Oh Shannon, I am so sorry. My heart breaks for you. I too am on the path to a hysterectomy much early in my life. It sounds like the condition makes you pretty miserable. I know you and your husband may want more children in the future, But the kids you have now need a healthy mother! I'm not trying to guilt you or force you to make a decision you don't want to make, but in my heart I feel like it may be best for you to have the procedure. I understand your condition is not currently life-threatening, but it seems to be having an impact on your quality of life. As for having more children, Adoption is always an option for you.
If you need to talk or vent to anybody, feel free to pm me any time. Our conditions may not be the same but we seem destined for the same outcome.