hair was back to normal, took about 10 weeks to see improvement in my nails. I had not heard about the coconut oil, but since I grew up with the oils being in and out of fashion, it makes sense, although olive oil has always been the "go to" oil for most people I know. Just one thing, that crazy woman on the Web is not worth listening to in my opinion. I have read more poor and wrong advice from her than anything I have researched. So always be careful, and research well!

newfette
07-28-2009, 12:39 PM
please please please do not ignore a thyroid problem.

Mine started when I had a hyperactive thyroid. I lost a butt load of weight and was the smallest i ever was as an adult, but very very sick. so much so that i needed two doses of radioactive iodine to treat my contition and developed graves disease which I needed a major surgery to fix.

I was on synthroid for 3 years then i changed doctors because i moved and my new doctor took me off my pills saying i didn't need them, and i trusted her cause she was a doctor. with this my weight spiraled out of control.

when i moved again a few months ago and again got a new doctor and he was appaled that i wasn't on any form of medication, so we've just recently started me back on the synthroid and i'm hoping it will help with my weightloss.

Haley8203
07-30-2009, 09:20 AM
hi everybody, my name is haley my doc started me on generic synthroid about a month ago and now i feel even more tired than i was before which makes doing exercise more difficult and when it's so hot out and my 5 yr old daughter wants my attn i just give up and don't do it. i'm supposed to get my blood rechecked first week of september, so if my energy hasn't improved i hope that will show cause i won't be seeing my doctor that day.....

congrats on everyone making progress!

wren
07-30-2009, 12:58 PM
I was diagnosed with Hashimoto's Hypothyroidism 11 years ago a year after the birth of my third child. I continued to gain weight until I finally plateaued at 250lbs. I am on the highest dose of Synthroid 300 mcg and still can not lose the weight. Worked out for 3-4 days a week at a gym doing cardio and weight training for a year while watching my intake. I think I lost 10 lbs. So I got fed up and quit. It is quite depressing but I have not found anything to work. I know I have to work out/exercise because my blood pressure is up. I am very discouraged and depressed which of course could mean I am not getting enough synthroid. But geeze can not afford to buy second pill. I will say to those who are taking levothyroxine be careful. I took it for a year and my endo said to quit because It is not enough. Since it is generic it doesn't meet the same regulations that the name brand has to meet and may not have enough of the hormone as it says it does.

SlimmingDownSouth
07-30-2009, 07:13 PM
please please please do not ignore a thyroid problem...

my new doctor took me off my pills saying i didn't need them, and i trusted her cause she was a doctor. with this my weight spiraled out of control.


I see this all the time and it never ceases to amaze me. Doctors check thyroid levels on people on the medicine and when they come back normal, they incorrectly stop the medicine. The levels are normal BECAUSE of the medicine. It is like stopping blood pressure medicine because it is working and the blood pressure is normal. I'm sorry that happened to you, newfette.

And Wren... you are right. Generic forms of thyroid are not as consistent in dosage. Lots of doctors won't use them. Even the name brands may vary, but are more consitant. So any change in brands should be followed by a recheck in the levels.

Following your levels of TSH and Free T4 are the key. No need to guess or wonder in this game.

cathyxxx
09-15-2009, 02:54 PM
hey gang

just want to mention if anyone here is having trouble finding your natural thyroid med, like Armour Thyroid, Naturethroid or Westhroid, please check out the info at www.savenaturalthyroid.com

or also all the good discussion at the facebook page by the same name. or holler at me.

hugs,
Cathy

D22Guzman
10-12-2009, 07:26 PM
Okay I have lost some weight I use to weigh 300 lbs but it seems that I have stop losing weight I have started a new diet plan and a new exercise routine hopefully it works I will keep everyone up to date I also started new meds by the name of Topamax® (topiramate) i have really bad migraine headeaches. Has anyone heard of it? it has literally taken my taste buds away I dont know if its a good thing or a bad thing oh wells we will see...

I have diagnosed with MS so I want to lose weight before I cant do much on my own so i am optimistic if you can call it that...wish me luck...here I go on my journey...

Every 10 pounds...:cheer:

cormandy62442
10-18-2009, 11:18 PM
I was just diagnosed with it. I had my blood checked back in April and my doctor that I had at the time just focused on my cholesterol being elevated at 217, he never said anything about the thyroid. I finally visited a dietitian and she recommended that I see another doctor to get my thyroid checked. The new doctor immediately put me on synthroid and told me to expect some weight loss and of course continue with my diet and exercise. I just started, so I hope that I start seeing more energy soon! I'm glad that I was able to figure out what was wrong with me.

Sasafrass
10-22-2009, 01:25 PM
My doctor recommends take additional B and D supplements as Synthroid depletes these vitamins in your body. I have noticed a HUGE difference in my energy levels. Without them I am very tired and have zero energy.

He recommends 1000 mcg of B12 and 2000 I.U. of D daily.

What a difference it has made.

Lizabeth2
10-22-2009, 03:46 PM
I was on generic meds and my reg doc sent me to a specialist . She doubled the dose and I have more nodules since I was on generic. She doubled the dose to see if the growths stop. Hopefully. I have not yet lost weight but have been told that people with low thyroid do better on a low carb diet. I have not been on it long enough. No sugar or flour products. Yes, we will have lapses, but altogether, less carbs is better. Eat more veggies and at least 3 fruits I day I am told.:carrot:

bethanygm
10-24-2009, 05:45 AM
I've got it. I would look into Armour thyroid. That is the only thing. Everyone else has given great info, too.

I have been very unsuccessful in losing weight since I was diagnosed. I blamed my thyroid for awhile, but now I think it may just be my own fault.

I just got a GoWear Fit to help me track how many calories I am burning a day. If I weigh my food religiously and wear this thing for a month and have a great deficit and STILL don't lose weight, I will know my metabolism is messed up. I do think I just eat way too much and move way too little, though.

lovetorun
10-26-2009, 06:13 PM
I have been on Synthroid for several years and it is vital to my well-being. A previous poster mentioned being on a high dose but feeling like it isn't helping. I want to mention that there are several things that can interfere with the absorption of Synthroid. Be very careful about taking other meds or vitamins at the same time. If you take a multivitamin (particularly containing iron), take it at a totally different time of day. Also, make sure you are careful about taking on an empty stomach and then not eating for 60 minutes afterwards. Both of those things will help the full dosage be absorbed by your body! Hope that helps!

skinirose
10-28-2009, 02:31 PM
Is there a hypothyroidism/ Hashimoto's support group on this board?

I would love to join one.

Butterfly09
11-07-2009, 07:37 PM
If you are on Synthroid (t4) and still having hypo symptoms speak to your doc about adding Cytomel (t3). Some people have a problem converting t4 to t3 and need the Cytomel for their meds to be fully optimized.

ResilientWoman
11-17-2009, 04:07 AM
My doctor recommends take additional B and D supplements as Synthroid depletes these vitamins in your body. I have noticed a HUGE difference in my energy levels. Without them I am very tired and have zero energy.

He recommends 1000 mcg of B12 and 2000 I.U. of D daily.

What a difference it has made.

Hypothyroidism runs in my family. My grandmother died of it. My mom had her thyroid removed when she developed a benign tumor the size of a grapefruit in her 30's. I've been on Synthroid since I was 25, I'm 43 this month. Currently taking 225 mcg of Synthroid daily. It took me 3 1/2 years of being very ill to find out that I was dangerously Vitamin D3 deficient. I'm on 50,000 IU once per week. Getting my Vitamin D3 levels up to 60 - 80 is what it took for me to start losing weight.

Today is the first time that I've heard that Synthroid depletes this all important hormone/nutrient. My B levels were tested too and they seem okay. I'm getting back on my multivitamin as soon as I can afford an extra $40-$50 per month.

Right now I'm alternating between losing 2 1/4 pounds per week and none at all. Tracking foods and exercise seems helpful but I don't always know why the plateaus are happening. Still horribly exhausted much of the time. I feel like I need a better doctor. Must do more research. I force myself to do what is best for my daughter, my pets and, sometimes, myself. I'm just so tired all the time.

ResilientWoman
11-17-2009, 04:24 AM
hi everybody, my name is haley my doc started me on generic synthroid about a month ago and now i feel even more tired than i was before which makes doing exercise more difficult and when it's so hot out and my 5 yr old daughter wants my attn i just give up and don't do it. i'm supposed to get my blood rechecked first week of september, so if my energy hasn't improved i hope that will show cause i won't be seeing my doctor that day.....

congrats on everyone making progress!

My thyroid was only in need of mild medication until I became Vegan in my late 20's. In order for me to get enough protein to not be ill, I ate a LOT of soy as well as many other vegetable proteins. Not being able to process simple carbs as a hypothyroid patient limited me a little but diet was very well rounded. Despite my good intentions, I destroyed what was left of my thyroid function. Please be careful about eating processed soy and do the research. It may cause you to become infertile and morbidly obese.

Due to gaining 100 pounds in 2 years from my vegetarian lifestyle and its damage to my already weakened thyroid, I continue to eat a wise carb program, The Schwarzbein Principle, and have returned to eating omnivorously, albeit mindfully.

ashleec73
12-21-2009, 07:09 PM
Get the Thyroid Diet by Mary Shomon. This book is a BIBLE for anyone with a thyriod condition. She is a huge advocate for self maintenance and goes thru, step by step,on how to improve your condition...especially when you might end up with several docs who are less than responsive to your symptoms.

shananigans
01-06-2011, 01:11 PM
Resurrecting an old thread here, it's interesting to read about everyone's experiences. I was diagnosed within the last couple months, I had very elevated TSH levels (9.61 uIU/mL, normal range is 0.36 - 4.57). My doctor believes it's hashimoto's thyroiditis. I started on a very low dose of levothyroxine (25 mcg/day) and will be having my levels checked again the end of this month. My doc wanted to start low and move the dosage up till my hormone levels are normal to avoid the effects of too much medication. I've been on the medication for about a month now. I'm feeling better, but I started the med shortly before winter break so it's hard to say if it's the medication or just getting enough sleep and not being so stressed out all the time.

Before I started the medication I was very fatigued all the time, it had been a year since I really exercised and I gained a lot of weight during that time, and I was feeling pretty down and depressed a lot of the time. I had lost a full time job and went back to school full time. I attributed a lot of my symptoms to stress, I've been working very hard to get everything right so I can get into a top nursing program next fall. I'm glad to know it may well be a medical problem and not "just me", because that means it's treatable! I stated exercising again this week, something I haven't had the drive or energy for in a long time. I'm feeling better already, hope it's only up from here!

cathyxxx
01-09-2011, 02:44 PM
hopscotchgirly - everything that you mention can be a hypo symptom. i know many people with anxiety and panic attacks that found they had a thyroid problem and with proper treatment, no longer deal with those things. if you find that you do have a thyroid problem, you may need natural thyroid meds (that also contain T3, not just T4 like synthetic thyroid meds) in order to treat your symptoms.

the regular thyroid tests missed my thyroid problem for over 20 years. if i were testing my thyroid today, i would have the following tests done:

FREE T3
FREE T4
TSH
REVERSE T3
and thyroid antibodies tests (Anti-TPO and TgAb)

also there is a lot of good info at
www.stopthethyroidmadness.com

if a doc wasn't willing to run those tests, then i would keep looking until i found a doc that would do what i ask. i hope you get the treatment that you need. take care, cathy

LolaCrane
01-09-2011, 04:46 PM
I agree with the majority who posted to this thread that leaving hypothyroidism untreated is really asking for trouble. I was undiagnosed for several years, and my heart rate had slowed to a crawl by the time I got a blood test that showed my TSH level off the charts, it was so high. I was weeks from death, according to my physician. Synthroid fixed me in less than two weeks - I felt SO much better! I had experienced near unbearable joint pain with this, and it all disappeared! My sixty pound weight gain took a little more attention, however. When the metabolism has become virtually non-existent (my doc said I resembled a hibernating bear), your body needs coaching back - a hypo friendly diet (see Mary Shoman's About.com/Thyroid website or buy her amazing book, which is the last word on the condition) and plenty of exercise to jolt thing back into motion! Getting the weight off is slow going, but I've managed half of it, so far. I switched to Armour until it became unavailable and now have a compounding pharmacist make me up a generic version - and I've added a little Synthroid in because my T4 was low (this is the active component - you need T4 to actually drive the bus)! Still, my TSH was nearly 0 for a long time and I never felt better. The thyroid does not start producing thyroid hormone once it stops - don't let anyone cause you to believe that it does. It cannot regenerate!

ems81wales
01-09-2011, 04:56 PM
Iv had a underactive thyroid since 1998 and only been on meds since 2001 after puttingon 6 stone. With alot of hard work and having depression i managed to loose 5 and half stone it took me a few years but i got there so dont give up it will come off :D

deetermined2
01-09-2011, 05:05 PM
Okay I have lost some weight I use to weigh 300 lbs but it seems that I have stop losing weight I have started a new diet plan and a new exercise routine hopefully it works I will keep everyone up to date I also started new meds by the name of Topamax® (topiramate) i have really bad migraine headeaches. Has anyone heard of it? it has literally taken my taste buds away I dont know if its a good thing or a bad thing oh wells we will see...

I have diagnosed with MS so I want to lose weight before I cant do much on my own so i am optimistic if you can call it that...wish me luck...here I go on my journey...

Every 10 pounds...:cheer:

I read that there is a correlation between D3 deficiency and MS. That if D3 deficiency is improved based on some test (not sure which, not the basic D level, the test has to check to make sure your body is able to use it) that symptoms are helped.

Sorry I can't remember exactly which one.

cathyxxx
01-10-2011, 10:32 AM
hopscotchgirly - you might also want to check out the info at
www.stopthethyroidmadness.com

there is some very good info on the connection between thyroid and mental health at
http://www.stopthethyroidmadness.com/thyroid-depression-mental-health/

ems81wales
01-10-2011, 10:33 AM
does anyone know what your levels should be because my doctor just reduced my thyroxine because they said it was abit over but when i go next month im going to get the actual levels and see what is what as i am still tired all the time and hair falling out :(

ems81wales
01-10-2011, 10:34 AM
cathy thanks for them links i also have had depression for several years aswell xxx

cathyxxx
01-10-2011, 08:02 PM
ems 81wales - you need your doc to pay attention to your symptoms. you still have hypo symptoms and he is reducing your meds :( can you get a copy of your latest bloodwork? it is a good idea to always get copies of your bloodwork.

brokengently
01-11-2011, 01:43 AM
After reading the posts in this thread, I think I may be in trouble...

2 years ago I went for a medical check up and the doctor found a tiny cyst in my throat/neck area. She prescribed Synthroid (half of the tablet) but I don't remember what it was supposed to do. I took Synthroid for about a week but each time, my chest would tighten which made it hard to breathe. So I stopped and never got back to my doctor. Since I wasn't officially diagnosed with hypothyroid, I thought I would be ok.

Now I checked the website posted here with a list of symptoms, and I have almost ALL of them... my skin and hair are really dry, feeling cold all the time, hair turning white and falling off (I'm 29), constipation, slow weight loss, etc.

So I want to have another check up... but I don't know how to go about it... do I have another x-tray to check the cyst? Do I just tell the doctor I think I'm hypothyroid? I really wish I paid more attention to this before...

And did anyone get the same reaction to Synthroid? It felt like my throat was closing up... and it was giving me migraines, too... Or is that how it's supposed to work?

ems81wales
01-11-2011, 07:58 AM
Thanks cathy i am going to ask them for the results and maybe ask them to refer me to a thyroid clinic xxxx

HokieLoki
01-11-2011, 02:38 PM
has anybody here had problems with Levothyroxine? I recently switched doctors because I moved, and when I went to pick up my Synthroid in November, I noticed it was the generic. Since it was 4 dollars instead of 30, I went ahead and took it for two months.

I wasn't actively losing weight those months, it being the holidays, but I have never been an over eater and was still making healthy choices. I intended to maintain, which I have never had a problem doing when I am on the right meds.

When I went in a couple weeks ago to get my levels checked again, they were HORRIBLE and when I stepped on the scale, I had gained 25 pounds in 2 months.

I am back on Synthroid again, and the pounds are coming back off, but I am extremely mad about working so hard to lose those 25 pounds and now I have to do it all over again!

I am also mad at myself for not catching it in time, I tend to wear leggings and big hoodies for most of my clothes since I work from home so I didn't feel anything get tighter... I am super depressed about this.

shananigans
01-11-2011, 05:06 PM
HokieLoki - Sorry to hear about your bad experience. My doc did mention that some people do not respond to levothyroxine like they do to synthroid, but for others it seems to work just as well. I started on levothyroxine, if my hormone levels don't respond to that I can get switched to synthroid, but my insurance won't cover it unless it's proven medically necessary. Good luck resuming your weight loss, I know it can be really frustrating.

9 days into my renewed weight loss efforts and I've gained 2 pounds. Awesome. I'm starting to think this whole weight loss thing might not take off again until I get this thyroid business straightened out, but that's no excuse to not keep on exercising and eating well. I'd really like to be able to wear most of the clothes in my closet again.

ems81wales
01-12-2011, 09:27 AM
I have never heard of synthroid before iv always been on levothyroxine and always struggled with my weight on it i have to be so strict to loose weight and exercise alot :( I dont know what to do as they recently just reduced mine like i said before they are testing my bloods again next month. Do they automatically check your t3 when testing the thyroid or shall i ask them? xxxx

2happytummy
01-17-2011, 12:05 PM
ems81wales,
You may need to specifically request not just T3 test but FT3, but also reverse T3 (rT3), also FT4.
If your body is making good levels of FT4 but you still have low FT3 it could be because your thyroid is making
rT3 instead of FT3. Having too much rT3 can give you all those bad hypothyroid symptoms. RT3 is like the "evil twin" or mirror image, so to speak, of the FT3.

So, you may need to request those tests.

Best of luck!

ems81wales
01-17-2011, 05:47 PM
Ok thanks alot for your help il write this down and ask them to check it xxx

ems81wales
02-05-2011, 03:21 PM
the doctors are checking my thyroid again i get my results next friday so i will let you know how it goes xxx

cathyxxx
02-05-2011, 05:45 PM
Ems81wales - do you know what tests they are running? i would be sure to get a copy of whatever they have done, even if they tell you everything is fine.

LightRaven
02-06-2011, 09:46 PM
Hey Guys,

Since this seems to be the Hypothyroid thread, I have a question.

I've been on levothyroxine for 1 month exactly. Haven't really noticed a difference yet.. my doctor even said I'd most likely end up on a higher does than what he started me on (50mg). I don't get my blood tested again until like April, although, he does want me to go to an Endo (which means actually have to go get my referral papers.. they've been waiting for me for 3 weeks lol)

Anyway...So I've been on this medication for a month and what I am noticing is: Heart Palpitations and minor dizziness.

Now, I know that every once in a while our heart "Skips" a beat (I know it's actually adding). I can honestly say that it probably happens to me once or twice a year. But I've had 5 in the past month. And a few "almosts" (It felt like it was going to do it, but didn't) I've also gotten the whirlies. That's happening more frequently. Especially after I'm getting up off the floor quickly, or if I've been crouching down for a while. But just this past week, I was sitting at my desk talking to a co worker when it happened.

My mom isn't being helpful (She has hypothyroidism as well, and has been on levothyroxine) I ask her about it and she goes "It's your thyroid!" But I didn't have these things before the medicine.

(And a side note, I also have to have an ultrasound done on my heart to make sure I don't have mitrovalve something or other... My doctor just wants to make sure I have chest wall syndrom and not something else. He doesn't think I do have anything wrong with my heart.. my EKG was good, but just incase. Chest wall syndrom is hereditary.. my dad had it....) But I still didn't have these palpitations or dizziness until I started this medication.

So.. is this normal? Or should I be running to my doctor? Thanks! :)

LR

ems81wales
02-07-2011, 03:24 PM
i told them to do the ones you were on about cathy il get the results and let you know friday xxx

cathyxxx
02-07-2011, 04:53 PM
Great!!! :)

Bijouxette
02-08-2011, 12:16 AM
Hmmm LightRaven, since I've been diagnosed (late November), I have been seeing my doctor once a month for blood tests to see if the levothyroxine dosage is correct. Each month, he's upped it. This last time, since it was 175 mcg, he said if I experienced any heart palpitations and/or had a hard time breathing and swollowing, I was to come and see him immediately.

LightRaven
02-08-2011, 09:01 PM
Hmmm LightRaven, since I've been diagnosed (late November), I have been seeing my doctor once a month for blood tests to see if the levothyroxine dosage is correct. Each month, he's upped it. This last time, since it was 175 mcg, he said if I experienced any heart palpitations and/or had a hard time breathing and swollowing, I was to come and see him immediately.

Thanks Bijouxette.

I called my doctor's office this morning. At first the receptionist was like "Uh, you have to go to the ER" and I was like "Uh.. no. I'm not going to the ER" I tried to explain to her that it's not like I'm having constant palpitations, But I can count on one hand how many times I've had a palpitaiton in the past 5 years.. and now in the past four weeks.. i've had 5+ (had another one today)? It just seemed like something was off.

So I went in today to have another EKG (Had one recently actually, it was fine in december) Doctor says it's not the levothyroxine. (Also, when I was reading up on it today, it looks like heart palpitations are a side effect when the dosage is too high.. essentially making you hyperthyroid. LOL! I definitely don't have that going on, I haven't had really any relief of symptoms, but I'm just starting out)..

Anyway.. so it's not the medicine, but there is definitely something up with my EKG. It's hard to explain but it's like the EKG showed there is too much time between the electrical pulses that tell my heart to beat. That the electrical pulse took the wrong way to my heart. It got there... but not in time.

That was a crappy analogy.

Anyway.. now I really have to go see a cardiologist and have that ultrasound done. :(

LR

Bijouxette
02-08-2011, 11:51 PM
I know we all wish you good luck and hope for the best!

ems81wales
02-11-2011, 10:26 AM
hey girls still no proper answer my blood test came back saying iron, kidneys, liver and cholestol was normal. My thyroid came back saying it is still over abit it has come down abit from last time when i was on 100mg a day but it is still saying im abit over on 75mg a day im so confused as i am still having underactive thyroid symptoms :( so my doctor is looking up thyroid disorders and the rt3 as he has never heard of it as he aint a specialist in thyroid disorders. In the mean time i have to take my temperture 10 times in one day and record it and let him know what they were when he rings me about what he is going to do next about the thyroid.

So still no answers im so frustrated about this. xxx

My results were t3 5.1 and t4 15 i dont know what the levels are meant to be but he is saying it is still high can anyone enlighten me on this?

cathyxxx
02-11-2011, 10:56 AM
Ems - have you checked out the info at
www.stopthethyroidmadness.com and
www.thyroid.about.com ???

blood tests are just a gauge - not everyone is the same. just bec a lab result is "within the range" does not mean that you are no longer hypo. I would say that you are still dealing with hypo symptoms bec you are not getting the proper dosage AND you are not getting any direct T3 like you would from Cytomel or natural thyroid meds like Armour, Naturethroid, etc. I would be very anxious to have your doc run the FREE T3 test and see where your T3 is.

ems81wales
02-12-2011, 07:38 AM
well he said my t3 is 5.1 im waiting to hear off him now he is looking into thyroid disorders and doing the rt3 and the other things you mentioned. I will let you know. I had a look at one of tem site you recomenned it but it didnt say anything about what scale you should be inbetween xxx

ems81wales
02-25-2011, 05:55 AM
all they have done is put my meds back up they dont do revers t3 or t4 here they said they do that in usa not in the uk so god know im sick of it but leats they put my dose back up xxxx

cathyxxx
02-25-2011, 10:00 AM
Ems - unfortunately getting proper thyroid treatment any place in this world can be simply MADDENING!!!! glad they put your meds back up! hope you feel much better!

ems81wales
02-27-2011, 05:38 PM
Thanks cathy x

leiluwicket
02-28-2011, 02:39 PM
I am so frustrated with the whole hypothyroid issue. I was always very thin, and then in one year I gained 70lbs with no change in diet/exercise. I was able to lose 35 lbs for my wedding over a period of 6 months (MUCH slower than I wanted), and needed to still lose that last 35. But the second I wasn't exercising 2 plus hours a day I gained 15 lbs in 5 mo. (also my thyroid got out of whack again during that period of time.) I'm finally on a higher dose of levox and take cytomel twice a day as well. I'm starting back swimming this week. Before the wedding I was doing P90x and turbojam but I got a nasty knee injury that parked me for a few months. I'm going to buy insanity today and do that with P90x later this month. I suppose its just crazy to think that in order for me to get back to and maintain my normal size my only option is to exercise hard core two hours a day and be even more strict with my already very healthy eating habbits. Anyone have slower weight loss with the thyroid?

cathyxxx
03-01-2011, 02:19 PM
Leiluwicket - yes yes yes - slower weight loss for me with a thyroid problem. I'm glad you added the Cytomel as the direct T3 is important with weight. Before I got on Armour Thyroid I was gaining about 10 lbs a year. Once I was on the proper dosage for me, I lost about 20 lbs in a year. this past year I have fought with the same 10 lbs over and over. I believe I am in menopause and it has made things EVEN more difficult for me. Everything I have read encourages people with a thyroid problem to follow a low glycemic diet, and I find that works best for me. Even tho I have a long long list of hypo symptoms that I no longer deal with and I am soooooo much better, I still struggle with my weight and it looks like I always will.

It is very crazy to think you have to get that amount of exercise in order for you to maintain a normal size. that's a LOT of exercise!

eyereenahmahree
03-11-2011, 11:12 PM
I was diagnosed with hypo almost a year ago. i am on the lowest dosage of synthroid, and recently have been feeling really tired and foggy in the brain. i did have my levels checked recently (january) and my endo said i was smack in the middle of normal and that she wouldnt raise my meds. she told me that i needed to cut out white breads, rice, sugar, etc... (the white demons as i call them).

other than cutting out that obviously pointless "food group", has anyone heard or experienced negative side effects from eating kale and macrobiotics? my doctor said nothing about avoiding that stuff, nor did my nutritionist... but im curious what others have experienced. i have read about those being goitrogenic foods but they have always been a staple in my diet and being a vegetarian and a type A blood type, my can vs. cannot eat list is getting ridiculous.

i know i have been tired because i feel very discouraged. i have been eating the white demons because its such an old learned habit, although i know better. sugar is a nasty addiction.

KimZ
03-17-2011, 12:47 PM
I was diagnosed with hypo almost a year ago. i am on the lowest dosage of synthroid, and recently have been feeling really tired and foggy in the brain. i did have my levels checked recently (january) and my endo said i was smack in the middle of normal and that she wouldnt raise my meds. she told me that i needed to cut out white breads, rice, sugar, etc... (the white demons as i call them).

other than cutting out that obviously pointless "food group", has anyone heard or experienced negative side effects from eating kale and macrobiotics? my doctor said nothing about avoiding that stuff, nor did my nutritionist... but im curious what others have experienced. i have read about those being goitrogenic foods but they have always been a staple in my diet and being a vegetarian and a type A blood type, my can vs. cannot eat list is getting ridiculous.

i know i have been tired because i feel very discouraged. i have been eating the white demons because its such an old learned habit, although i know better. sugar is a nasty addiction.

Goitrogenic foods like brussels sprouts, rutabaga, turnips, cauliflower, African cassava, millet, babassu (a palm-tree coconut fruit popular in Brazil and Africa) cabbage, and kale can act like the antithyroid drugs propylthiouracil and methimazole in disabling the thyroid function, so they should not be eaten in large amounts by someone on thyroid hormone replacement who still has a thyroid. It's thought that the enzymes involved in the formation of goitrogenic materials in plants can be destroyed by cooking, so thorough cooking may minimize goitrogenic potential.

alrightythen
03-22-2011, 01:12 PM
have any of you found that taking the name brand vs the generic makes a difference in how you feel and weight loss? i'm on the generic synthriod right now and am wondering if i should try the name brand instead. i'm still feeling the same and not losing any weight after 6 months of being on it and dieting/exercising like i should. it's so frustrating.

rachel2writer
03-28-2011, 04:24 PM
I was diagnosed with hypothyroidism 15 years ago after my first daughter was born. I only lost 5 pounds after her birth and continued slowly gaining weight despite my thyroid levels being normal. Over that period of 15 years, I gained probably 65 or 70 pounds over my POST-pregnancy weight. My first doc way back when put me on levoxyl. I tried Armour for a few years, which made more of my hypo symptoms seem to go away, but that got harder and harder to find. Our pharmacy was always out. Back to the $4 generic levothyroxine.

As for slow weight loss? Heck, yes. At my heaviest, I was 264 over two years ago. It took me two and a half years to lose 19 pounds. 2 1/2 YEARS for 19 pounds. It's really hard to keep motivated when the loss is so tiny.

I recently changed doctors. At my physical, I pleaded with him at how much I wanted to lose weight, and how much of a struggle it has been. He first switched me from the generic levothyroxine to synthroid to see if that makes a difference. Some people respond better to the brand name synthroid. He also recommended Vitamin D and B12 supplements (my vit D level was borderline low). I round that out with Selenium, CLA, CoQ10, calcium, and a good multivitamin. (I recently quit smoking after 22 years and wanted to boost vitamins and supplements to both repair the damage from smoking and boost my thyroid function). My doc also offered a prescription for phentermine. I'd never tried diet pills before, but finally had gotten to a level of desperation.

I agree, Mary Shomes' The Thyroid Diet is an excellent book, and a bible for what to eat and what not to eat with thyroid issues. I pair the information in this book with the Glycemic Impact Diet. Exercise is also absolutely necessary for people with hypothyroidism to lose weight. It's non-negotiable. I can eat perfectly on plan for a month, but if I'm not exercising, I won't lose and might even gain.

cathyxxx
03-29-2011, 10:42 AM
just so y'all know... Armour Thyroid, Naturethroid, and EFRA are all now easy to get with a a prescription. no shortage anymore at all. I pick ours up at Walmart every month and have been for almost a year now. during the shortage I simply had my Armour made at a compounding pharmacy.

Sheila3
04-01-2011, 11:11 AM
Hello! I'm new here and I've been reading the messages.

Last fall I went and got tested. I'd heard a couple of coworkers discussing their thyroid problems on several occasions and didn't really understand it all so I googled it and determined that I had some of the same symptoms. I was put on 50mg of Levothyroxine and went back 6 weeks later for another blood test and they said I was good with the 50mg so I've been on that since. They told me they would check me again in a year.

I thought for awhile that I may have had more energy, but I'm just not sure. Maybe it's just my mind convincing me that it was working. I've been having allergy problems as well for the past couple of years. Kind of came on all of a sudden so took me awhile to realize it was allergies. So I finally decided to go see an allergist at the beginning of this year. On the first visit I was put on 4 different allergy medications. Xzyal and Claritin were two of them. I had tried taking Claritin before and suspected I was gaining weight because of it so stopped. Well, it happened again. I'm no longer taking the Claritin, except in extreme situations when I really need it. I did find some reports online that Xyzal also causes weight gain. I have about 4 left so I think I'll hold off on refilling. Basically my allergies are more of an eye thing. I wear contacts and get this burning sensation and watery eyes. Not much else, but my vision is being greatly affected by something. I was miserable last spring.

Anyway, (sorry this is so long) in the past couple of months I've felt sluggish and somewhat depressed and gained more weight. I'm the heaviest I've ever been so maybe that's where the depression comes from. I'm just frustrated. I've read that Claritin and Xyzal slow your metabolism so I'm concerned they may be interfering with the levothyroxine. I generally work out 3-5 days a week for at least an hour and have been for quite some time. I've tried changing my diet and increasing my workouts. I'm at a loss here. Nothing seems to help and I feel like I'm moving in the wrong direction. I don't seem to be losing any weight. If anything, I'm gaining. Any suggestions? Is there something else I should be doing? Is there an allergy medication that anyone knows of that might be better? Do you think my medications are off? I just don't know anymore and I was hoping some of you with more experience in this area might have a suggestion. Thank you.

cathyxxx
04-07-2011, 04:43 PM
Sheila3, you may need more thyroid meds. It sure sounds like it. even without the other allergy meds being involved, just bec a dosage was good for you a year ago, does not mean that you still need the same dosage from here on out.

you may like reading some of the info at
www.stopthethyroidmadness.com
www.thyroid.about.com

take care,
cathy

ilidawn
04-07-2011, 05:04 PM
I just got my blood drawn today to get tested for a thyroid problem but after doing some more research I'm worried about how they're just doing a TSH test and they will say there's nothing wrong when they didn't do a full test for Free T3 and Free T4 (it's the local free clinic since i cant afford more). Is it likely they'll say I'm fine? A lot of the symptoms match up..it's kind of worrisome.