Hello, everyone. I just got back from getting a CT scan, more chest x-rays, and more blood tests after a visit at my doc's, and apparently there's cause for concern. It could be nothing -- that's my hope, anyway! -- but I went back to the doc for further development on my already enlarged lymph node. I've had one for a while now, and my white blood counts were through the roof, apparently....then I started having night sweats and then, a SECOND enlarged lymph node right next to the first one...and then both of them got a LOT bigger seemingly overnight. And then they became tender and a little painful. Soooo, I went to the doc today and he sent me immediately to get a cat scan, and the other tests redone, since my previous results were now a month and a half old. And he tried to get me into the surgeon's today to get the ball rolling on getting a biopsy on and removal of the lymph nodes, which he says are huge. It really seemed like that second node just appeared overnight, and then they both just exploded.
I wasn't really concerned by the night sweats -- they just didn't register as any big thing in my life until he asked me specifically if I was having any. As for the white blood cell count, they were super high a month and a half ago, but I didn't do anything about them, even though he was concerned. I know, I know.
So now here we are, and he said it could be nothing important, or it could be lymphoma or a few other scary-sounding conditions I didn't absorb and can't remember. If you know me at all, you'll know already that I'll be researching different possibilities, but I'm really going to try to control myself and concentrate on not getting too far ahead of myself.
Anyway, I'm not freaking out, but I'm concerned enough to ask for you guys to send some positive vibes my way.
Well, I called the doc -- he'd sent me right across the street to the hospital to get all the tests, and then he came after me to check on me. (What a sweetheart, right?) It turned out that he didn't find me, but he did find the surgeon, and together they looked at my cat scan results.
It's not good. Apparently I have more enlarged lymph nodes "all over the place" -- he said there was a "necklace" of them all along my clavicle. Bottom line, he said we're hoping for Sarcoidosis, but there's a strong possibility it's lymphoma. And if it's lymphoma, we'll figure out what "level," apparently, which will dictate the course of treatment: chemotherapy, bone marrow transplant, radiation, etc. If it's Sarcoidosis, then apparently there really isn't a treatment, but it can come and go for the rest of your life, with different symptoms and conditions accompanying it -- it basically causes inflammation of tissues and frequently affects the lungs and eyes.
It seems that now the biopsy has been expedited to Monday morning, instead of talking on Monday and then scheduling it for soon thereafter.
All prayers are welcome. I'm not a happy girl, and really scared. Lotsa tears. (He even prescribed a mild tranquilizer to get me through the weekend without having a heart attack, that nice man!) Poor Lorraine is scared out of her mind too, but trying to be strong for me. Thanks again for your responses -- you guys are so sweet.
Sarah, my dear! How scary this must be for you – I hope helps a little to know that you have a family here at 3FC who loves you and is behind you all the way. You are a strong and determined woman and I know you're going to deal with whatever news you get with grace and a steely resolve to beat whatever it may be. Sarah, you’ve given yourself a huge gift of better health over the past nine months and it will pay off for you as you deal with whatever may lie in the future. Hugs and prayers for you.
Start: 257 - June 1, 2001
Goal: 135 - May 12, 2002
Size 22/size 4
Oh, Sarah -- I just logged on for the first time in a while, and I was so sorry to read this.
Keep us posted and (I feel weird telling YOU this, as you're probably the most positive person I've ever met!) KEEP YOUR SPIRITS UP. I know the "options" seem scary, but I've seen too many mistaken diagnoses not to have a lot of hope.
You and Lorraine will certainly be in my thoughts this weekend. We love you!
SARAH!!!! your doc is right to be concerned. you're doing the right thing by going through with all this. you have some of the best docs in the country in maryland, so you be sure to get the care you need....
you sound like you're in excellent hands here... warm thoughts. prayers. healing energy. you can beat this...
Start your day with a smile, and get it over with.
Keeping it off is a hundred decisions a day that help you maintain what you achieved. And that's the hard part. - L Sanders
start: 506 [Sept 2001]
weight at gastric bypass [Jan 29, 2002]: 409
current weight: 225
weight for plastic surgery: 200
final goal: 180
Posts by members, moderators and admins are not medical advice. See your physician before taking advice found on the internet.
(((HUGS))) (((POSITIVE THOUGHTS))) (((LOTS OF PRAYERS)))
You are definatly being prayed for dear Sarah! And Lorraine, too. Please don't be too scared, it sounds like you're in good hands with a doctor who seems to really care about you. We are all thinking about you!
__________________ Amy Jo
You are a strong woman who has done some wonderfully healthy things - you can face and fight whatever comes your way. I am so amazed at how quickly you were able to get a cat scan - we have a one year wait which is devastating for health concerns. You are early stages even just being a month into this and that is a very positive thing. I am thinking of you and Lorraine. One day at a time (or minute if need be). You have a wonderful group of medical people around you...wise and sensitive. You also have us and all good and positive thoughts and prayers are coming your way. Embrace them...