almost
General July 19th, 2009I am almost at a weight milestone. The scale has shown numbers all over a 5 pound range this week, but I’ll live with what show up tomorrow as my ‘official’ number. We were out of town for this week’s weigh in and I didn’t weigh the day we got back, so this will be the last official weigh in before summer vacation (unless Friday, the day of our departure, I happen to hit Onederland, in which case I will record it, because damn, I want to be there & it would be great to have that as my mindset on vacation.
I am almost at a decision for the treatment for my endometrial cancer, at least short term. I’ve had more medical appointments in the past 2 months than anything else, and have researched the topic throroughly. I’ve not managed to get the exact same opinion twice, which is a bit disconcerting. I had the pathology re-read by an expert pathologist in the US who actually downgraded the diagnosis (less scary), although doing so changes nothing in the longer-term treatment (hysterectomy) it does reassure me with respect to timing (can be more confident that several months of hormonal treatment is safe). I’m lucky to have access to so many top experts, but on the other hand when they contradict each other it just gets more confusing. Each comes from their own perspective and expertise and therefore biases. The challenge is negotiating what they think vs what I want, at least insofar as the disease progression issues can be dealt with.
The good news in all of this is that all of the doctors agree that this is not life-threatening, and the risk of it progressing to a more advanced, agressive & scary cancer is pretty small. Exactly how small a risk does vary by who I talk to, but in general everyone says how ‘lucky’ I am this was found so early. I am very aware I am indeed fortunate to be able to twist myself into knots thinking about the treatment options where I preserve some degree of fertility, since 6 weeks ago I was petrified my life was on the line, which today I know it’s not.
Somehow, knowing that I’m ‘fortunate’ to have the choice doesn’t seem to make it any easier. And what makes it even harder is that my husband and I don’t have the same assessment of all the fertility options. This has created enormous stress - both for our couple and for each of us individually, especially as we started to get expert opinions saying that from a cancer point of view the hormonal treatment and an eventual pregnancy are possibiliites. From my point of view the next issue then becomes SUCCESSFUL pregnancy. As I’ve said to my husband, I’ve been on this infertility ride long enough that I’m really clear about one thing : I do not want to get pregnant, what I want is a HEALTHY BABY. So then the questions come up as : if my body is able to crank out a few viable eggs next year (older! and I haven’t had successful ones yet, so this is a big IF), if I do get the eggs, will they be more likely to grow to healthy babies in MY uterus or in that of a surrogate? I suspect that between my age, my miscarriage, my clotting factor, my ectopic and now my cancer (even after treatment), the answer is that there will be a better chance of success with a surrogate. My husband’s ears and mind stopped listening when the cancer doctors said I could carry a baby after the treatment, whereas my mind was wanting the answer to the above question from a fertility expert (not a cancer one, who does not know infertitlity).
So we’re at an impasse of sorts, although I think my husband will come around, and I am not decided - just wanting more info.
I also am keeping myself quite guarded in terms of getting up hope. I’ve been through quite a lot in the past few years trying to have a baby and have had just about every complication that you can have - and now cancer on top of it. While I would love to believe that the answer is as simple as a few months of treatment and then magically being pregnant, I know that for me it won’t be that easy, and that even a successful IVF (not a given at my age and with my history), a successful pregnancy test doesn’t mean a successful pregnancy — a baby.
so ALMOST decided on a lot of things also means NOT decided, still in turmoil, still preoccupied by this, still a huge stress in my life.
But I’m also ALMOST at a weight milestone, and definitely holding the course of keeping to a healthy eating program and getting a small amount of exercise, and doing a number of things to manage my stress.
4 Responses to “almost”
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July 19th, 2009 at 3:12 pm
I think you know the answer, that you have a better chance of a healthy baby (and you) with a surrogate. I hope that you and your husband eventually come to some agreement, as things like this can be extremely rough on couples.
Oh, and I must thank you for the tip about Google Reader. I’m loving it, and this way I won’t fall out of touch with my favourite bloggers. Of course, now I have to go specifically look for some of them again.
Take care of yourself, and I hope you hit your milestone before your vacation!
July 19th, 2009 at 6:16 pm
Not what you want to hear, but I have to say it anyway (or I would not be a good friend) take of yourself first! What is the point of not doing everything you can to save yourself? So you can get pregnant and then have a relapse? I fear that you are missing the forest for the trees. I want to know you are healthy. I think you want to ensure you are healthy. It is not that I hate children (although given my job I would have every right) but I don’t want you to risk your life on the off chance you can have the baby yourself.
You need to shake that husband of yours. If his sole reason for marrying you is so you can carry his baby (and I highly doubt that is the reason) then you need to move onto someone who loves you for more than your uterus (ok not right now as you have enough on your plate to deal with). talk about the surrogate. Talk about adoption. talk about having a fulfilling life without kids. All options for you.
I am thrilled that you found this early enough that you need not fear it spreading. Concentrate on getting better in the here and now (as I know you are doing) and don’t worry about the baby question right away. One issue at a time. trust me, the other issues will still be there when you are better. Make the best decision for YOU now.
Sorry if I sound insensitive to it all, but sometimes you need an outsider to keep you focussed on what is truly important.
big hugs and tons of good wishes
Shari
July 19th, 2009 at 10:17 pm
You are at such a major crossroads in many aspects. Like you said, you’re fortunate to have access to so many experts yet then you have so many different opinions to weigh. You do have options w/your fertility which is fantastic, but sometimes it’s easier to hear “you need to do ____________ and it’s your only option.” I wish you a relaxing vacation full of health, sunny vitamin D and entrance to one-derland.
July 20th, 2009 at 6:41 am
Congrats on making it to ALMOST a milestone! I love that.. I love that you are celebrating it too.. really.. what is the difference between 200 and 199.. not a hell of a lot, and 200 deserves a celebration just as much as 199..
As for making babies. For one thing, all the things that you have gone through with respect to infertility have led you to find your cancer at an early stage. That in itself is a blessing. I know, twisted, but I think you understand what I mean.
Now that you have been given the knowledge and you are working towards treatments, you need to do everything in your power to maintain your health. Babies and lack of babies put major strains on marriages.. having a surrogate may seem like a very weird concept to your husband because it lets someone into your marriage, and into your special moments of having a child as a couple. Maybe your husband is having a hard time accepting this idea because there is a fear that it could change the relationship between the two of you. I think that maybe if you met some couples who have had children through a surrogate, you and your husband could understand the process better and perhaps it could reassure your husband that it is an option that he could pursue.