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I think I'm going to need to take a break... VERY LONG POST

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Old 08-27-2005, 04:02 PM   #1
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Default I think I'm going to need to take a break... VERY LONG POST

As much as I don't want to, I think I'm going to have to try to maintain for a while. For the time being I'm still on plan, but things are going to get hectic soon and I know I won't be able to keep up with weight loss and everything else.

I think I mentioned before that my husband has a spinal cord injury and is paralyzed, but I think that's all I said, so I'll give a little background info before I start my LOOOOOONG story. He was injured in a car accident 13 years ago, and is a quadriplegic as a result of the accident. He is a lower level quad, so he is completely independant and can still do everything that all of us "normal" people can do, with the exception of walking of course.

Well yesterday my husband tells me that he thinks he's getting a pressure sore. For those of you who don't know what I mean, a pressure sore or ulcer is a spot where increased pressure has caused inadequate blood flow to the tissue in that area causing it to die. A pressure sore develops from the inside out, so by the time you see anything on the outside, you've got way bigger problems that you can't see. On the outside there are several stages of a sore to indicate it's progression internally. A track can develop from the wound on the outside, all the way to a bone and cause a bone infection. Anyway, pressure sores are inevitable when you have a spinal cord injury, and are most common on the butt because you spend all day every day for years sitting on a butt that you can't feel.

Alright, enough technical crap. So yesterday he tells me he thinks he's getting a pressure sore on his butt. Apparently it's been developing for several months now but for some reason he didn't feel the need to tell me or to do anything about it. Needless to say I'm angry, but right now that's beside the point.

I've examined the sore now, and it appears to be a stage three or four sore which will require surgery to fix. It most likely goes right to the bone as there is bone underneath the sore, which means it is very likely that the bone is infected. We'll have to wait until Monday to contact a wound care specialist to get an appointment and find out for sure.

More than likely, he's going to need to be in the hospital (the hospital he will need to stay at is a 90 minute drive from our house) for 6 weeks on IV antibiotics to get rid of or prevent a bone infection. This 6 weeks needs to be spent on very strict bed rest, he won't even be allowed to sit up. Then he will need to have surgery on the sore itself to fix it. Then another 6-8 weeks on strict bed rest to let the sore heal, followed by a 5 week progressive sitting program where each day he spends more and more time in his wheelchair. (After that long lying down, the blood pressure change when he sits up will make him so dizzy that he might pass out. Plus the area where the sore was needs to get used to having pressure on it again.) All of this means it's doubtfull that he'd be home for Christmas.

All of this is timed perfectly for the start of my first year of college, and if he ends up having to be in the hospital for that long, I won't be able to go to school. I'll need to work to help pay for the hospital bills because his health insurance is pretty crappy (no one will give good coverage to someone with a spinal cord injury) which creates a whole new problem as I just quit my job for the school year. Now I'll need to find another one.

I am seriously ready to fall apart right now. I don't know how I'm going to deal with all of this. If he has a bone infection, antibiotics often don't work to get rid of it. Since someone with a spinal cord injury has a comprimised immune system already, death is a real possiblity if the bone infection speads or infects his blood.

I hope that I haven't dragged you girls (and guys) down by telling you all of this. We aren't telling our friends and families anything until we know for sure what to expect, so I have no one else to confide in right now. I am absolutely terrified of what might happen.
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Old 08-27-2005, 05:16 PM   #2
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Oh Krysi, I'm so sorry to hear this horribly stressful news! Please know that my thoughts are with you and your DH, and I'm hoping for his very speedy recovery. I know this was a totally unexpeced turn of events, and you feel like things are falling apart right now, but remember, you are a strong, resourceful woman, and you WILL get through this. I know the next several months are going to be very tough for you, so please, please don't hesitate to vent your feelings here, we are here to support you no matter what.

Take care,
Beverly
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Old 08-27-2005, 05:29 PM   #3
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I'm really very sorry. That is a huge burden for you both to bear, especially by yourselves. Losing weight & being healthy is important, but taking care of your family is very important. So all I know to tell you is to do your best in regards to diet/exercise while you are dealing with this turn of events, keeping in mind that you won't be able to be perfect so you can cut yourself some slack. I hope everything works out well for you.
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Old 08-27-2005, 10:17 PM   #4
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You poor thing, what a terribly stressful and worriesome situation you and your dh are in. I'm so sorry, Krysi. I hope you can get an appointment as soon as possible with the specialist so she/he can make a definitive diagnosis. Try not to panic (though I know our first instinct is always to imagine the worst case scenario). Please know we're always here to listen and I only wish there was more I could do than provide support and be an outlet when you need one. Please keep us updated. I wish you both the very best outcome.
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Old 08-27-2005, 11:13 PM   #5
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I'm terrible at these things. I never know what to say. I just want you to know that you and your husband are in my thoughts and prayers and I wish you both the strength to overcome all these horrible hurdles.
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Old 08-28-2005, 10:16 AM   #6
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I'm so sorry to hear about your husband and I can only imaging how stressful this is for you! You will be in my thoughts and prayers. Please keep us updated.
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Old 08-28-2005, 11:02 PM   #7
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Ohhhhh, I am sooo sorry to hear that you are having to go through this right now. Know that we are here for you. Prayers going out to you and your family tonight.
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Old 08-28-2005, 11:16 PM   #8
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Me too Krysi

That is just so much to handle all at once.
I know how terrifying it is to contemplate what if's when it comes to those you love the very most in this world.

I'm sending you love, prayers and positive thoughts.

xoxo
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Old 08-29-2005, 01:23 AM   #9
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I am sorry Krysi and my sentiments are reflected by all the other posts here. Keep your chin up and lets hope for the best. We are here for you,
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Old 08-29-2005, 12:47 PM   #10
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I'm so sorry to hear you and your DH are going through this. You'll be in my thoughts and prayers.
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Old 08-31-2005, 02:40 AM   #11
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Thank you so much to all of you who posted, you girls are all so sweet and supportive. You all definitely made me feel better, I was really freaking out!

I thought I'd give a little update on the situation, and I'm happy to report some good news. The sore seems to be healing on it's own, it's about 1/2 as bad as it was when I first saw it. We're still waiting on the appointment with the doctor, but for now things are looking good, and if they continue the same way I don't think we'll have to worry about surgery. For now bed rest sucks, but it's way better to have to stay in bed for a couple weeks now to keep it from getting worse than it would be to spend 18 weeks in bed plus have surgery, so we'll take it. Poor dh has been awfully bored though.

Thank you all again for your support, you're all such wonderful people here. Big hugs to all of you.
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Old 08-31-2005, 03:42 AM   #12
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So happy to hear things are improving. Do keep us updated.
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Old 08-31-2005, 07:30 AM   #13
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Great to hear that things are looking good. Still thinking about you two.

~Dee
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Old 08-31-2005, 10:23 AM   #14
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That's great news. thanks for taking the time to keep us updated.
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Old 08-31-2005, 09:27 PM   #15
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OH my gosh, you poor thing! I hope the decreasing in size is as promising as it sounds! Keep us updated, ok? We'll be thinking of you.
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