fired from doctor...her loss.
After taking the active for of thyroid med, called T3, my doc says no more. I have the T4 to T3 conversion syndrom. Synthroid doesn't work. On and off for 11, yes, eleven, I have found docs to prescribe it to me. They had no idea of the Wilsons Temperature syndrom...nor of the Low T3 problem. After my last doc retired, his young replacement continued to refill for a year and a half, until I went in. Surprise! She said it was poison, compared it to meth...said I was killing myself with an artificially induced hyper state. I pointed out that my pulse, blood pressure and temp her nurse just took were low. She couldn't explain it...she just knew my free T3 was high and T4 & TSH bottomed out. I pointed out that was a normal finding for Cytomel patients and timed-released compounded T3, like mine. Needless to say, my blood tests were the same one and a half years earlier, yet she has continued my refills. But, she just couldn't understand how I was still alive with perfect stats, perfect CBC's, perfect Chem 7, cholesterol low...feeling great...and my weight was the same...despite my "hyper" state.
Poor thing didn't even know enough to tell me to wean off. She reluctantly refilled it once for that purpose and sent me to an Endocrinologist aka paid drug for Synthroid. No thanks.
I refuse to be held hostage by these docs...filled with trepidation at each confrontation, wondering if I can get through to them, wondering if they can listen for once and not try the old-you're fine, the test says so.
The Test lies. I will not go back to that suffering. I am researching everyday to discover the over the counter solution. Trying some things right now. And I swear...if I can't get my temperature up, lose weight on this very low carb diet with carb refeeds on two days, Sunday being an anything goes day, with raw thyroid and adrenal glandulars, selenium, iodine, zinc and many others...I'll get Mexican cytomel over the internet without a prescription, lolol. Seriously.
No more doctors condescension.
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